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Topaz1968

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Everything posted by Topaz1968

  1. Hi - yes, he was actually diagnosed with Pandas as well and was treated with Antibiotics for several years. I recently took him off of them based on a decision made by myself and some doctors. I think he can get worse with the addition of any infection, but the doctors and I agree that the other issues are separate from Pandas. It has been a long road with ups and downs and a lot of different issues that come and go. It is very difficult to diagnose him with anything specific due to the fact that he has a little of everything but not a lot of one thing - if that makes sense.
  2. My son is 12 and was diagnosed with TS when he was about 8 years old. They have waxed and waned over the years and it is never severe, but recently, they have gotten a lot worse. He never really had a vocal tic, but now he has one where he sounds like he is making a "farting" sound with his mouth. (sorry, but I don't know how else to describe it). It is far worse when he gets home from school, since I think he tries to supress it most of the day. We recently got into a program at Yale, and they told us about Habit reversal therapy. I was curious to find out if anyone has tried this with their child and if it was successful. He also has some anxiety, depression and OCD, so they were also thinking of trying out some meds, which I am scared to do, but I do think it might be necessary. I have read about how, in most cases, the tics increase during puberty and then seem to get better. I am sure he is starting puberty and I always thought his tics were worse when he was going through a growth spurt. I would love any feedback Thanks
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