melanie

Peg thats what Ive been told also

http://childstudycenter.yale.edu/ocd/research/ttm_treatment.aspx NAC try it!!!Gotta go to work hope this is the right link

Ok so love ,loce the celebrex and Dr says stay on for litttle while but MUST ADD zantc or PPI (blockers) So I had over the counter tagament(generic) and the next day bam dannys ticcing again!! Now the last time I tried tagament I saw behaviors too..What does this mean is it the tagament ? Humm If i ask the Dr she will think Im crazy.You guys know me and well you get it. What is the deal is it a GI Tagament thing or a PANDAS tagament thing. HELP Oh by the way IV#19 today UGHHH Melanie

Hi looking for a friend with Lyme Everyone seems to have 6 month wait Do they all take traditional insurance? Thanks Melanie

bumping this to see if anyone has the full text.I need to send this to my immunologist who prescribes this but thinks its for pain (no complaints about pain) UGGGHHHHH Melanie

spoke with DR t he says its definitly a inflamation BBB thing and thinks its fine to use .The reason for the baby asprin was something to do with the celebex I dont remember why Ill ask Dr J

Interesting .I spoke with Dr T via email he says inflamation.Theres a huge difference in danny on celebrex Dr J says can cause GI issues and to give zantac Ughh

I think its inflamation Dr J thinks its a pain issue.Danny never complains about pain but when I give him celebrex hes pretty great.Ive been giving him 200 mg daily with a baby asprin and things have been good.Any one have any proof for a immulogist with 30 yrs expeience that its probably inflamation ..... Melanie

Danny has Aspergers

Danny has Aspergers

We do it at home

Hi Sara im in NJ and have been treating my son with IVIG for 1 yr pmme if you need any help . Melanie

Hes 16 isnt he to old?

Dannys hands (palms) are peeling I read Scarlet fever,strep??? Oh No Melanie

we do 1g every 21 days and have had 18 infussions.2 days after each is not great but after that its very good.Dans 16 and has had this for 13 yrs so were in a different boat than some others here Do what your Dr says!! Melanie

Hi I would love to see the whole article too.Danny has been on celebrex on and off.I was thinking of putting him back on and this just assures me to do so.I always give a baby asprin with it.What dosage does this study say? Melanie

Good Im glad to see this is happining.Doesnt say how much they are using or what blood tests are testing for.We had IV #18 last night and were doing well.We would be excluded (too old).

we do blood work every 3 months dont know exactly what shes looking for but she checks IGGs

well thanks but I cant go backwards so I stopped it .Ill let you know. Thanks again everyone Melanie

But what happens after 10 days?

Dans beem doing ok lately some realy good days and some ok days so I say hes doing ok.I started the OLE about 4 days ago and he seems not so ok.Anger and some talking to himsrlf(self stim stuff),Could it be the OLE? Can that happen.Im not giving it to him this AM . Melanie

This is a good site http://www.cidpusa.org/ivig.html

Hi we have also switched 4x because of insurance and recalls. We had 1 in hospital (dont know the brand) home with Privigin (didnt like) Optigam (long infussion reclled and taken off market) now we do gammaguard (best so far) Melanie

Hi Guys We do 1 g every 21 days for immune defiency/PANDAS, and friday will be #17 .I have seen a alot of benifits from these infussions.I wouldnt say 1 gram is "low",maybe lower than 2g but in the immunoplogy world its not low. PLEASE browneyes find a MD that you trust,someone qualified to make these decisions. Im uncomfortable with some of these drs making tons of money off of this stuff,makes me ill. Wishing your family well Melanie

YES YES YES YES YES most of danny tics were expressed this way.I was told that PANDAS didnt allow for it from DRs at COLUMBIA PRESP. But later much later (unfortunatly)was told it definitly could.We still have some COPROLALIA now .Hard to get rid of .When hes angry and frusterated it pops up. Melanie