moose_man22

Hi kdelaney114 - what type and where do you get these glasses can I ask?

Hi Joyle, yes I am in Australia and I do...

Hi sahm, is the Charlotte's web oil hemp oil or CBD/cannabis oil do you know? reason I ask is that you can get Charlotte's web oil in Australia online. However, you cannot legally buy CBD oil legally in Australia yet, so I am wondering if it is hemp seed oil?

Thanks Sheila, I have done a lot of research on the topic but was hoping some people on here may have actually tried this treatment option. In Australia however, the legality is still a big issue as they have only just legalized growing the plant to extract CBD We are a long way behind the US in this regard. Thanks for your input and hoping to hear from some people that may have tried. Thanks.

Wondering if anyone knows about or has tried this?

Hi there, just wondering if anyone on here has tried the use of medicinal marijuana / cannabis or CBD oil to "control" TS tics? Thanks

Hi Juwayriyah, Any idea where you get CLERODENDRUM INERME from? Thanks

thankyou again Sheila, I have taken your advice and gotten some of the Gaps probiotic. Hopefully this could go a long way to healing gut. I will also talk to his doctor about Nystatin - I hear what you are saying about die-off being proof that there is a yeast issue Thanks Chad

thankyou Sheila, yes we definetly need to get a better probiotic into him. Thanks for the suggestion I also have heard / read about Nystatin, I have also heard there may be some nasty die off effects too - I am just wondering how we would know if what we have tried may have treated the candida, obviously without doing all the invasive testing again? Any ideas?

Hi Sheila, thanks so much for the reply. Yes, we were able to get the compound formula into him (it's in powder form). We have also just ordered another 2 month supply but this time added 5-HTP (only 25mg/day) to see how he reacts. Also upped his iron from 20mg to 25mg. His diet is usually pretty good, snacks are mostly no preservatives / colours etc but there is a bit of "junk" food creeping back in which we need to address. He is currently taking half a capsule (in powder form) of Ultra LGG https://www.metagenics.com.au/Products/Product/UFLC - not sure if this is a good probiotic but our naturopath / doctor put us onto it. I believe there might be more potent probiotics out there. In regard to the candida, how are we to know if the treatment (which was a formula including bark, pomegranate) has worked? Without doing the tests again...any ideas? Apart from starting school, there isn't really anything that has changed. Maybe he has started a new basketball season (but seems to love it). Thanks again for your help Chad

Hi, I have previously posted about my 5yo son who we thought had developed TS. Over the new year period my sons tics really reduced, but recently he started primary school (we are in Australia). This is obviously a big step up from kindergarten. In the lead up in the preceding weeks, with people asking how he was feeling etc, I think he started to get quite anxious about the whole transition to school. The FIRST day on school, he came home doing a neck jerk and increased lip scrunch tic. I thought we were "on top" of this all, but it has become clear to me that his ticcing is clearly linked with stress / anxiety. Earlier this week we started him on 2x 50mg doses of L-theanine to try and settle down the anxiety - havent really seen any changes as yet. My question to you guys is, do you know of anything that can be taken to settle this down? I know L-theanine can cause an increase to dopamine and our naturopathic doctor has also suggested 5-HTP to possibly increase serotonin. He already has kid calm, espom salt baths, magnesium foot rubs, essential oil massages. Another issue is that I think that he is becoming aware of his tics - I asked him if his neck was ok and he said "yeah, its sore" but think it was more of an excuse. I did tell him we would have a massage to help and took him to a chiropractor as I have seen some positive results on tics by chiropractors Thanks in advance to you guys, you are a wealth of knowledge

Hi Sheila, We were trying a candida treatment called Korolex (http://www.kolorex.com) but he was unable to swallow and to put the pierce the capsules and get the liquid out isn't nice as the liquid is extremely spicy. Out naturopathic doctor seems to think the pomegranate / bark / hull "formula" should work? In terms of If the candida treatment is working - I am not sure. How would anyone actually know if an internal candida treatment is actually working? I have noticed his bowel movements are a lot more normal / solid - this could be to do more with a change in diet I think as it was happening before the candida treatment. In regard to bedroom, he has dust mite doona and pillow covers. All bedding is normally washed in cold water so will try the hot water from now on. Other than this, I am not sure what else to try

