Pandasmex

Hawks - I hope we are doing the right thing sending him to Rogers. Me and DH will go prior to sending him to know the place and make the arrangements. He is in a better physical condition though We cannot live with OCD any more. It's horrible....my son's life is under OCD control. Thanks for your prayers, we really need them. Keep you posted!

Thank you.....Very useful comments. We just made some blood analysis: Lyme, circulating immune complexes , thyroid profile, borrelia, Aso titers, etc. Now after IVIG all normal. Ferritin and vitamin D very low. He's taking this supplements plus vitamin B. He's also taking motrin and penicillin injected but we want to change it to augmentin again. We will go first to Rogers and good idea about ALL the necessary questions. Elva

Hello After 19 months, PEX and five IVIG with no improvement in severe OCD, we want to send our 13 y/o son to Rogers hospital in Wisconsin. We knew them in the IOCDF last year. They have a very good inpatient program for OCD kids. Has anyone tried this? Please, we need some advice... Elva and Gabriel

I am new on the forum. My only son is been sick for 19 months. Very severe. I read your story and I'm sorry for What you're been through. I often feel like you...but I ask you "please stay strong" you are an excellent mom! I'm sending you my best wishes and a big hug. Elva

Ok! Count with me. Thanks. Gabriel

Thanks Eileen!  Nice to hear from you...how are your girls doing? Elva

Hello everybody! I feel like a spy because for the last months I've been reading some of your posts, trying to get some help or support I did....thank you all!!!  Today I feel like sharing my only child story through this devastating illness because I feel strong enough to do it. It's a long, long story but I will try to make it short. Santiago (13 y/o) is a beautiful, brilliant and lovely boy and he has pandas since a year and a half. My husband and I think that he has had some OCD issues since long ago... In march 2010 he was a normal child but after a respiratory infection it seems that my DS was kip napped by aliens (you all know the symptoms) and returned with severe OCD and Tourette. In a few weeks he couldn't touch anything at home including his parents, he was not able to go to school, stop eating from my kitchen, using gloves and a mask, etc... We saw many specialist in Mexico city and nobody helped us. He was under therapy and taking SSRI without improving. One psychiatrist told me he had schizophrenia, I felt terribly sad and desperate my DH too. We had to sell our "new house" to give my DS relief and also because of medical expenses.d In that summer we traveled to The OCD Foundation's conferences at Washington and there we knew about pandas. It was amazing DS fit almost in all the criteria. Since then we been like in the middle of a tornado. We saw Dr. L and also Dr. K (both excellent professionals) DS already had PEX at Georgetown university hospital, HD IVIG in Mexico and of course antibiotics. We also have a good team of doctors involved here in Mexico (a neurologist and inmunologist) working and learning together with us. Actually DS is beginning to improve like baby steps and I feel in my heart that we are going in the correct way. Everyday I pray for Santiago though I don't forget all our pandas children.... My husband will attend to the Texas Symposium into two weeks. I hope he will meet some of you and say hello in my name. Thank you!!! Again and keep strong!!! 