harpazo_hope

No, I haven't seen a neurologist. He has had many the last few days, too. I just got a call back from the doctor's office. He has Lyme disease. This explains a lot. Thanks for the reply.

Hello...I don't post ever...but I do stop by every now and then. My son has started having absence seizures. Is there anything I can do about this? I'm worried he's going to get hurt.

Hello... Popping in again for a second. I don't have the time to keep active. Sorry! I just came across a message in one of my email groups about white spots on the fingernails meaning there's a zinc deficiency. I think I knew this but just forgot. So that had me looking into zinc and copper balances because my son has these white spots. I came across some interesting stuff in my reading. Someone had posted that your body raises copper levels in response to infections. I wonder if that is why TS is linked to different infections and high copper levels. Another thing I skimmed through suggested excess copper could have something to do with sulfite sensitivity. Interesting for those of you who deal with sulfite sensitivities. I also came across some opinions on copper toxicity actually being a copper deficiency, so I decided not to supplement with zinc or molybdenum. I'm just going to keep track of my son's diet on fit day and see what kind of zinc/copper ratio he is eating before I make any decisions. I don't know if I will be able to get him tested. And, for a quick update... my son's tics now include words and sentences. Is there a name for this kind of tic? It really freaked me out at first...and I guess it still does. He's being a parrot in the other room as I type. Hoping the best for all of you! Jasmin

These are the raves I kept reading that have me excited to try our garden lima beans, and they all include bacon or ham. My kids like the dry ones when we have them, but that hasn't been very often. Yummm... I'm hungry.

I have never had fresh lima beans, but my son picked out the lima bean seeds for our garden, so we'll see how that goes. My kids love all beans, so I'm not worried. I've read today that fresh lima beans are delicious, and that frozen lima beans are better than canned or dried. We'll see about that.

I remember someone on this board saying their child was sensitive to sulfites. So, when I was reading this page about lima beans I thought of you, whoever you are. http://www.whfoods.com/genpage.php?tname=f...ice&dbid=59

LOL! Sounds fun. My son has started fishing this year, too. It's good to hear good news.

Thank you Greyhound. That was very helpful.

I need to get my 12 year old in to the dentist. He has some baby teeth still. I wonder how TS will affect the visit. I'm glad things went well for your son. That's a lot of teeth!

I've read a few things on the board that lead me to believe I am supposed to watch out for copper...but I really didn't read anything on it elsewhere, nor do I know why it's a problem! LOL I just have this little voice telling me, "Copper bad." I went to Marine Minerals here locally. I loved their Hair Skin and Nails formula years ago. I asked what they recommend for ADD kids, since I notice a lot of the same things help TS. Here are her recommendations: Liquid Ionic Trace Minerals Lightning Tablets OR Hair, Skin & Nails Like I said... I really was impressed with the Hair,Skin, & Nails... but I'm concerned about the 100% copper. What about the other herbs and stuff? Are any of these a bad idea for my son? I have given up on getting rid of his tics... I just don't want to make him worse. I also think his TS is a sure sign he has greater nutritional needs. Any advice? Thanks! Jasmin

I am thankful for all the responses on this thread! My son had minor tics which worried me only because I was afraid how other children would treat him. When his tics became severe, it was all I could think of and I cried a lot. I was still afraid of how others would treat him. I was also afraid of how the learning difficulties would affect his education. (By the way, these also wax and wane...is this typical?) I became angry because I was alone in this. I am home with him all day long, and no one understands what it's like because they don't see the worst of it. I also had to go to God for comfort. When everything seems out of control there is comfort in knowing He is in control. I am curious about the repeated questions. This is also associated with Tourette's? My son drives us crazy doing this! He'll ask things over and over, or he will ask a question he knows the answer to. He will also tell us about the same event or story repeatedly. Anyway...thanks for the great thread. Jasmin

Hmm... I don't really know but I thought I'd keep the thread going. Here's some good education so we can get some guesses. http://en.wikipedia.org/wiki/Sprouting So, what part of the bean are people usually allergic to? If it's an enzyme issue, then my educated guess is sprouts would be OK. If it's the protein, I'm guessing no. Oh... there's a caution on the same wikipedia site about antinutritional factors. I already copied and pasted too much so I'll just share. Some legume sprouts have toxins, and should be lightly steamed before eating. OK...why not one more copy and paste? From http://www.westonaprice.org/children/foods...-preschool.html

Some supplements can also thin the blood making bruising more likely. My mom was bruising really bad and linked it to her garlic and fish oil.

