kimwal

Hello. I have not been on here in a very long time. I read your post. Sounds very familiar. My son is 18 yrs old, with TS, OCD, and ADHD. He just graduated from HS I am so VERY proud to say. Has the road been easy! No. But well worth everything to have seen him graduate. Your son sounds like mine was at that age. VERy,, very hyper. The hyper/impulsiveness, sounds like the ADHD, the rages, tantrums could easily be OCD. My son had a routine, when that routine was interupted all ###### would break loose. his OCD would cause him to not be able to adjust to changes well at all. Vacations were torture for us. Bipolar seems to be the new dx right now. One doctor we saw tried to dx my son with it. We even put him on lithium hoping for some positive change. Nothing. I then flew my son to Baylor Univ. in Texas. Best thing we ever did. They have a movement disoder clinic there. Best neuro. EVER!!! He said son did not have bipolar. My suggestion. take your son to get a full evalution. Get correct diagnosis. I dont want to sound negative, but I did every single diet, nutritional supplements, vitamin shakes, IVIG, chelation therapy, steriods for possible PANDAS. Nothing significant changed, Spend thousands of dollars trying to help him thru diet, natural ways. Im not say dont try those things. Just do your research. I saw where you were in Atanta. We live about 2 hrs from there in auburn, ala. What docotors did you see there?? There is a good neuro in Atlanta at emory. If you want to contact me, to discuss doc. or if you have any questions I will be glad to do what I can. Been there done that kind of thing. my email is kimwal07@gmail.com, or on FB Kim Corley Walters. those will be a better way to get in touch. Good luck!

Hello. I have not been on here in a very long time. I read your post. Sounds very familiar. My son is 18 yrs old, with TS, OCD, and ADHD. He just graduated from HS I am so VERY proud to say. Has the road been easy! No. But well worth everything to have seen him graduate. Your son sounds like mine was at that age. VERy,, very hyper. The hyper/impulsiveness, sounds like the ADHD, the rages, tantrums could easily be OCD. My son had a routine, when that routine was interupted all ###### would break loose. his OCD would cause him to not be able to adjust to changes well at all. Vacations were torture for us. Bipolar seems to be the new dx right now. One doctor we saw tried to dx my son with it. We even put him on lithium hoping for some positive change. Nothing. I then flew my son to Baylor Univ. in Texas. Best thing we ever did. They have a movement disoder clinic there. Best neuro. EVER!!! He said son did not have bipolar. My suggestion. take your son to get a full evalution. Get correct diagnosis. I dont want to sound negative, but I did every single diet, nutritional supplements, vitamin shakes, IVIG, chelation therapy, steriods for possible PANDAS. Nothing significant changed, Spend thousands of dollars trying to help him thru diet, natural ways. Im not say dont try those things. Just do your research. I saw where you were in Atanta. We live about 2 hrs from there in auburn, ala. What docotors did you see there?? There is a good neuro in Atlanta at emory. If you want to contact me, to discuss doc. or if you have any questions I will be glad to do what I can. Been there done that kind of thing. my email is kimwal07@gmail.com, or on FB Kim Corley Walters. those will be a better way to get in touch. Good luck!

Hello. I have not been on here in a very long time. I read your post. Sounds very familiar. My son is 18 yrs old, with TS, OCD, and ADHD. He just graduated from HS I am so VERY proud to say. Has the road been easy! No. But well worth everything to have seen him graduate. Your son sounds like mine was at that age. VERy,, very hyper. The hyper/impulsiveness, sounds like the ADHD, the rages, tantrums could easily be OCD. My son had a routine, when that routine was interupted all ###### would break loose. his OCD would cause him to not be able to adjust to changes well at all. Vacations were torture for us. Bipolar seems to be the new dx right now. One doctor we saw tried to dx my son with it. We even put him on lithium hoping for some positive change. Nothing. I then flew my son to Baylor Univ. in Texas. Best thing we ever did. They have a movement disoder clinic there. Best neuro. EVER!!! He said son did not have bipolar. My suggestion. take your son to get a full evalution. Get correct diagnosis. I dont want to sound negative, but I did every single diet, nutritional supplements, vitamin shakes, IVIG, chelation therapy, steriods for possible PANDAS. Nothing significant changed, Spend thousands of dollars trying to help him thru diet, natural ways. Im not say dont try those things. Just do your research. I saw where you were in Atanta. We live about 2 hrs from there in auburn, ala. What docotors did you see there?? There is a good neuro in Atlanta at emory. If you want to contact me, to discuss doc. or if you have any questions I will be glad to do what I can. Been there done that kind of thing. my email is kimwal07@gmail.com, or on FB Kim Corley Walters. those will be a better way to get in touch. Good luck!

