Topaz1968

I agree that I think the Tenex is not the best thing for him right now. We go back to the Neurologist next month, so I think I will tell him I want to wean him off the Tenex. I will look into your other suggestions - so much to think about - but great info. Laura - thanks so much - always a help Rachel

Thanks so much for all the great replies - it is so interesting to read about all the experiences and how much there is in common. My father is an immunologist and I will be sharing this info with him today. I am definitely going to start with the Motrin. My son slept very well last night and already seems a little bit better today. I will be sitting down with his new teacher and the school soon to discuss the latest updates. At the end of the last school year, I had a PPT with the school and now everything has changed. I still hope to get him the 504 plan that the doctor gave me a note for. I think he is going to need it. Any good threads on this for school? Thanks again I am so happy that I was referred here - such great support Rachel

Thanks Saidie - I am definitely going to look into the Melatonin The Tenex is supposed to be for his tics. Not sure if it is working or not.

Thank you, Worried Dad, so much for the reply - that really helps. A lot of great information there. At least I know it does happen. I had heard that about the ibuprofin - great ideas for the night time Advil - thanks!!! I will look into the Melatonin as well. I just read about The Herxheimer Reaction - that is also great info!!! I am learning so much here Thanks again - I truly appreciate it

My son is 9 and saw Dr. B last week. He started on abx about 5 days ago. However, instead of getting better, all of sudden symptoms are worse. I know he is excited as we have family in from out of town, and school is starting in a couple of weeks, so that may be the cause. I was just hoping the medicine would start kicking in by now. He has started a throat clearing tic, which he never did and now he is having nightmares and more frequent bad thoughts about murders and killings, etc. He is not sleeping well and I know this can also be part of it. He is taking Tenex, which he started about a month ago. It is so hard to keep track of everything, I am not sure what to do. He does not want to go to sleep because he is scared of the nightmares, this whole thing is driving him crazy and I am scared it may be too late to help him. I am so nervous and scared for him, I hate to see him this upset. Has anyone experienced this at all? Thanks Rachel

My son is so excited as my parents are coming into town today along with some other family tomorrow and Monday. His intrusive thoughts have been more apparent today and he is on his 4th day of Abx. I am wondering if OCD symptoms can increase when excited, even if they are bad thoughts. I know his tics used to increase when he got excited, but not sure about the thoughts. Does anyone ever experience this with their child? Thanks Rachel

Thanks to everyone for their words of advice and support. My son is 9 - forgot to mention that. I will definitely give the Antibiotics a chance to work - this is only the 3rd day. I think I will probably get him off the Tenex when we go back to the Neurologist in Sept. I don't think that is working at all and causes him to be tired. With school starting in a couple of weeks, that is the last thing we need. I am glad to hear that a lot of people have success with the oral meds alone. I hope that is the case with my son. I think his personality change is what scares me, and him, the most. We talk about it and how it is not him, I try to separate it from his "good" self. He calls the bad guy - Devil J. I told him that when Devil J bothers him, to tell him to go away. He feels bad that he snaps at me and I try hard not to get angry because I know it is not "him". I think one of his fears is making me angry. He was never the type of kid to get into trouble because it hurts him so much when someone is angry at him. I also think that is why one of his most frequent "intrusive thought" is hurting the little girl that lives a few houses down. She has a way of pushing his buttons and also hit him once with a plastic bat. He does not forget and this bothers him a lot - one of his thoughts is about strangling her. As much as it scares me and him, I tell him that we both know he would never hurt anyone. He is scared that he will. Anyway, thanks once again for the support, I will keep everyone posted. Oh, and he is on Augmentin for 30 days - he hates it

I have been on a roller coaster ride as I am sure many of you have been. My son is now 9 and was originally diagnosed with TS last year, however, I was never convinced that it was Tourettes. He never had really bad tics, but did have some for over a year. He had blood work done and my pediatrician did put him on antibiotic for I think it was 2 weeks based on the high Strep titer. Anyway, he had ups and downs with tics, but recently showed a sudden onset of OCD symptoms - mostly intrusive thoughts and fears about weather, bees, knives and a few other things. He was not sick that I noticed, and these symptoms were rather sudden. Anyway, I took him to see Dr. B in CT (which is where I live). He does believe it is Pandas based on symptoms and previous blood work. He has started taking an oral antibiotic for 30 days - just started yesterday. I will also be taking him for more blood work (we will see how he handles that). We did discuss IVIG treatment if the antibiotics don't work. I am really concerned about this treatment reading about the side effects, etc. I am nervous that it may not work and should I put my son through it if it is only a chance of it working. I am torn. He is also on Tenex, just started that after our last visit to the Neurologist and telling him about the bad thoughts. I was also against meds, but decided to give it a try. Then, I started to do more research about Pandas and found the doctor here locally so I thought it would not hurt to talk to him. He did tell me that at my son's age, the antibiotics may not work. My son knows he is on the Tenex for the bad thoughts, etc. But I told him the antibiotics were to get rid of an infection in his body. I don't want to keep filling his head with all of this, as I think it may make things worse in his head. I feel like the less I bring it up, the better. I let him tell me anything and always support him 100% by telling him it is OK to tell me his thoughts and he will be OK. We will get through this. Here is the kicker. My husband is an alcoholic and does not think anything is wrong with my son. He is very difficult to talk to and I have not discussed any of this with him. I am working on myself and my son and seeing a therapist myself. My husband knows very little as I have always handled things with school and doctors. I know this is a whole other story, but had to throw this in because if my son has to go for the IVIG treatment, I know my husband will not be on board with it. I will be talking to my therapist to see how I can handle this with him. Basically, I am acting as a single parent in all of this. Sorry for the long post and thanks for listening. Any advice would be greatly appreciated, also maybe with helping my son with his intrusive thoughts. I am trying to do some research on CBT and EBT so I can help him any way I can. Thanks Rachel