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BoyIowa

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Everything posted by BoyIowa

  1. Any info is appreciated. We tried removal diets for tummy pains with no substantial results. Now attempting Prilosec. Next step is testing; probably endoscopy. Trial off abx to heal gut - PANS symptoms have been manageable so far. Ds just wants it all to go away.
  2. My ds was diagnosed with this in utero. He had to be checked every year. The year before his onset, we received confirmation that the hydronephrosis was gone. I wonder if it could come back. We are having GI issues now.
  3. We were just in the process. Dropped the last abx and about 3-4 days and ds got sick. Dd brought something home and is sick too. We hoped it would pass - bodies reaction to no abx. To the ped today - back on augmentin for sinus infection and possible Myco P. lower dose augmentin than ds was on, so hoping it works. Fingers crossed.
  4. My dd and ds both take magnesium before bed. Dd, 5, magnesium citrate and ds, 9, magnesium Glycinate.
  5. What's scary is that the doctor "is reviewing old cases and has discovered the strain in other patients who were undiagnosed."
  6. My dd, 5 with PANDAS for less than a year, got the nasty flu this year (and shared it with me). Fever spiked at 102.5 and she slept a lot. As the fever came down and she was up and about, she was so caring and sweet and no screaming or crying or anxiety and everything didn't have to be a certain way.
  7. Did they look like these? http://www.pansawareness.org/Downloads.php
  8. What? We have an appointment next week!
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