LNN

Dedee, My first piece of advice is to realize there is no "right" or "wrong" decision. You do your best. That's it. Then you enjoy or manage the outcome, however it plays out. I am probably one of the more "lop sided" parents on here, having endured a 10 week post-IVIG nightmare last summer. BUT we had an undiagnosed chronic infection (lyme/bartonella) and didn't know anything about detox in such a situation. So my son and I promised each other we'd never do it again, because the gain wasn't worth the pain. However, that doesn't mean I'd tell others not to do it. You know about the infection ahead of time. Your life is already he** and you need a life preserver, given your unique medication hurdle. It is possible things could get bad/worse for a period after IVIG. But if you get a good detox plan in place and if IVIG enables you to get to a point where you can administer abx, then I'm not sure if you have much to lose and possibly much to gain. I know several parents who feel IVIG has helped their kids fight their underlying chronic infections. And even families like us, who endure a rough recovery without much lasting gain, still didn't end up with permanent set backs. We learned from the experience and moved on. Even on a lyme path now, we still endure herxing and setbacks. I'm not sure there's any way around rough patches on any road to recovery. No one can tell you what to do. Only you know that. But even from my side of the pendulum, where I'd urge caution in some circumstances, I think in your particular situation, the potential gains outweigh the potential downside. My only suggestion would be to make sure you have an emergency plan in place (family members/friends who can help, time off from work, DR M's cell number J.) so that if you do hit a few weeks of severe behaviors, you can keep your daughter and family safe and sound. Best of luck with the tough decision, but try not to second guess yourself. You're a warrior. Trust your instincts. Laura

This time of year, seasonal allergies can sometimes exacerbate neuropsych symptoms in our kids. I came across this in yahoo news the other day: Take vitamin C and quercetin: Vitamin C is a powerful antioxidant and also a mast cell “stabilizer.” Mast cells are tiny cells that line the mucous membranes, which when exposed to an allergen, release histamine. Histamine in the bloodstream is the cause of symptoms such as, eye irritation, sneezing, and a runny nose. Vitamin C makes mast cells less reactive, thus reducing allergy symptom, and quercetin is a powerful flavonoid that enhances the effects of vitamin C. Take 1500mg of vitamin C with 500mg quercetin at the first signs of allergies and repeat every four to six hours as needed. This crafty combination can put a sneezing attack to rest within 20 to 30 minutes. Another great product, Natural D-Hist also contains singing nettle leaf, bromelein (an enzyme), and N-acetyl cysteine (thins mucous). DD6 has horrible allergies and despite shots for almost a year, last week her symptoms got really bad - eyes almost swollen shut, a blip in OCD. So I picked up some quercetin and 1000mg Vitamin C pills and started her on them Sat. night. Well...this article forgets to mention that you can't just start a megadose of C off the bat. It causes nausea. So stupid me gives it to DD at bedtime and 10 minutes later I get "Mom, I think I'm going to throw up." 30 seconds later and I'm stripping bed sheets and giving DD a shower. So yesterday I gave her just the quercetin and her symptoms were milder. Then this morning, she woke up with clear eyes. Not puffy. So today I gave 500mg quercetin and just 1/4 of the Vit C pill (which is 250mg). No problem. No symptoms. Zyrtec barely made a dent last week and made her lethargic and irritable. The quercetin seems to be really helping. So for whatever it's worth...quercetin for allergies - happy googling!

