iladvocate

And since this thread the anti-cholesterol medication Lovaza was developed from the exact mechanisms of fish oil and is used experimentally for bipolar. I don't know of if its been used in Tourrette's but perhaps a provider on this site could answer. Fish oil was helpful for me as a mood stabilizer as was flaxseed oil (basically as an adjunct to conventional mood stabilizers) but the more important question is Lovaza being able to control the same symptoms but in a clinically controlled and exact form might be more effective but research has to bear this out.

If she is diagnosed with tardive dyskinesia then as regards antipsychotics they would transfer her to Clozaril or it will advance. I have been documented as having made a full recovery on the novel antipsychotic agent in Phase II FDA study glycine, a glutamate antagonist, a new form of antipsychotic that will not cause tardive dyskinesia or diabetes. If she doesn't need an antipsychotic there's a wealth of options in the way of mood stabilizers. Lamictal is a good option. If she is diagnosed with tardive dyskinesia which I have in advanced form, I have found Zofran to be extremely helpful as well as the natural remedy rhodiola. All of these are from clinical studies and the research will be publicly available within a relatively short amount of time.

I'd really need to know more information about Taurine in that case. I tried it and it made me wildly psychotic. I believe its the active ingredient in Red Bull Energy Drink which they are trying to ban. I well understand this post is 7 years old and clinical knowledge may have been updated and maybe it was the brand or strength I took but I know there have been overall concerns about Taurine and another natural remedy I took Tyrosine which sped up my blood pressure to the point where I almost ended up in the emergency room. I tend to believe that these natural remedies could be helpful if the compounds were isolated and developed as medications but what a person gets from the health food store shelves is often an unknown quantity.

Tongue movements are a sign of tardive dyskinesia but many medications don't cause it. All antipsychotics (except for Clozaril) do. Tradazone can. And other medications for physical disabilities. Google "patient education tardive dyskinesia" and see if your son has taken any of the medications on the list are ones he has taken ever even in the past. In that case obtain a refer to a neurologist who is a movement disorders specialist. If not it could be part of Tourrette's which of course is complex. As for Clonidine it actually treats tardive dyskinesia (which I have in advanced forms) and I've used it in the past for that and it of course can't cause it and although it has a strong side effect profile it is helpful for a fair amount of disabilities, Tourrette's included.

