

Nativebrit
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About Nativebrit
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Rank
Newbie
- Birthday 03/31/2001
Profile Information
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Gender
Male
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Location
Palm Desert, CA
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Interests
Playing outside, finding my old self back again
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Has my son had PANDAS/PANS for years?
Nativebrit replied to Nativebrit's topic in PANS / PANDAS (Lyme included)
Thank you for this information - I will reach out to her -
Has my son had PANDAS/PANS for years?
Nativebrit replied to Nativebrit's topic in PANS / PANDAS (Lyme included)
Thank you - plus won't go near Miralax 😀 -
Has my son had PANDAS/PANS for years?
Nativebrit replied to Nativebrit's topic in PANS / PANDAS (Lyme included)
Yes they should however up to this point they are set on the epilepsy diagnoses however non of the meds for epilepsy have worked. Also he was on a dose of 8 MG daily of Lorazapan and he still has his once a month seizure. I am now started working with a MAPS doctor and waiting to see a neurologist local to me but have no trust in traditional medicine any more. -
Has my son had PANDAS/PANS for years?
Nativebrit replied to Nativebrit's topic in PANS / PANDAS (Lyme included)
Thank you and I appreciate the hope...hearing from others that can actually relate is priceless. It's the same with his "epilepsy" most doctors just do not want to hear that maybe they have mis-diagnosed here. However the main children's hospital is just like the DMV, take a number and hope you get served that same day! -
Hello Everyone, Brand new to this forum and honestly believe I may finally be going in the right direction. After 2+ years of ER visits, doctors visits, meds, meds, meds my son is in a very severe condition. Past 2.5 years with my son Jonah have been a nightmare and nobody ever mentioned PANDAS/PANS in all that time. For 14 years Jonah was a loving life kid, swimming, playing, beach lover until something took all this from him! (Jonah has been non-verbal since the ages of 3 and is now 17, lives near Palm Desert, CA) I recently purchased the book "Your Child Has Ch