Hey - that's where I got it from - must've been reading at the same time! Re: the CBT - it's possible the rages are too big for a first step. Are there other behaviors you want to work on? My son immediately "got" the concept of good voice on one shoulder, bad on the other. But my daughter didn't see life that way. So for her, we invented fairies and angels. Fairies are mean and want you to give them all of your attention. So they trick you (fairies are OCD and sensory thoughts). They make you worry about things, feel uncomfortable in your clothes, and distract you from doing the things you want to do. Angels, on the other hand, are good and want you to be happy/yellow inside. So we have the sock fairy - the one who makes DD cry because the seams on her socks feel uncomfortable. The Underwear fairy, who tells DD that underwear is uncomfortable. The wet fairy, who makes DD freak if her sleeves or clothes get wet, so she won't wash her hands without getting naked...at one point, we had more fairies living in the house than we had people. Just before starting kindergarten, DD was having trouble wearing underwear. So we told her she had to just put a pair on and could then take them immediately off. This would make the underwear fairy really mad and show her that DD was learning to be the boss. We did this for a few days. Then we worked up to wearing underwear for 5 minutes, which made the fairy see red. (DD gleefully drew pictures of red-faced fairies). Then 10 minutes a day, then an hour, then for the whole half-day kindergarten session (and she could take them off as soon as she got home). Now...the underwear fairy is history - she had to move and find a house where some other kid was afraid of her, because DD was "so done" with her mean tricks. So maybe make a list of behaviors - a hierarchy. Then start with smaller ones and break things down into steps. Change the behavior for 30 seconds, then a minute...Once she gets a few successes under her belt, then maybe work on the rages and those triggers. I know, the rages are killing you and you need those to go NOW for the sake of the whole family. So these ideas won't bring you immediate relief and you'll still need the medical angle. But over time, CBT becomes a more and more powerful tool - you just have to practice a ton - and fail a ton - before it becomes comfortable. We're currently battling the "sad for no reason" fairy - so it's not like poof- and they're all gone. But it gets much easier and many times, DD can do it by herself now. Read "What to do when your brain gets stuck" for some background. It's about OCD but you can use it for sensory and rages and other things too. You're welcome to PM me with specifics and we'll see if we can brainstorm...

You may have already seen this before, but just in case, you may find it interesting http://www.lymeinducedautism.com/images/Belle_s_Palsey_of_the_Gut.pdf

I would contact ILADS.org to see if they can recommend an attorney - even if he/she weren't local, it's possible they'd be willing to consult with a local attorney to discuss defense/options/case law. You might try posting on lymenet.org, which has thousands of forum members, to see if anyone there might have ides/recommendations as well. I'm sure money on attorneys is not something you look forward to spending, but it's far better than losing your voice in the matter. Until then, you may not want to go into great detail about the lyme. It could complicated the matter and bring scrutiny into things that wouldn't be investigated (like medical treatments) if this were a simple legal matter. You might be better off letting authorities think it's a criminal mischief matter - sad to say but something to think about. You guys are in my thoughts...

I like Buster's idea of video taping - perhaps under the guise of wanting some current memories, or maybe there's an event that's coming up. Then, after she's been on abx for a period of time and you feel she may be turning a corner, you might play the videos and see if she comments on anything. Sometimes, kids will admit to having certain thoughts or motives once they no longer feel quite so threatened by those thoughts. OCD can be like a kidnapper. The kidnapper says "you will walk down the street with me and act like my child and not run for help. Because if you run for help, I will harm your family". So sometimes, the denial is their way of "protecting" the family from the bad things OCD is telling them will happen if they don't do the rituals. Another option is to talk about a "friend" you know who's suffering from something called Pandas and then talk about how it's affecting this "friend". You can also break out the OCD books and say you got these for your friend but want to see what your daughter thinks of them - that the friend is about her age and you want to make sure the friend will understand them, so you can anticipate any questions your friend might have. I don't think I'd insist she admit something's wrong, but I would make certain she knows she has an infection and has to take abx until the doctor says it's gone. Maybe as the abx start to loosen OCD's hold, you'll be in a better place to talk about what's happening. And while I wouldn't push her to say something's wrong, I also wouldn't act like that's how you feel. I hope I don't offend anyone with this analogy, but if you knew someone with an addiction problem or similar all-encompassing illness, you might not be able to get that person to admit it, but that doesn't mean you should deny the problem as well. Your daughter may want to be able to talk, so you want to make sure she knows you see it and are there for her to help her when she feels able.

I was initially thinking recovery would be like stairs - up a step, a plateau, up a step. Wasn't completely prepared for two steps up, one- one and half - steps back. IMO, OCD is worse than the tics (esp. intrusive thoughts and anorexia versions) but for some reasons, the tics just bring so many flash backs - it's like smelling something that reminds you of an event that happened 30 yrs. ago - I just get this primal fear in my gut when they appear. It's like being able to see the brain get zapped. Totally with you on the 20/20 wish. I too believe "pure Pandas" exists and deserves full recognition and research. No child should have to suffer the way our kids do, regardless of which germ is responsible. But the bank account would be about $20K fuller if we'd started down the lyme path the fist time. (which would of course go toward expensive and controversial lyme doctors and treatments instead ) I had to laugh at what you tell your kids. I almost posted that I feel like Pandas/lyme families are like the Marines - no weenies allowed! It's hard enough to go down one trail, but our kids seem to have lyme presentations that aren't talked about much on lyme forums. Don't know if it's bartonella or neuro-lyme, but this is the only place I can type ERP and CBT and have people know what I'm talking about. I feel like a mis-fit even in the lands of mis-fits! Not much room to have a thin skin or be a fragile flower.