Look I have tardive dyskinesia in advanced forms. Its as severe as Parkinson's in me and I am homebound and without treatment it would be fatal (respiratory spasms, dystonic convulsions, dysphagic choking epidoses). I am also under study for tardive psychosis. It is rare that it gets this advanced (I may have been more suseptable as I had unusual movements as a child although a CT scan was done and it was normal, MRI's didn't exist then) but tardive dyskinesia is not rare at all. But it must be caught in time to prevent it from becoming as adavanced as in me as unchecked it progresses. I will quote the standard clinical studies my psychopharmocologist has told me about. The rate of tardive dyskinesia occurs at the rate of "5% per per person per year among typical antipsychotics" and "1%-2.5% per person per year among atypical antipsychotics" and "it can be masked while it is occuring" and (at those statistical rates) "everyone gets it. It depends how bad it is". That of course is among all antipsychotics (and other medications including Tradazone) except for Clozaril (the sporadic cases of tardive dyskinesia among Clozaril are statistically rare, but it cannot be tolerated by many people (including myself) because of its dangerous side effect profile but it remains an option for some. As for the information he gave me on tardive dyskinesia if people have concerns I've asked him for the exact studies he cited and he is going to provide them to me but I don't want to bump a thread to scare people off antipsychotics who need them, just for people to know the facts. Now as a person with schizoaffective disorder I needed an antipsychotic. I do think that I should have been monitored better for tardive dyskinesia but the way it emerged (nocturnal tardive myoclonus and what they are identifying as tardive psychosis) are extremely rare and almost impossible to identify. Thus the purpose of the study to identify it and change the person's medication before it gets this bad. When it is just a series of facial grimacing it can reverse itself (its becoming increasingly doubtful that Clozaril reverses it, the brain however if not damaged can heal itself even from minor strokes). However, a person who has schizoaffective, schizophrenia or bipolar with psychotic features needs an antipsychotic. For Tourrette's by itself (sometimes psychiatric disabilities accompany it that may require an antipsychotic) I don't reccomend an antipsychotic. But of course there need to be antipsychotics that don't cause tardive dyskinesia. There are. They are in development. They are called glutamate antagonists (technically NMDA receptor modulates). I have been identified as making a full recovery from glycine, a Phase II glutamate antagonist in FDA study. I take it as a primary antipsychotic but since in the official study it was used as an adjunct when my psychopharmoclogist presented it to a major provider agency (cannot detail as its confidential until they make a public statement) they stated they would reccomend to psychiatrists to use it as an adjunct. But the Eli Lilly study drug LY2140023 will be used as a primary antipsychotic (once again glycine is a study compound, not a natural remedy and must be administered under the care of a psychiatrist). The fact that I made a full recovery with glycine and am under study for tardive psychosis was noted by my psychopharmocologist to the director of the APA. When the study is published and public statements are made I will make them available. Now back to Tourrette's. Years ago before being diagnosed with schizoaffective I thought I had Tourrette's but that was a self diagnosis that was incorrect. Now I have (among many other variants of tardive dyskinesia) tardive tourreticism. I am on Tenex and its extremely helpful (for all the tardive conditions) and although less effective than Clonidine, far more tolerable. Tenex being an alpha blocker does drop blood pressure but it has a mood stabilization effect and it is good to promote sleep (during the day I may need to rest it off though, its sedating). It does increase my appetite and lower my sex drive. As for another alpha blocker Tizanidine that caused suicidal ideations and I had to get off that quickly (though I did it the wrong way and got heart arrythmia, the alpha blockers must be titrated off slowly). Clonidine in patch form is the old stand by and very useful but it increased my appetite to the point where I gained a fair amount of weight, practically lost my sex drive, had personality changes ranging from depression to an agitated mixed state (thus why its rarely used as a mood stabilizer) and had extreme blood pressure drop. As well the patch itself burned my skin. However, for some people with Tourrette's it is effective and tolerable (I've known some people who did well) so it depends but it has a poor side effect profile. I take a variety of other medications and a natural remedy but they are for tardive dyskinesia from the medication Zofran to Klonopin (Klonopin is useful on Tourrette's of course but there is the potential of addiction) and the natural remedy rhodiola that I found out about from a presentation by the clinical researcher Dr. Richard Brown of Columbia University. If someone has developed tardive dyskinesia from medication or knows someone who has I could give specifics on these treatments but don't become anti-medication but there's a whole new generation of antipsychotics that will never cause it. Put your energy behind public awareness of that as I have. Glycine and the glutamate antagonists have not yet been researched on Tourrette's but its a worthwhile area of research and one worth advocating for. There will be a generation of antipsychotics that will not cause tardive dyskinesia or diabetes and I am advocating for all new research to be on new modalities of treatment (not just glutamate antagonists) instead of multiple copies of Abilify and I haven't had a single provider agency disagree with me and in fact they all have my support (I volunteer as the board president of a non profit, that's part of our advocacy). Think about that. And if you wish act on that intuition instead of abandoning the idea of treatment.

First of all let's start right here. I wrote that Wikipedia entry from clinical sources. I know glycine is available but it must be taken under the care of a psychiatrist. I have nothing against natural remedies. I take some. But glycine is a Phase II antipsychotic in FDA study. I have been identified as having made a full recovery from schizoaffective disorder and my psychopharmocologist will be documenting the results in a psychiatric journal. However, in the official study I cited its used as an adjunct. He spoke to a major provider agency which I cannot name until they make a public statement and they are reccomending to psychiatrists that it be used as an adjunct as in the official study which I cited. Its very important not to guesstimate with an unknown quantity. But if a psychiatrist supervises it that's fine. But it is an antipsychotic compound, a glutamate antagonist, a new form of antipsychotic that will promote a fuller recovery and not cause tardive dyskinesia or diabetes. But some other natural remedies are not safe. I tried Tyrosine and it raised my blood pressure and its highly dangerous. Another "no go" is Taurine which is the active ingredient in Red Bull Energy drink. That made me psychotic. Those are completely unsafe. Now as to why I am on glycine its because I have schizoaffective disorder and have advanced tardive dyskinesia and could not tolerate Clozaril. However, I have made a full recovery with glycine. And it will be reccomended as an adjunct antipsychotic for others (the dose range is 20 grams to 40 grams, I believe it may have gone to 60 grams but one thing the study got wrong is to give it one lump sum, in me it has to be titrated throughout the day). And as well there are glutamate antagonist antipsychotics that will be primary antipsychotics such as the Phase II study drug Eli 2140023. When the study is published it will be linked up as needed and I can't name the provider agency that will make a statement. Nor my psychopharmocologist. However, I can say the fact that I made a full recovery from schizoaffective disorder with glycine (which has not been researched on Tourrette's yet) and am under study for the until now controversial criteria tardive psychosis has been noted in a letter by myself and my psychopharmocologist to the director of the APA. I'll let you know more when I can. But please anyone reading this or my article (which had clear sources) take glycine only under the direction of a psychiatrist. But your psychiatrist may be learning more about it and the information once available will be there for their knowledge. Thanks.