Hi Sheila, Thanks for your reply. Yes, a few years back he was diagnosed with excercise induced asthma, but now that we seem to be heading down the transient tic / TS path, I am convinced that asthma preventer didnt do anything for him at all. I do believe he has allergies (tested positive for dust mites / rye grass) and we are starting him on a compound formula from the pharmacist after doing extensive testing. We have also been doing magnesium, salt baths, iron (he is iron deficient), etc. It has "settled" his system down to some degree. We are looking at starting essential oils as soon as they arrive (young living, waiting on shipment from the US, we are in Australia). You haven't heard of anything that helps settle excitement tics specifically though have you? He also does a sniffing tic, which seems to almost cause the coughing tic to occur. Thanks for your input

Would love to know if any supplements have helped excitement tics also

Hi there, My young fella gets a dry cough when he is running around / gets excited. He was originally diagnosed with exercise induced asthma, but Ventolin / Singulair didn't really do anything. We have taken him off both of these (especially Singulair due to hearing about horrible side effects recently) My question, has anyone had any luck in calming these "excitement tics" down, especially when physically exerting himself. He has just turned 5. Thanks

Further to this, has anyone ever heard of EUPHORBIUM - its a natural allergy nasal spray. Would love to hear any reviews from people that have had any experience please. Thanks

Hi there, have been following these forums for a few months and they have been a great help. My 5 year old son has recently been diagnosed with "transient tic" at this stage (but I think it will be TS). Over the years, looking back, annually he had a blinking tic or sniffing tic. Each time we treated with either allergy eye drops of allergy nasal spray - Avamys to be exact. The tics seemed to stop after a little bit and we put it down to allergies. He also had a dry cough tic, which he was treated for asthma (singulair, which we have now taken off since we learned about the shocking side effects). We now put this down to being a tic. 3 months ago when this all "blew up" our son had a very bad eye blinking tic and then started a sniff/grunt/cough tic. These have since gone away, some lasting longer than others and now he is doing a mild "deep breate in" tic and a nose scrunching tic. I was beside myself toward the start of all this but as his tics lessen, it seems to be easier to deal with and think strategically about how to treat, rather than throwing random things at "it". We have seen a bio-chemist / naturopath (we are in Australia, I believe this is equivelant to an integrative doctor in the US...) and we went and did doctors-data whole blood minerals, a Faecal Microbiology test and the Genova CardioION Profile which included organic acids test from my understanding. The results showed "extreme significance" on the "Intestinal Yeasts / Fungal Metabolites" test (so basically its Candida). We are treating with Korolex. The Faecal test showed E.coli undergrowth - treating with Lactobacillus. Also doing a compound formula for the many minerals, acids, etc the ION profile found. This includes Vitamin A, C, D, E, K, Thiamin (B1), b-Carotene, Riboflavin (B2), Niacin (B3), Pyridoxine (B6), Folic Acid (or 5-Methyl-THF), Vitamin B12, Biotin, Pantothenic Acid (B5), Calcium Citrate, Iodine, Magnesium, Zinc, Selenium, Copper, Manganese, Chromium, Molybdenum, Boron. He was also found to have very low Ferritin levels (Iron store deficient), which may be the reason for irritability, tiredness. We haven't yet started any of these supplements, but have for the last 4-6 weeks have been trying Magnesium baths / foot rubs and just started a drop of vetiver on a toe at night. We have also changed his diet quite a bit (low MSG, low artificial colours, low dairy, etc) but haven't cut EVERYTHING out. We are encouraged by the progress prior to supplements, etc. The past 2 weeks however, he (and his sister) have been sick / very congested. Our son has previously had allergy testing and tested positive to rye grass and dust mites. I am wondering if his allergies that he clearly has, may actually be causing a coughing tic, as when he is extremely congested of late, it almost sounds as though it causes the couch after a big sniff attempt, if that makes sense? - Has anybody used Avamys nasal spray for allergies - we are affraid to use it at the moment as it contains fluticasone (steroid). But, I would like to use it on the other hand to see if it can clear his allergies (extreme upon waking in morning, so thinking dust mites - treating with a new HEPA filter and humidifier). Any thoughts or comments about our sons story would be great to hear. Also, if you have any positive (or negative) stories on Avamys (fluticasone) Thanks for reading...