Kathyw

Has anyone used Tenex to treat Tourette? My sons TICS are so bad that his neurologist wants to put him on Tenex. I was told it’s the mildest with the least side effects. If anyone had any experience in terms of effectiveness and side effects, please let me know. I have taken him to a PANDAS:PANS neurologist and is waiting on test result. My son’s Suffering from so many motor and vocal tics I’m actually considering the drug, if it’s helpful.

Just wondering if anyone had any experience dealing with children with tic disorders with daily unprovoked outbursts. My son developed tic disorder few months ago and his condition has gotten progressively worse. He went from slight motor tics few time a day to multiple motor and vocal tics with increase in frequency and intensity, all within about 3 months of time span. He also lost a lot of weight but eating well. In the recent weeks, he would have episode of outbursts complaining about physical discomfort in the stomach, feeling hot and cold, screaming and crying in agony. His feet and hands would be cold and sweaty. This would go on for about 20-30 minutes. The outburst came completely unprovoked. It always preamble with complain about not feeling well but can’t identify where. I read about rage outburst but don’t think that’s the case because his outburst involved physical discomfort. He has no symptoms of ADHD or OCD. He saw a neurologist about a month ago who said it’s wait and see because his tics are so recent. Anyone sharing similar scenario? Any recommendation for next steps?

Msimon3- can you provide the info of the PANDAS/PANS Doctor in NJ? My son started with mild motor tics in early 2018. Since then the tics progressed to badly that he’s shrieking in high pitch voice continuously through out the day, along with several motor tics. He’s seen a neurologist who said his tics are recent and we need to wait and see. His tics definitely worsen during the spring pollen season. I’ve watched his diet very closely and observed no specific trigger. I even stopped his competitive swimming for fear of chlorine as a trigger and also wanted to reduce his anxiety. He’s had about 5 acupuncture treatments without any improvement. Recently it daunt on me that last year he had issues with his muscles and the orthopedist ordered Lyme testing. The result showed positive on the IgM but negative on IgG so his pediatrician declared the result to be false positive. Since his muscle pain went away after chiropractic treatment, I didn’t pursue the issue. Now reading upon the link between Lyme and tics, I’m beginning to wonder if I should pursue this possibility. I know it’s very tricky to diagnose Lyme and wanted to get an expert take on it.