Since I think I recall your DD has an active, chronic myco infection, I would hesitate to do IV steroids. But do you think Dr M might be willing to speak with Dr L in MD and see if there were a way the two could work together to arrange Pex at Georgetown? I suspect Dr M may feel it's too aggressive for her taste, it's possible Dr L may be able to address her concerns. As an alternative (just brainstorming) - is there a local infusion center what would accept Dr M's orders and allow you to bypass the need to work thru the local neuro?

If it's any consolation, I could have written your post (and almost did a few weeks ago). DS started treatment on Oct, had immediate and awesome response - 95% by Jan. Woo Hoo - this is going to be a breeze, I thought. Stalled in Feb. Focused on detox. Backslid in March, saw a return of one OCD compulsion and big increase in brain fog. Maybe 80%. Switched abx (dropped aug, added omnicef and tindamax on weekens). Omicef kicked his butt. Big herx and a return of TICS (hadn't had tics since pex in Aug '09 - mom had to pull out every tool to not go into PTSD mode). Defiance, idea fixation followed by a 45 min meltdown when I wouldn't comply just to remind me of what 2008-09 was like...And things got worse over time, not better (probably got as low as 65%). The tics got way worse - and I'm not talking a throat clearing or blink - I mean a convulsive, myoclonic back spasm that made him look like a cross between a chicken and Mick Jagger strutting. During this time, I discovered MT (which helped a lot with the defiance and idea fixation, but didn't put a dent in the tics), upped the charcoal, increased the glutathione, upped the fiber to ensure regularity... and twisted myself into a pretzel looking for clues as to whether I should ease up or plow forward. Because DS has been sick for so long and the stall/backslide worried me, we stuck it out. A few weeks in, I saw small signs things had peaked. 5 weeks and everything has resolved except the back spasm/tic and that is on the way out. The up side is his brain is sharp and he looks like he's taking a step forward. We see the LLMD and I'll find out if I get yelled out for not calling him and easing up or if I did the right thing. The reason I plowed thru was partly because some of it was over spring break and partly because it was milder than what we dealt with during the worst Pandas stuff. Anyway, I can't tell you what to do. I know there are no medals for surviving bad herxes. But sometimes I get so angry at the microbes that it feels like it's wrong to back off. But we're dealing with our kids, and you don't want them to hurt. Once again, you're left with a gut call and those ERP tools you hoped never to need again. I'll hope it's short lived for you. BTW - you may want to edit/remove your doctor's name from your post. If you google his name, your post may show up on a search and you don't need him being scrutinized for his protocol.

It sounds like there may be more going on inside her head than she's able to share right now, which must be scary for her. I think reading a few books with her may help open a conversation - in addition to "what to do when your brain gets stuck", you can get "Up and Down the Worry Hill", "What to Do When You Worry Too Much" and for you, as Nancy suggested, "Talking Back to OCD". These are all excellent books to help you and your daughter recognize OCD and gives tools for coping with it. Like Kara said, in infection-triggered OCD, it often requires medical intervention before you see success with therapy tools like ERP. But it sounds like giving your daughter a vocabulary and helping her understand what's going on will be key to helping her fight back and regain her old self. She may be hugely relieved to find out that 1-3% of kids suffer from OCD and that having these thoughts doesn't make her a "bad" person. I'd recommend getting these books and reading them with your daughter at set times every day, so you create a "date" with her and allow time for her to share her feelings. We do it at bedtime, so the house is quiet, there are no interruptions, and we can talk for as long as my son needs to. But some kids find talking about their OCD can increase their anxiety, so for them, bedtime might not be the right time. But the important part is to make time every day where you and your daughter have together time and can have uninterrupted, dependable talk time. Once you read these books, I think you'll start to see many of your daughter's actions as potential OCD behaviors and you'll both have a common language to talk about them. When that happens, you can list a few here and we may be able to brainstorm ERP ideas for you to try. We've all been there.

