Hrosenkrantz

The reason we were referred was because our son was having a hard time seeing/two dimensional shapes, but was very sophisticated 3-d images. So he could build and understand and process elaborate block structures and puzzles, but has a very hard time focusing and seeing a letter on a page. That's because its tougher for his eyes to "converge" on that single point, if that makes sense.

My son had a vision therapy eval a few weeks ago. I was told he has convergence issues and will get a report soon. One thing that struck me was how much more expensive, for no apparent reason, the eval was than others we have done -- ie speech and OT evals way less expensive. The price seemed to come out of thin air. We had to do the eval over two sessions and wasn't entirely effective bc our son is in the middle of a pandas flare.

Wow, that's exciting to see a story about progress right away! Also hear you on the fear abu things getting worse before they get better. Things are *improving* with our son through abx but he's still not where he should be. It's easy to say well we can manage like this, who wants to deal with something worse. Of course then we have a flairup and not doing it doesn't feel like an option.

Thank you for the responses. Its encouraging to hear that people got their kids back with the IVIG. We're very, very eager for that to happen with our son.

How did you know your child had yeast that needed to be treated?

done

Hi -- tried you again! Wanted to ask you a couple of questions without clogging up the forum:)

Thank you for your response -- I tried to send you a pm but the system did not allow it to go through...

Hi tolerated it fine -- how do you know he has a yeast outgrowth? He did not take a same time -- first the clindimyncin, then the rizfampin.

Hi -- I know this is covered in other threads, but I'd like to hear some feedback on Ivig. It seems the results are mixed -- for some it doesn't help, for some you have to do it more than once. Does it ever actually solve the problem? My ds has been on a variety of abx since mid march, as well Asia steroid blast, with small progress. Also, beside the cost, any health risk downsides?

Out of curiosity, why do you think they aren't safe? My son did two weeks clindimycin, 1 week rifampin

My DS had a decent reaction to rifampin -- he has been on the following meds since mid march (not all at once, obviously) -- augmentin, steriod blast, clindimicin, rifampin, augmentin, and now cefindir. The rifampin and cefindir have been the most effective. Id have stayed on rifampin longer if our doctor said was ok...

We did genetic testing with our DC -- for us it was generally a waste of time, but relatively not a big expense for us compared to other waste of time interventions we tried. It was done in our doctors office, a simple swab on our DC's gums several times (and i imagine if your child is down this road, they have endured more unpleasant and invasive medical interventions than that). My insurance covered it, but it was INCREDIBLY expensive -- i think the cost (covered by insurance) was $7400 (the company was Lineagen) which boggles my mind. Since nothing came up from it, i cant say it was useful.

Hi -- my DC has a PANDAS dx, and has had a language disorder dx (mixed expressive receptive language disorder) for years. After a recent PANDAS outbreak, he has essentially stopped talking -- or really just whispering. Anybody have any thoughts on how to stimulate language after PANDAS? Speech therapist ask if the PANDAS has had an impact on his oral motor skills since speech production is neurologically based. The antibiotics/steroid treatment is slowly minimizing the ocd outbreaks, but language hasn't come back.