rowingmom

Are these homeopathic? Where did you find them? Thanks

Maybe try Reaseached Nutritionals Transfer Factor Multi-immue to help boost your immune system. This really helped dd9's symptoms (almost totally cleared) before she started the abx. She was so much better I was wishing that I did not have to do the Abx thing, but it has to be done. Forrest Health has it without a physician code.

DD9 started biaxin 3 weeks ago and bactrim 2 weeks ago. Her headache, bone pain, foot pain, light sensitivity, inability to concentrate, motor tics, urinary frequency and fatigue increased 3 days after we started the bactrim. Last night she developed hives and I have started her on a antihistamine. The Canadian doctor at the walk-in clinic (our family doctor refuses to be involved with this) suggested that she may be having a reaction to the antibiotics (probably bactrim) and to take her off it. We saw the LLMD on Tuesday and I mentioned the herx reactions (dd had not developed hives at that point) and she suggested decreasing Abx dosages for a couple of weeks. DD9 has tested positive for Bartonella, but negative for Lyme using Igenex (band 41 was ++, bands 34, 39 indeterminate on IgG). We will not be renewing the biaxin and just continue with bactrim for Bart along with Banderol and Samento. Symptoms are definately heading down hill, but this is a good thing, right? LLMD is out of the office today - that figures.

My wonderings: Katie has always been different. She has been extremely sound sensitive since birth - I had to give up playing the piano for years because she would scream and cry whenever I played (I don't think I'm that bad). As an infant she would scream whenever we were travelling in the car. I nursed her until she was 16 months when she looked up at me, shook her head "no" and totally weaned herself at that moment (now I wonder if it had something to do with the oral apraxia which developed after the first MMR - lost words). She has always been emotionally sensitive - crying while listening to nature music (gulls or waves in the background) or sad sounding music. She is very easily frustrated, developed oral apraxia (an inability to control her facial muscles to make speech) after her 15 month MMR which we overcame with 3 years of intensive private speech therapy, has always struggled with motor delays (I had to push her on a tricycle until age 5 when she figured out the peddling motion, now she is a fiend on the bicycle). She had to have OT to figure out how to print and draw (she used to make pictures of people with legs on top of heads etc.). Her art is still pretty primitive. She has a social delay of 2-3 years. She is a smart little bunny. She can remember everything. She could read at 2 yrs (I would point at words when I would read to her when she was little), but couldn't tell me because she couldn't speak. She took piano for two years but managed to memorize everything somehow without reading the notes, so we eventually had to go back and start over reading notes. She has a lot of trouble concentrating and is on an IEP at school which removes her from her class for testing. She has a B+ average, but I have to go over all the concepts with her at home to help her figure them out. Once she figures something out she has it aced, she just has trouble learning it for herself. She has been Dx Aspergers and PANDAS, being treated by LLMD for lyme/bartonella with no Igenex results as of yet. The article on congenital bartonella, and the inability to diagnose it until now, has started me thinking that perhaps that may be the problem. I have been having a lot of trouble with brain-fog and general organization for the last 5 years or so (also into peri-menopause, also a symptom of that) and I wonder if I may have passed something to her that emerged after the MMR did a job on her immune system. I have always been healthy - has my immune system kept it at bay? Her herxing is definately causing her problems and she actually started some autistic-like hand flapping last night - just said she had to, like a tic. Could some autism be congenital bacterial infection, triggered, not caused by, an immune response to the MMR vaccination? Lyme and co-infections began rising in the late 70's, autism began rapidly increasing in the late 70's, Fibromyalgia, CFS, MS, began increasing at that point too. All related to infections that we don't have the capability to test for yet?

Go to the Canlyme.com website and look under the world wide support finder. A volunteer will contact you with info on LLMDs in your area, where to purchase antibiotics etc. There are no doctors that are allowed to treat lyme with extended antibiotic protocols in Canada. I think the closest one to Ottawa is in the Plattsburg, NY area. I am living in the Niagara region of Ontario and we see a LLMD in Buffalo. My dd9 had a single circular rash in the fall of 09 and began ticcing shortly after that. She didn't develop any other symptoms that I associated with Lyme until Jan 2011 - muscle pain, bone pain, fatigue, night sweats, cyclical bowel issues etc. With a round of penicillin V for a strep infection all symptoms disappeared and the tics greatly resolved. Everything returned full force once the antibiotics were finished. Our family doctor wanted to treat with anti-anxiety and tic meds, the allergist wanted a full elimination diet, while the pediatrician is investigating autoimmune bowel disorders. The pediatric psychologist diagnosed PANDAS. None of them is willing to help us by writing requisitions for testing in Ontario. The LLMD is treating for Lyme and bartonella while awaiting the Igenex tests. The LLMD will know which tests to order depending on your son's presenting symptoms. This is our first round of antibiotics for lyme/bartonella. We saw improvement in all symptoms (including motor tics) except fatigue with biaxin, but are now seeing a herx reaction (a temporary increase in symptom intensity, in dd's case increased headaches, ticcing and fatigue) with the addition of bactrim.

The behavioural changes you noted are the exact ones exibited by my dd9 - sound and light sensitivity, ADHD, social delays, hiding under desks at school. Motor tics began in the fall of 2009 after a bite of unknown origin which produced a single 1" diameter red rash. She was diagnosed high functioning AS Dec 2009. Tics increased with strep infection and she was diagnosed with PANDAS in Dec 2010. Muscle pain, headache, fatigue, cyclic digestive issues, night sweats, migrating long bone pain, sore feet began in Jan 2011. Our family doctor wanted to put her on anxiety and tic meds, saying her only problem was that she did not want to go to school - she loves school by the way, and that children on the AS often have these problems. Her pediatrician is investigating autoimmune bowel disease. It was the first article written on your son that brought it all together for me. Please don't consider that your news articles may be boring to anyone - information on clinical presentation in children needs to be emphasized. We are now seeing a LLMD in Buffalo (we are Canadian and fortunately living close to the US border). She is being treated for clinical symptoms of Lyme and bartonella while we await Igenex results. She has been taking biaxin, transfer factor, interfase and boluoke for 5 days now and started bactrim yesterday. Her tics and pain have resolved somewhat and she is less emotional, although the fatigue is still there. This forum is a wonderful resource for parents who are searching, searching...

You can go to canlyme.com and click on the World Wide Support Finder. This will give names of volunteers in your area that will have lots of great information: LLMDs close to you, places to order antibiotics without Canadian doctor co-sign, etc.