itsme

Thanks so much Sheila, for your response and for everything else!! I spoke with you a couple times on the phone. Thanks to everyone else too! Sounds like this is a real problem. Alot of money (millions), which could be put to very good use, instead going to well intentioned bureaucrats! It makes me sick and puts a fire in my belly to do something about it. Having to many thoughts right now and probably shouldn't spout off to much. But I will do some digging next week.....I'll be in touch.

I agree completly. I called them twice 3 years ago to discuss some alternatives such as Bontech sups. They wanted nothing to do with it and it turned into an argument. I never called them again.

Hello, I have had the stomach tic that you described for the past 30 years. I am going to have it checked out August 3. I will post with any positive results. It is also the most bothersome tic I have. The others are very minor.

Hi czl, I am very sorry to hear about your son's stuggles. TS can be a son of a gun to battle on a daily basis. My son and I have it - me for 33 years. We have found, as many in this forum, that cleaning up the diet often has positive results. That is eating foods without any artificial anything. All natural foods. Have you tried to eat a "clean diet". It can be difficult at first, until you get used to it, but usually well worth the effort.

Is that the specific supp regimen you were on when you noticed the 50% decrease in tics? Yes guy, that is the one

Questions: Did you stay on the supplement regimen that caused those changes? If so, I would be interested to know what supps they were and how long it took before your body adapted and they were no longer working. And then if that was the case, if you cycled off of them and then started them back up later, did you notice the same effect again? If you stopped taking them, why? Thanks. Hey Guy, I got off the regimen because i had a root canal which messed things up both times. Than when I got back on, as I am today, I never got the same results. I'll get there - just gotta keep pluggin away. I am taking probiotics, bontech sups, dmg125, theramil forte, natural calm, candida diet, nystatin, glutathione. life plus colon formula.

^ wow really they increased? thats horrible.. AHB900 I definitely wouldn't say horrible. Challenging at times, yes. But I have (and have had) such a blessed life. Always lots of freinds, good athlete - into mostly all sports, lots of hardy laughter, married with kids (yes they have ts but doing quite well), great career, ect..... Often things are as bad or as good as we choose to make them. Not to deminish the very difficult time many parents and kids (on this forum and elsewhere) are going through. I just found that, having lived with this for 30 some years, if I focus on the tics it magnifies them and can get me frustrated. If I just go about my life and deal with them, than it really "ain't nothin but a thing". I should add 2 more things. My tics are better overall having cleaned up my diet a couple years ago. Also, it is "more than a thing" when your kid gets tics, as mine have. They also, are doing quite well at this point with diet and sups.

Age when tics started - 11 Current Age - 42 Did your tics reduce or increase as you aged - increase My tics reduced by 50% - 75% twice over the past 2 years due to supplementation and diet for about a month each time. That's never happened before. It was truely amazing and relieving. I'm still on a quest to get that tremendous relief back. Not sure what it was. I guess just right the combination of diet and supps.

It's tough to tell Patty. We finnished going a year ago after about 7 times. His tics still increased during Spring and we had him treated for Spring allergies. But maybe he would have been worse without it - who knows. For us the key seems to be clean diet and sups.

Hey Faith, No not treated by NAEY for yeast. He was treated for other stuff.....not sure if it worked. It very well could be a bug going aroun d as CSP said.

Hi Faith, I have had the stomach tic for 30 years. My son has had it for 6 yrs. He is doing great now and I am doing pretty well. We have been on the candida diet for almost 2 years and taking sups, probiotics, ect.... My son use to cry because of his stomach since he was about 3. I was pretty sure what it was back than, and when he could talk better at 5 and 6 I was sure what it was. It seems to be yeast related.

Hello elanasilver, I've had TS for the past 30 years and what has helped me so much was really cleaning up my diet and taking supplements and fighting off Candida. If you read through the forum you will find so much help on how to how to get a grip on all of these (and so much more) areas. There are so many things that can be done to treat an individual. You have to experiment and find out what works for your husband. Of course I would, and have done this with the help of a good environmental dr. There really is alot of help and alot of hope.

Yes we tried it for about 6 months without to much progress. However, I spoke with others who have had good success with it. Kids are doing well. We are on candida diet and supps.

Here is a web site that has hekped many people. http://www.nutritioninstitute.com/Tourettes_Syndrome.html

Maryann, The candida diet can be found on the "Wholefoods" website. Mainly no carbs or sugars.....lots of vegies. We've been taking nystatin powder and candida clear....separately for several months.