powerofprayer

We got an ASO test for my 4 yr old to rule out PANDAs. she had never had a diagnosed strep infection before but i thought, you never know! I jsut couldn't leave one stone unturned. Anyway, it came back negative for strep. Is that the only thing i need to do regarding a PANDAs dx? I read here about the other test, antiDNAse (I think). the ped didn't know anyting about that one. what does it measure? so where should i turn now? the mag supp? Can a child have TOO much mag? sorry...i'm clueless in the biochem field! I htink i dropped chem in grade 11. you know, if her mag was within normal range, could I hurt her by giving a supp? Or is this one of these vit/minerals that your body will just flush out if there's more than enough? anyone know a good dr in the OKC area? I'd even travel to Dallas or KC.

HI itsme, I am curious to find out what your tests show. Would you mind sharing them when you have them available? Have you EVER taken any traditional drugs for your TS.......or have you figured out any triggers? (for you or your son)

I have read alot about PANDAs on here and I have requested my ped to the ASO titer while waiting. Im still waiting to hear from her if we can do that. Anyone know the name of the other titer? Am i wasting my time having this test done if she's never had a diagnosed strep infection? to answer some q's...my daughter's last vaccine was a Hep A (#1) and a flu shot in dec' 06. As for being exposed to illnesses, Not that i know of. but can you ever really tell? Does anyone know how long it takes to be exposed to a "tic trigger" before tics develop? i wonder cuz right now i'm trying to eliminate the artificial colors b/c she does eat alot of "junk" but always has. so should i have seen anything "different" in her behaviour before now? My 21 month old daughter had an ear infection 2-3 weeks ago, but as far as I know that's not contagious is it? Her immune system seems to be fine. almost never sick as an infant/toddler. she did have a condition diagnosed at almost 3 yrs...VUR. she had to be on a prophylactic antibiotic for a year until they retested to find that it had cleared on its own (which is the usual case) so that antibiotic was last taken in december 06. the other thing that's been on my mind is that we recently installed laminate flooring over 800 sq ft. now if worry about formaldehyde emissions, but how would we EVER find out if that's a trigger. and if it is, what on earth can anyone do about that as i've read it's in all wood products. so at age 4, should i be talking to her about her tics. I'm so worried she is confused/scared and if so that could make the tics worse couldn't it? She is normally an extremely happy care-free child!!

It has been an exhaustive day!! I found this forum today and have spent so much time on it. What a wealth of info! I am a little overwhelmed. Let me give you a background and maybe someone could send suggestions on where to start! My 4 yr old daughter JUST started displaying a facial tic last week. It got much more aggressive as the week went on and now she opens her mouth to clench her teeth together as well as blinks her eyes really tightly and holds for a second. These tics happen OFTEN.....like every couple minutes now. I myself have sufferred from tics since i can remember. but it was never discussed in my home and therefore i have always been too embarassed to tell a dr. I am pretty sure I have full blown tourettes but who knows! right now i am not concerned about myself, just my daughter. I have taken her to the ped who is referring us to a ped neurologist. (that may take 2-3 months though) any suggestions on things i can try in the meantime? I have a question about magnesium....the kids calm i've read about on here. is that dosage the same for every child? Has anyone on here had success with only that? I've read a lot of Jeff's posts and feel he is a kindred spirit since he too suffers from tics all his life. I have ordered the book that is recommended on here...forget the name now.....the one by Sheila Rogers (i think) Should i talk about this with her at this stage? I thought since I suffer too and she obviously has seen me tic, that it may make her feel alright about herself. This is probably a longshot.....those out there with lots of background in PANDAs.......I do want the testing done but am i wasting my time and getting her pricked for no reason if she hasn't had a strep infection in the past? As an adult could my tic/tourette problem have always been a PANDAs issue. i apologize for sounding soooooooo naive. SOrry this post is all over the place. i know you all know the amount of stress i've dealt with these past few days and i'm exhausted. i think i'll try to get a good night's sleep and get back on here tomorrow to hopefully see some much needed suggestions. Nadine