Our almost 5 year old daughter started eye blinking and squatting tics almost two months ago in mid July. Because she suffers from frequent cold sore infections and had one prior to the tics starting (and also had a brief strep infection that was treated with a 5-day z-pack in the beginning of August), we have also seen a gamut of physicians including pediatric neurologist (who diagnosed with transient tic disorder and advises to just wait it out) as well as Pandas/Pans doctor (Dr. Trifilleti of NJ who ran tests for strep, mycoplasma, and coxsackie but no antibodies were elevated for any of these). After we read your post, we sought out a functional neurologist in NYC and had since Tuesday (a mere 4 days ago) two, half-hour sessions with the functional neurologist.
We noticed an immediate meaningful improvement in tics after the first appointment which were sustained (for the most part) for the remainder of this week. I am grateful for that, since this past Thursday was the first day of school (Kindergarten). However, for some reason, today (Saturday), the eye blinking tics came back relatively severely during lunch time. I am just curious about your experience - did you notice a consistent improvement, or were there times of regression? Did you notice any correlation with sickness? With stress? The functional neurologist did give us "homework" exercises to do three times per day which we have been completing religiously (given that I would almost sell my soul to the devil at this point to rid her of these tics.)
Also, the functional neurologist recommends an "intensive" session which would be 3 hours long (with breaks in between, of course). He feels they would be more effective. Do you mind me asking how long your son's sessions were and how frequent?
Even though these are "just tics", this has been one of the most stressful and anxiety provoking experiences I have ever encountered in my life. So I definitely welcome the perspective of any parents who have gone through it and came out the other side alive and stronger.