hermom33

Hi, I don't post on here much so some of you may not know me. I believe my daughter has pandas and last month she had strep and her tics got REALLY bad and they are just now getting better by 75 %. She only has motor tics, eyes rolling and pushing her belly in and out.....Her friends mom just call me and she has strep and also another friend of hers who she saw both of them on SATURDAY....She is feeling really good as of now and no symptoms of getting sick yet......Should I take her to the DOC just because she was exposed? I don't think he will give her a antibiotic cause he doesn't believe in the PANDAS much but her Neuro is the one who think she does have it.......In the past she doesnt show up as strep on the quick swab test.... Do I wait till I see signs of her getting sick? I dont want her to get it and have those tics outbreak again!!

Has anyone had any success with Cognitive Behavioral Therapy? When I took my daughter to her Neuro she recommended this rather then medication but I am having trouble finding someone who specializes in my area..........My daughter is 10 and has motor tics, ( I think Pandas) mostly eyes rolling up and she also has anxiety. Any info would be great......

Hi Faith, She was giving antibiotics when she was sick but that is the same week they got worst and once we finished the treatment her tics still stayed the same. The only thing I am doing is the naturals calm once a day. She mostly only drinks water, always has and eats rather on the healty side. It has been only a good few days but still nothing yet with the MAG. I bought some epson salt today and am going to try that? See, thing is when I took her to the urgent care they did the quick strep test ONLY and it didn't show up but he still treated her as if she had it because she had all the symptoms. She had high fever, spots on throat, vomiting, extremely sore throat, couldn't swallow nor eat and she had body aches. In the past 3 years (that is how long it has been since this started) whenever she had a antibiotic for ear infection, rash, it had always helped with her tics. When she had the OUT OF THE BLUE first episode of tics it was shortly after she had scarlet fever. I know it is pandas related...Her Doc doesn't know much about pandas so basically he thinks I am crazy. I get "that look" from him. This is her Pedi she has had since an infant. He did give us the referral for the neurologist at least, that was after I said about when she watches TV they are really bad. She can't sit still at times and and her eyes constantly go up. She only watched maybe 30 mins of TV now and the computer is limited too. She takes Karate and that keeps her occupied a few evenings of the week so we are always on the go. Our insurance we need to have a referral in order to see someone else. I want her to be testing for all the allergy's and heavy metals but I dont know that he will let us. I also want to test is she has any strep in her antibodies. What else can I do? All I do at night is read these boards till midnight at times and cry. It is breaking me!!!

Mike, I am happy for you and your son. That is wonderful. Did they put him on antbiotics? Is it just that in time they got better for him? My daughter came down with strep last month and she is still having really bad eye rolling tics. I am having a hard time dealing with it (she doesnt see this in me though) . She is going to a neurologists next week. Not sure what they are gonna do or say.....

Hi C.P She is 10, VERY thin. What do you think?

Hi, I am sorry to hear about your sons tic. My daughter is having alot of the Eyes rolling. Since she was sick 3 weeks ago they have really increased! I am HOPING they get better before school starts. She was having almost NONE all last year. Kids Calm.....I have a question....I bought her the natural calm, is that the same thing??