My understanding is that the ASO rises in close proximity to a strep infection (1-3 weeks) and the Anti-DNase B rises/peaks in 4-6 weeks post-infection. So you may want to do another blood draw a month from now. It's the movement of the numbers, more than the absolute value, that is more telling. But what I read between the lines is that this doctor would need convincing, which is something to consider when deciding who to pay for a consult and when. The high eosinophils could very well be allergy related, so re-checking once the trees were done blooming would give you a lot more information. Your daughter's changes in mood could be Pandas, but it could also be allergies. My daughter becomes unbearable for a few weeks at this time of year and it's totally allergy related. Since you say your daughter's symptoms are relatively mild, I think your best bet is to do additional blood work over time to build your case or reassure yourself that numbers are trending down. With just one snapshot, mild symptoms and the height of allergy season, you may have a harder time convincing a doctor to take action than you might if you were to walk in with 3-6 months of data and a chart of correlating symptoms. It's hard not to freak when a second child shows symptoms and you focus on trying to catch it early, but you may want to do additional blood work in a few weeks and in the meantime, introduce her to tools like CBT to help her control her moods/behaviors. If you want to post a few examples, we may be able to give you some ideas on what's worked with our kids. Hang in there...

That's great news! Burn those great feelings into your brain - you so deserve them and you're seeing what's possible. My DS was on two separate month-long tapers and I used to jokingly tell people that if he were taller (he's 8 and about 4 feet tall), I'd keep him on the stuff all the time. The kid I saw during those months is the kid I fight for every day. It's what I consider the "real" him. For us, the improvements lasted for about a month, but he has lyme (didn't know it then obviously). Yours was a short course - Dr L may opt to prolong it in the hopes it will "stick". I think how long it lasts depends on whether DD becomes infection-free and stays that way. But for now, make sure she knows this is who she really is and you won't give up until this is permanent!

Our LLMD used Specialty Labs for bartonella. He did not test for ehrlicia or babesia as symptoms didn't suggest they were needed at this point, which is why he didn't have us spend the money for the Igenex co-infection panel (Specialty Labs accepts insurance). Myco has been tested thru Quest. Sounds like you aren't currently seeing an LLMD. Sometimes doctors have their own opinions on labs. Are you trying to just rule things out? Depending on symptoms, other suspects for behavioral issues can be yeast, mold, metals, toxins, celiacs, leaky gut, parasites and I'm sure other things I'm forgetting. Are there specific symptoms that are making you think TBIs or are you just looking for peace of mind?

I hope your consult goes well. Can you elaborate a bit on your daughter's symptoms, aside from the cough? Examples of her separation anxiety, or how she acts with kids other than her sister, or other behavioral examples?

Woo Hoo! Gotta love when it comes from the heart and out of the blue! I love that you were able to do ERP - I don't get why therapists avoid doing it with younger kids. In my experience, it's so much easier when they're little. Good for you! Here's a toast to the best mother's day present you could ask for! Laura

Ok, so the titer info helps change my perspective. Thanks for sharing. Detox is new to me and I'm still feeling my way along. But it feels like things like charcoal and clay bind to toxins that have already been moved to the gut. But don't help with getting those toxins out of the blood stream and into the gut or out of the liver - am I wrong on this? Looking at the toxins upstream from the gut, milk thistle helped my son a lot (but avoid if there's ragweed allergy) and glutathione helped. if you can't get glutathione, alpha lipoic acid is a precursor to glutathione. My daughter can't take milk thistle, so I'm considering inositol or SAMe, which may also help with her OCD/anxiety. here's something on SAMe and the liver...My link Philamom - FWIW - zith never helps with my sinus infections. I use ceftin or amox. - and remember to steal some probiotics from your child. Don't need a yeast infection on top of everything else

