eljay1

My son is currently taking augmentin (600mg x2). His grandma just had strep and was on a 10 day course of amox. How long should I wait before he can be around her? She doesn't have any more symptoms. Just want to be safe...

Thanks! I will try this. On a side note, we did a form of NAET over summer. Didn't get too far with it. We live in OH, but I will google the diet you're talking about.

Thank you all for your thoughts. I guess I should have added that we have done all of the testing (both standard and alternative) that would help us see what is happening in the gut. Initially, we found some food sensitivities and yeast issues, but that's it. Also, he eats only meat, some veggies, some fruits (very little now) and some chips. He drinks only water with stevia, and trader jo's carbonated water. Seriously, we are very limited. I wouldn't have to take anything a way from him, because he's not eating any of the things that could be a problem (other that the salicylate issue). I have looked into that, as well, but then he wouldn't be able to eat anything at all, and that isn't an option. As for the abx and steroids, we just started them. He had never been on any before (well a few abx here and there). I tried to keep him off for the last year to see if the gut would heal, but we haven't seen any changes. He has baffled all of the docs we have been to. Just thought I would see if anyone else has these issues and has seen progress with various treatments. Thanks.

Hi. My ds6 has started abx and steroids in the last couple of weeks. We have tried alot of natural treatments with a couple of DAN docs and have recently become a patient of dr. B. My son has had ocd and tics nonstop for about a year and a half. His tics and ocd have really quieted down (in fact the tics are just about gone) since he started the augmentin. One of our major problems (that no docs have any answers for) is with food allergies/intolerances. My son sneezes, gets congested, irritable, and gi upset with almost ALL food. Fruits are especially tough. The ONLY foods that have shown up in lab testing is milk and pollen (slight allergy to soy and wheat). The problem is, he is always hungry and would eat just about anything I give him, but we have had to limit to only the things that are the least offensive to his system. (Which really only leaves us with a few things.) He has been treated for yeast and we are planning on treating again now that he is on abx and steroids. I think mold from fruit is a big issue--but I am open to any ideas. I have often wondered if ivig would make a huge difference and help with this particular issue. Help!!!

Before we started down the Pandas road, we tried alot of alternative therapies. One of them was iv nutrients. To make a long story short, I ALWAYS used numbing cream for any of these procedures. My son was 5 at the time and we called all ivs and blood draws "pokey tests". He is also very smart, and we kept alot of the details to a minimum. But the day before any procedure, I would tell him he was having a pokey test and then we would be going to the toy store for something special. After a while, he was asking when he could get another pokey--because he was excited to get a new toy. It isn't an incentive for everyone, but he really loves toys (no joke!!) Now, when I think of the future (and if we ever have to do ivig), I think he won't dread the needle quite as much. Also, you would not believe how much money we have spent on toys in the last year!

Yes, we use this every blood draw--it works really well for my son. We use a regular lidocaine/prilocaine cream (script from our regular ped), but you can also get something called emla cream from a DAN doc--that might have to come from a compounding pharmacy. It has made our trips to the lab so much better--but what a surprise when my son had some transdermal allergy tests without the cream!! Ow!!

It's only been 2 1/2 days, so it is VERY early for me to even post any gains. But I am feeling really positive about the switch from zith to Augmentin so far. We are supposed to start a steroid taper as well, but I am waiting to see what happens with the abx first. His tics and OCD have been very constant for about a year. We tried lots of natural/dietary solutions first, and saw a small amount of improvement in OCD and tics. My son has lots of food intolerances and these have only gotten worse (we'll see if the steroids help--he gets congested from foods). Anyway, in the last couple of days, his tics have slowed considerably (a constant vocal tic has dropped), and his finger movements have dropped. Really, I am only hearing throat-clearing--that's it for the tics. I will keep posting as I see improvements/decline, though. Hope this helps. (Oh, and the reason for the switch in abx is partly due to the doc thinking the infection is lingering in the sinuses. I think he is right.)

My son was just switched from zithro to Augmentin (600mg 2x a day). We already take some Kirkman's Lacto Duo and also some saccharomyde bou. What are some other good probiotics and the dosages used? He has been treated for yeast in the past, and we also use GSE drops. I am seeing some great gains already with the Augmentin, but I worry about his tummy. Any thoughts??

