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heidispidi

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Everything posted by heidispidi

  1. Hey Kevin. I'm sorry that things are progressing further. You do sound kind of positive though, which is a good thing. Is he affected by tics while competing, or does this require concentration that takes over his tics, even for the length of his routine? I've seen with my daughter that even during her dances, she tics - but this perhaps is more noticeable for me than anyone else?
  2. Just a quick update on how my daughter is going. There was a 7 MONTH wait to get into the child psych recommended by our paed. October was the earliest we could get in. I've since been provided with the names of 2 other 'good' child psychs in our area, who I will chase up this week. Her tics aren't bothering me so much (unsure whether they have lessened due to the magnesium supplement she's taking, or whether I'm just noticing them less b/c it's so common?). I seem to notice it mostly when she's excited right now. It's still that one hand that is her biggest/most common tic. E
  3. Hi Kevin. Like you, I posted here the 1st time about 2 months ago, absolutely bewildered and unsure where to begin with regards to my daughter's tics. She turns 8 next month, and her tics strated out as a mild head shake (we thought it was just a habit) before they 'exploded' into hand shaking and shoulder shrugging in February. Like your son, she's very active, with 3 (now 4) dance classes a week, and competitive t-ball and athletics on 2 other days each week. Also, while she's never been dx as having ADD or anything, I have a feeling there's someting there. How is your son's behaviou
  4. Well, got no answers from the paed. His 3 options were to either: (1) medicate (2) child psychologist (3) do nothing I've gone for option (2), as there is no way I want to medicate my otherwise well-functioning daughter. Hopefully the psychologist can help Jaymi work through her anxiety issues. Before her appt yesterday, I broke the news to her that I would be taking her to Disneyland in January (a big thing seeing as we live in Sydney!). She started off all excited, then started to worry, within a few hours. What if we don't actually go? What if Disneyland isn't as muc
  5. Hang in there, DC. We're both in a similar position, playing the waiting game is tough. I'm not a patient person at the best of times, but where my child is concerned, I want answers, and I want them now. I"m sure you've been through far too much of that already, with your other child.
  6. I did look into the PANDAS info. While she hasn't been tested for anything yet, I can see there are several factors that suggest this could be the case. She had sudden onset, adventitious movements, behavioural regression (in the form of massive temper tantrums/mood swings/aggressiveness) and, of course, tics. I wouldn't call her hyperactive, but she has always been unable to sit still for long. A journal is a good idea, I did that between making the 1st appt with the paed, and the appt itself (a 10 day period). Makes for interesting reading. Our GP thought she had OCD, which made s
  7. Our 2nd paediatrician appt is this Thursday and I would like to be as prepared as possible. From the 1st appt, he told us to ignore the tics, he ordered a blood test to check her thyroid (which was fine), and he wrote a note to her teacher asking for some input. Here are the things I would like to discuss with him, but can you think of what I may have missed, which would be good to ask regarding my daughter's tic disorder? * Blood test results - nothing showed up in the initial testing, so what else should we be testing for? * If this is genetic, as her father and cousin have had
  8. Hi DC, and welcome. I am only very new to this as well, as it's coming on 4 weeks now since my daughter's tics went from the odd head shake (like your son) to near-constant shoulder shrugging, hand shaking etc. While I do not know what the underlying cause for her tics is, I do know that stress/anxiety/nervousness and excitement all contribute to the frequency of her tics. I just want to say hang in there, as the wait until your appt in April may be the longest period of your life. We go back to see me daughter's paediatrician this Thursday, and this 3 week wait has been the longes
  9. Thanks Cheri. I will check out the info in your link in the morning, it's been a long day.
  10. Yep, she had tics before she got the swine flu shot. But at that time it was only the head tic. Within a couple of days, the hand tic and shoulder shrugging began. That said, she also had highly emotional stuff come up at the same time from her dad, which had her extremely upset and anxious. Like so many others, I've blindly followed what we're advised with regards to vaccinations, but I will make sure we do not go back for the 2nd dose (that's how it's done, here at least) before we discuss with the paed. I can't tell you whether it's a live shot or not. What I'm annoyed about, th
  11. Hi Faith. My daughter had the swine flu shot the same day I took her to the GP to discuss her head tic (3 or 4 weeks ago). Perhaps it's a coincidence that from that day (or perhaps 1 or 2 after, it's hard to pinpoint), she developed more tics, with a greater frequency? I don't know. The last shot she had before that was before she started school, so just over 3 years ago, and while I don't recall any tics at that time, I guess it can't be ruled out. She has to go back to the doctor in a week's time for the 2nd dose of swine flu - do you think this is this sometihng I now should avoid?
  12. Thanks CSP and Mar, for your welcome, and responses. I haven't tried anyting yet, as I have only just begun learning about tic disorders, so everything you've said has been helpful. I will try the epsom salt bath and cream on my girl's hands, and let you know if this helps. I will also ask her paed about allergy testing, something I hadn't considered before. Mar, she worries ALL the time, about many different things, though she is usually (extremely) open about what's going on in her mind, but I will certainly look into the book that you've mentioned. Something we can read together w
  13. Hi all. My daughter turns 8 in May and was a week ago diagnosed as having a tic disorder. I have read through a lot of the infomation in these threads, and am hoping that you will all welcome me (and my girl) into your group. We live in Sydney and she is in Year 3 at school. I'll give you the background. A couple of years ago, she was blinking all the time. Like others I've read about on here, she had her eyes tested and was prescribed glasses - they didn't help. I also remember her 'stretching her mouth' regularly. These (now I know they are tics) went away over time. When school
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