Hi there. I'm new and seeking some support.
My 9 year old DS starting having severe motor tics about three weeks ago (around Sept 20). Very noticeable, full body, legs kicking, arms punching down, torso twitching. Started small but increased in duration (from 2 to 10 seconds long) and frequency (every minute - every few minutes). This morning was particularly bad; almost constant during breakfast. He gets better when he has some gross motor physical activity to concentrate on - soccer, running around with friends. But can't really sit still long enough to play piano now.
We took him to urgent care clinic, emergency room - who scheduled an EEG to be done in a few weeks. Our family doctor luckily had a colleague who had read about PANDAS and DS had a blood test and throat swab last Friday (Oct 11). Swab came back positive for strep (no other symptoms) and DS was put on amoxicillin the next day. So far, it's been 3.5 days since he started on it, but the tics are getting worse. I know it's early; he's on it for 10 days so we'll have to wait and see I suppose.
So that is our story so far. I'm so stressed I think I've ground my teeth down. Any insights? If the amoxicillin doesn't work, should I push for a stronger antibiotic?
He shows no signs of behavioural changes. We're totally downplaying the situation in front of him so he's not stressed.
Thanks for reading.