I'll offer a different spin on things, just my own personal experience. DS8 started lyme/bartonella protocol 7 months ago. Awesome response for the first 4 months. This is a breeze, I thought. Then in Feb, he stalled. Brain fog started to creep in, lots of muscle pain. We focused on extra detox for a month but things continued downhill. A small OCD compulsion crept in. More fog. End of March, we switched abx combo to add omnicef, then a few weeks later, tindamax. First week on omnicef brought a big slide and return of symptoms. Motor tics came back after an 18 month vacation. Ok, I thought. Herx. I can manage. Four weeks later and things are as bad as they were last summer. His tics are every 2-3 minutes, very obvious and jerky (maybe myoclonic). I feel like I've been transported back in time to the start of this whole ugly mess. Where did that awesome boy from January go?? I'm trying to convince myself it's a herx, but 5 weeks - really? Maybe nothing's working. Maybe it's not lyme. If it is lyme, maybe this is a flair and not a herx. Oh crap, this sucks - is all I know for sure. Finally, this week, everything is calming way down. Tics have dropped to a few times per day - less every day. Fog is mostly gone. Muscle pain is gone. So mom is breathing again. I'm not a doctor and I mean no disrespect to any doctor who's clearly more knowledgeable than I am. But Dr J has a quote that is something along the lines of "the eyes can only see what the mind can understand". If a doctor doesn't know Pandas, they're not going to know the ins and outs of treatment. If a doctor doesn't know lyme, same thing. IMHO, the way our sub-set of kids presents with lyme looks 90-95% identical to Pandas. But the treatments are different - sometimes diametrically opposed (e.g. steroid use). My point of this post is that I think backsliding is not uncommon and may be a sign that abx need to be switched, or more detox is needed (meaning the abx are actually very effective and you're not seeing improvement b/c you're not shedding the toxins fast enough), or maybe some herbs or supplements are called for. I don't think it automatically means there must be strep involved or that strep is resistant to 4 abx. This just doesn't make sense to me. I wish I could do a better job of conveying tone in this post, because I mean it in the humblest of ways. I'm not doctor bashing or telling you I'm some sort of expert. I mean no disrespect to any choices you're making or how you're proceeding. I only mean to offer a different take on a similar experience, for whatever it's worth. I hope you start to enjoy improvements quickly. Laura

Since our kids are already on cocktails, the risks of a re-exposure are probably much lower than they'll be once they're done with treatment and no longer on abx (can you imagine a time when that could happen?!). But I think many of us are in that stage where any tick instills fear. The same fear I had in the first winter of Pandas and I disinfected door handles and light switches and dreaded birthday invitations to "hands on" kid entertainment places. For me, being tick-vigilant serves three purposes - first, it makes me feel like I'm making up for the time when I had no clue and "let" my kids get infected and go untreated (sort of a "fool me once, shame on you, fool me twice, shame on me" thing). Second, it makes me feel like I'm protecting DH and me - we can't afford any more family members in the club. Third, I feel like I'm developing habits for myself and my kids for that eventual day when abx don't fill our cabinet. As for feeling bowled over by having to learn about another controversial and hard to treat microbe, we've all been there. At first, you're not sure you have the energy or stamina to do it all again. But eventually, if the puzzle pieces start to fit together, you pick up information and knowledge as you need it and before you know it, you realize you've gotten your sea legs again. No stupid questions. We're all still learning. I hope your appt goes well... Laura

I'm looking at these products because they seem to be fairly safe (tho who knows what research will reveal 20 yrs from now). Better than deet, is my thinking. I've read in the past that some of the ingredients in sun block are carcinogenic, so in trying to protect against skin cancer, you might be increasing the odds of something else. IMHO, overnight exposure to these ingredients are probably better than an overnight exposure to an attached tick. These products lose their efficacy over 3-4 hrs if not sooner, so I'm guessing any risks decline over time as well. But maybe I'm just making myself feel better. You can only do your best.

I don't want to hijack the thread and ignore your original question (for the record, my son's symptoms actually got worse around his sister). But when you said your daughter denies anything is wrong, it made me wonder if you've done ERP (exposure/ritual prevention) or CBT (cognitive behavior therapy) with her. These are behavior therapies specifically for OCD and anxiety-related behaviors. I don't want to "lecture" if you're already familiar, but one of the first benefits these therapies give you is a common vocabulary to talk about what's happening inside her head. It teaches her to recognize and "catch" OCD and re-gain her ability to control her OCD thoughts and actions. An excellent place to start if the book "What to Do When Your Brain gets Stuck" but if you'd like more information, please say so. There are some real life experts here who can give you some ideas on how to help your daughter talk about what's happening.