Oops. Messed that up a bit. I just wanted to chime in and say that we see the same things in our son (age 6). We started abx last month, but after a visit with Dr. B., we are switching abx and adding steroids to see if we can get a little further. His spaciness has improved quite a bit with the first abx, though (zithro). My husband and I do alot of things for him throughout the day (it's so much faster!!) and I do struggle with this a little bit, but I just think it helps keep the stress level down in our home.

Thanks to all of the "forum friends" who have been posting during their doc visits. I feel better prepared for our trip this weekend. Hope all goes well for your kids. My little guy is allergic to most food right now, so we will probably spend a lot of time at Whole Foods. Sounds like there is a nice one in Darien?? Thanks again!

We're traveling from OH to see Dr. B. for the first time at the end of Jan. also. Good luck to you!! (I've had some of the same questions--I called back for a list of the tests, and the receptionist said she can fax it to me.)

I wondered if I would need to have the labs done ahead of time (I asked the receptionist), and she said no. I have a ton of results to bring with me that my son has had within the last month, but I asked her if she would be sending me anything and she said no. I really want to be as prepared as possible, because we live in OH and won't make it back for awhile!! Should I call back and ask again?

After about a year of working with DAN docs and other specialists, we are making a trip to visit Dr. B. My son has major food allergies and has had all of the pandas symptoms for the last year, as well. (The allergies have gotten progressively worse.) For those of you who have seen him, do you have any advice for our appt.? Thanks!

I am definately trying to pursue the Pandas route. I haven't been able to find a doctor yet, but I went to the website and requested a list. I was just wondering if your doc found strep as the culprit to the sinus infections? Did you have all of the standard labs done through that doctor or did you bring info with you from previous testing? I chose the new DAN doc because he is the only one who seems to have some Pandas experience. I need help!!

Where do I begin? First, let me say "thanks" for all of the posts that I have been following for almost a year. This forum has helped me navigate through a lot of weird stuff, and has kept me sane on some of my darkest days. I began by following the TS forum for quite some time, and I realized along the way that alot of my son's symptoms seem to follow the PANDAS track. Here is our story-I'll try to shorten it a bit!! My son is 5 1/2 and always had some quirks, but medically, has been pretty healthy. He was born allergic to dairy and we found it early on. I have always thought he was overly sensitive to a lot of things (loud noises, toilets flushing, big crowds, etc.). At about 4, he began to really blossom and become really socially active and seemed to outgrow some of the "quirks". In the spring of that year, he got his first ear infection--it was really bad and took several doses of antibiotics to clear. He did ok for a couple of months, and during the summer began to have a strange "breathing reaction" when we were at the pool. I took him to an allergist and she eventually put him on 3 different meds for what she thought was allergies/asthma. In the fall, he got another really bad ear infection. A few weeks after the infection supposedly cleared, he got a regular flu vaccine. Several weeks later he received the H1N1 vaccine. (I am cringing right now as I write this...)In Dec., he seemed in a fog and was quite irritable. We thought it was the allergy meds and began to wean him off. As soon as he was off the medications, there was an explosion of tics and OCD behaviors. Over the last 10 months, we have been to a DAN doc mostly, and many other specialists. My son has had ups and downs all along the way, but the tics and OCD have remained pretty constant. (The behaviors change--and many seem to follow a pattern. Also, the tics change too.) The biggest problem has been with food. He's always been allergic to dairy, so we didn't have to cut that. We had him Ig(g) tested, and removed the 20 some foods that showed up. But over the last 10 months, he has become reactive to almost every food out there. I mean EVERYTHING. Fruits, veggies, all grains--we've been gluten free, but he can't tolerate rice, corn, or any of the other legal grains. His reactions are largely nasal congestion, and behavioral. We have tried to be really careful with the congestion, because we fear the whole ear infection thing. Any way, I could go on, but my main issue is that his DAN doesn't believe in PANDAS, and the neurologist doesn't think he has it because his tics and OCD have never gone away. From everything I have read, I think he could still have it. He was tested for strep (swabbed and a blood test) early on, because one of the allergists had heard of PANDAS and thought he might have it. It came back negative. We are scheduled to see a GI next, and we are switching to a DAN that has experience with PANDAS. Any other thoughts/advice on what we should do? He is on the full range of supplements, and has been treated for yeast several times--we are now on GSE for it. He's on probiotics and enzymes, and I have begun to use the querecetin to lower his histamine levels. I am hoping and praying to get some answers soon...Thanks for listening!!