keeptrying

Thank you, I am calling now to change it.

I asked about it and was told we would have to get it from a compounding pharm. and that we would probably have to pay in full. It is close to 500$ from what I was told. Even the small amount in the pill can cause probs?

has anyone experienced problems from the dye found in most of our antibiotics? Our rx of zithro (tablets) has red dye #40. I posted earlier saying that it has been 5 days now that my dd has been on it. I feel like it is spiking her tics - everyone thinks I am over reacting, but it is a real concern for me. I can not say positively that she reacts to it but it is a motherly hunch I guess... Has anyone experienced this?

Thanks for the reply - How did you get your diagnosis? Did you do tests? I understand that there are many blood tests to consider. How long did it take for you to see reduction in tics when the antibiotics started? Do you do anything to keep yeast in check or is that not a worry for you? I am reluctant to give too many things at once because she seems to spike then. Thanks for answering.

We have been to this doctor. We had high hopes and our dd responded very well to him. I read all about him and the treatment and really believed we may have found something to help. It did not. We stopped after a couple of months because the "SH" that the child has to do at home seemed to make things worse in a way because it brought her attention to it so much and added what we thought was unnecessary stress. We never saw any change in tics. I was so sad but kept at it and we were told she was doing beautifully - however still ticcing. We stopped and my dd was very relieved. I do believe that this doc can help, but just make sure your child is completely ready for it and really WANTING to change the behavior otherwise it will not work. It is also very expensive. good luck.

I have been reading this forum for a long time and this is my first post. I need help desperately. My dd has vocal and motor tics and has for years. We do not have any tests yet confirming panda's but I have a hunch. We have consulted with Dr. K who feels it is highly likely after hearing our story. We are planning to do the Cunningham test but have agreed to try 30 day trial of zithromax right now. Our dd's tics are off the charts right now. Higher than she has ever been and I am scared to death. She started school recently but her tics were already ramping up before it started. I hope we are doing the right thing with the abx trial. I am asking those of you who have children with tics only if you have found antibiotics to help/heal? I am still not sure she is Panda's so is it not wise to treat anyway? I hear so many conflicting things that my head is spinnning. Usually I hear the rage/behaviors show improvement but do tics? Is it ok to treat a TS/tic disorder with antibiotics or does it spike the symptoms? We are on day 5 of zithro and NOTHING yet. Is this too soon to see something? I will be grateful for any relplies. We are literally sitting in our house, scared to death.