I can't give you an answer, but you might want to search at www.westonaprice.org. Fats/oils are one of their favorite subjects over there.

I was wondering this, too. Someone recommended some reading in an introduction thread I started here. My son will whine about pats on the back or knee. If he really does get hurt, you would think he was dying! Here's from the other thread:

I put it in my smoothies and cook with it. www.mountainroseherbs.com has a good deal on a gallon tub of it.

No... he never liked milk much, just like his mom. We started with the raw milk about 3 or 4 years ago, and both he and I craved the stuff. Then we moved and we both don't care for the store bought milk again, but we still drink kefir. I wish I could get my husband to milk a cow. He milked one for most of his childhood, he'd do great! But he goes to work too early to do it. He'll have to teach the boys and me. I got the PANDAS thing now. I thought if I just googled PANDAS I would get a lot of sites on the animal, so I didn't. I'm finding better info now. Thanks!

Thank you so much for the warm welcomes. So what is PANDAS? When I googled it, I get stuff that goes way over my head. CSP... Enjoy the raw milk! We moved and I haven't been able to locate it yet. Actually, I was thinking it may be the switch from raw to pasteurized that aggravated my son's TS. That, and maybe the mold/mildew in our new home. Or the cell phone tower down the block. I would cut out the milk completely, but I don't want my kefir grains to die. Anyway... I love raw milk. I'm even considering milking my brother-in-law's cow. LOL Your garden sounds wonderful! I can only imagine how good home grown vegetables would be fermented. I haven't tried fermenting much more than cabbage. It's fool proof. Praying along with you! Jasmin

Another new member... just had to say hi Jasminky. My name is Jasmin. I see there is a Claire on the board too, and that's my sister's name. I feel right at home. My son has had anxiety, too. No answers for you... just wanted to say hi.

I've been lurking a bit looking for ways to treat my son at home. I'm feeling really overwhelmed right now and just got over that depressing feeling of being alone in all of this. Anyway... my son is 11. He's had some odd health problems from the time he was two. He had his fists lock up for 3 months and if you tried to open them they popped which caused obvious pain. The doctor said see if it goes away and sent me off. His legs did the same thing many times in his life. My younger son had similar leg problems, and a new doctor said it was probably strep in his knee joints. Now I'm seeing that strep is linked to tourette's? The son with TS was also on antibiotics for the most part of his first year of life. When he was around 7 or 8 he started little nose and mouth tics that seemed normal to me but they progressed to the point that children made fun of him. Then the tics disappeared. A few years later he would have his heart race while sitting. It would pound so hard that I could see it through his shirt. I took him in and the doctor sent him for an EKG which turned out OK. So this would happen off and on for the next few years. It has been the last 2 years that I knew it was probably TS. It started with his reading. When he would read, he'd tic to the point that it took twice to three times as long to finish. Then the horrible anxiety came along. He once asked me if I've ever felt afraid for no reason. He explained that he felt something was really wrong, but he didn't know what. How crazy that a little kid has aching joints and anxiety. Those things aren't supposed to go with childhood. So, now I've ordered a ton of vitamins and minerals, etc. I am hoping something will help him. I think I might have gone overboard. When my son saw the bottles he had instant anxiety and ear piercing screeches. lol I really didn't know what to do, because I was on information overload. The things that went with his joint/muscle pain AND TS stood out to me. I have been eating well most of the time for the last 8 years. If anyone has heard of the Weston A. Price Foundation... that's the kind of nutritional goals we set. www.westonaprice.org I haven't had him tested for allergies yet. I really don't want to take him to the doctor. I'm so tired of being billed for reassuring words and I don't know's. But I am keeping an eye on foods and his behavior. So now I'm here. I just needed to *blah* to someone who knows. No one understands that it breaks my heart to see him jerking his whole body like a seizure or swinging his head so hard it cracks and hurts him. They don't get that my little boy is lost in this body that is out of his control, and I am helpless to do anything. I just hope I did something right with my supplement purchases. *sigh* A few questions. What is PANDA? Has anyone heard about the supplement DIM and tourette's. Someone recommended it for my son, explaining that there's evidence TS is caused by pathogens, and the DIM is helpful for that. My son says he does not know when he is ticcing, or if he is ticcing. Is this normal? I get the feeling he's embarrassed and not telling the truth about this, but who knows? Sorry to ramble... EDITED TO ADD: My son also is super sensitive, both physically and emotionally. If you bump into him or pat him on the back too firmly he says ow. Everything hurts him. Any insights?