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Here is the AP story http://news.yahoo.com/fda-tells-23andme-halt-sales-genetic-test-173620516--finance.html and here is the FDA letter to 23&me http://www.fda.gov/ICECI/EnforcementActions/WarningLetters/2013/ucm376296.htm Hopefully this will all be sorted out soon as many people have found tremendous benefit from this testiing!
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Who knows how to decipher this stuff, medically speaking? Just wondering if I could see someone local though I've studied it and don't really see much of anything. There were a few sensitive to this medication and 23% risk for gallstones but nothing of much value. Also said risk of obesity which I find hard to believe as my entire family is too thin actually. Bizarre. Not good to hear when you've had anorexia and bulimia. Anyways, still trying to find a local PCP but none accept medicaid. There is one NP, female, who treats lyme and CFS and lupus supposedly but not sure if she'd be able to review it or not. Thanks.
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- 23andMe
- genetic testing
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For those who have had genetic testing on their children, has anyone found a gene mutation for PNKD? This gene causes a form of dyskinesia. If your child is positive for this mutation, are you doing anything to address this concern? Do you find that it relates to their behavior during a PANDAS / PANS flare? What are the behaviors your child displays during a PANDAS / PANS flare? Looking for similarities since I know PANDAS / PANS presents differently in different children. Thanks for any input!!!
- 5 replies
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- Genetic testing
- PANDAS
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