Ozimum - thanks for this! I was just thinking how much I miss seeing links to new research. I was particularly intrigued by the comments on hormones. My DS is on multiple abx and while his gut seems fine - based on what he does/doesn't crave and on the "output", I was just thinking the other day how his body seems "younger" than his peers. He's 8.5 and has only lost 4 teeth, and only two adult teeth have grown in. His lost his last two in the fall and the adult teeth are only now cutting through the gum. Is this normal? He suffers from enuresis but he's been sick for 3 yrs - is it some delay that wouldn't be there if he were healthy or is he just one of those 10% of boys that take a long time to mature in that area? Or is it the massacre we're waging on his gut flora? So often, I feel like our kids are perfect guinea pigs for so many lines of research, if only we could hook up with the right science geeks and the right financiers... Thanks for sharing!

Nancy, Interesting take on allergies. Last night, DS and I had a long talk about his insecurities at school, because he's not into sports and "everyone else" is and now that weather permits outside recess, the boys naturally spend their time in games like soccer and kick ball and he feels left out if he doesn't play and awful if he does. If he makes the slightest error, he feels inside like it's the greatest humiliation in the world. So he's feeling like odd man out and that his friends are moving on without him. I commented that he had the same feelings pop up last year in April, when his best friend and he had a falling out. His anxiety in general seems to be escalating just like it did last spring. He doesn't have allergies but it does feel "seasonal". I was thinking about re-starting inositol to maybe help him over the hump but was feeling like it would be a band-aid and we should instead work harder on CBT. But on the other hand, if he could only care just a little less, he'd be so much happier. Your post has me thinking that maybe a little something to help him over an immune-triggered blip until end of school might be the right thing. I'm really sorry to hear about your son. You've all worked so so hard! I hope he's able to get back on top of it in short order...

Is this the same as C3D Circulating Immune Complexes (C3D Immune Complex)? No - not the same. All 3 are immune complexes (part of the compliment system that's pat of the innate immune system). But I think they are different proteins and are activated by different processes. I read articles that refer to C3a and C4a as different "entities" and never even mention C3d. I usually find references to RA when I google C3d. But no matter what I google, my eyes glaze over after 1 or 2 sentences. We saw the LLMD for DD today and left with a lab req. to test all three of these complexes (her C3d went from 25 to 47 to 94 over the past year - above 8 is high). I'm sure I'll be doing more googling when we get the results.

You may already know this, but C3a and C4a are thought to be early markers of acute lyme. Here's a paper by Shoemaker. http://www.survivingmold.com /docs/Resources/Shoemaker%20Papers/Lyme_acute_C4a_1_08_glovsky.pdf

If insurance calendars weren't a factor, would you be wanting to do IVIG as an ongoing treatment for lyme? I think that should guide you, more than a feeling that this is your "last chance" to do it (tho I do get how you might have that feeling). Do you have any concerns that if you were to pursue IVIG under a Pandas dx, would it effect your ability to get a lyme protocol covered for the upcoming insurance year if two months later you see a different doctor who gives a lyme dx (not saying it would - just asking). I think the hypothesis that drives current Pandas IVIG protocol is that if you give HD (1.5-2 g/kg) you have a better chance of suppressing the autoimmune reaction than you do with lower doses. Since giving that much immunoglobulin in one infusion would be challenging (and for your DS, it would be a very high volume), it's more practical to split it into two days. However, lower dosed IVIG is used to support the immune system and reduce immunodeficiency. So it's possible that a lower dose might be more beneficial than a HD to help a body fight a chronic infection like lyme. Just speculation on my part. I am quickly reaching the limit of my understanding here. Just to add to your confusion, I have to say that omnicef (in combo with other abx) has been some powerful stuff for my DS and caused some significant and lengthy herx reactions. Likewise, HD IVIG had a similar and prolonged effect on him - lots of difficult symptoms to cope with in the aftermath. To start omnicef and then do IVIG within the same week could be a very strong mix. If you were to do IVIG, I might consider waiting until you had at least a few weeks of omnicef under your belt to see how his body was handling it. Otherwise, you could be throwing more at the body than it can handle at one time. I would also make sure you had a detox plan in place. I know it's a lot to consider and the pressure of having a deadline must be stressful. I also know some members feel that IVIG has helped their children fight chronic infections including TBIs. In this regard, my DS may be an exception. But our experience is that he's made more progress with the right combo of abx than he did with IVIG. Had I known about the TBIs back then and if I had the gift of hindsight, I would have skipped IVIG and focused on an abx/herbal TBI protocol with plenty of detox. But I often feel that I'm in the minority here and don't mean to discourage you from following your gut. Best of luck with your decision.