Hello. I have not been on here in a very long time. I read your post. Sounds very familiar. My son is 18 yrs old, with TS, OCD, and ADHD. He just graduated from HS I am so VERY proud to say. Has the road been easy! No. But well worth everything to have seen him graduate. Your son sounds like mine was at that age. VERy,, very hyper. The hyper/impulsiveness, sounds like the ADHD, the rages, tantrums could easily be OCD. My son had a routine, when that routine was interupted all ###### would break loose. his OCD would cause him to not be able to adjust to changes well at all. Vacations were torture for us. Bipolar seems to be the new dx right now. One doctor we saw tried to dx my son with it. We even put him on lithium hoping for some positive change. Nothing. I then flew my son to Baylor Univ. in Texas. Best thing we ever did. They have a movement disoder clinic there. Best neuro. EVER!!! He said son did not have bipolar. My suggestion. take your son to get a full evalution. Get correct diagnosis. I dont want to sound negative, but I did every single diet, nutritional supplements, vitamin shakes, IVIG, chelation therapy, steriods for possible PANDAS. Nothing significant changed, Spend thousands of dollars trying to help him thru diet, natural ways. Im not say dont try those things. Just do your research. I saw where you were in Atanta. We live about 2 hrs from there in auburn, ala. What docotors did you see there?? There is a good neuro in Atlanta at emory. If you want to contact me, to discuss doc. or if you have any questions I will be glad to do what I can. Been there done that kind of thing. my email is kimwal07@gmail.com, or on FB Kim Corley Walters. those will be a better way to get in touch. Good luck!

Hello. I have not been on here in a very long time. I read your post. Sounds very familiar. My son is 18 yrs old, with TS, OCD, and ADHD. He just graduated from HS I am so VERY proud to say. Has the road been easy! No. But well worth everything to have seen him graduate. Your son sounds like mine was at that age. VERy,, very hyper. The hyper/impulsiveness, sounds like the ADHD, the rages, tantrums could easily be OCD. My son had a routine, when that routine was interupted all ###### would break loose. his OCD would cause him to not be able to adjust to changes well at all. Vacations were torture for us. Bipolar seems to be the new dx right now. One doctor we saw tried to dx my son with it. We even put him on lithium hoping for some positive change. Nothing. I then flew my son to Baylor Univ. in Texas. Best thing we ever did. They have a movement disoder clinic there. Best neuro. EVER!!! He said son did not have bipolar. My suggestion. take your son to get a full evalution. Get correct diagnosis. I dont want to sound negative, but I did every single diet, nutritional supplements, vitamin shakes, IVIG, chelation therapy, steriods for possible PANDAS. Nothing significant changed, Spend thousands of dollars trying to help him thru diet, natural ways. Im not say dont try those things. Just do your research. I saw where you were in Atanta. We live about 2 hrs from there in auburn, ala. What docotors did you see there?? There is a good neuro in Atlanta at emory. If you want to contact me, to discuss doc. or if you have any questions I will be glad to do what I can. Been there done that kind of thing. my email is kimwal07@gmail.com, or on FB Kim Corley Walters. those will be a better way to get in touch. Good luck!

Google Movement Disorders Clinics in NY. I did and several came up but wasnt sure which was closest to you. Some may come up under Parkinsons and Movement Disorder Clinic. they treat parkinsons and TS. We go to something simiiar in Atanta, Ga. and have seen a doc in Tx . They are the best. I prefer seeing neurologist than psy. And thats what u would probably see. These clinics specialize in Ts. I have heard of a great doc. name in NY but cannot remember his name( sorry) but google and see wht u find! good luck!

Nancy, just read all of the post u had. We did try all the allergy things, removal of foods, milk, dairy, wheat, sugar, you name it we did it. Bought all the nutritional shakes that were supposed to 'help", Removal of things with chemicals in the home, candles, detergents, but in the end and THOUSANDS of dollars later it did not work for my son. Would I do it again,, yes. Because The ones tht I see on here that it has helped, I would never tell anyone not to in case their child fell into the ones that it did work for. However, you do have to be very careful. All doctors always say milk, dairy out of the diet first. Always. Learn as much as you can about this. We did so many nutritional supplements that my child was taking so many pills a day from this. Also, I think we must consider our childrens quality of life. We had to go back to reg. meds but my son and I were spinning our wheels trying to go the other route. And it was starting to damage his self-esteem which can be hard to get back. Be open about it all-both ways, natural or traditional. )

Hi , my name is Kim. I saw you post about others living in Atlanta tht have children with TS. I do not live in Atlanta but we see a doctor that lives there. His name is Dr. Jorge Juncos and he is at Emory. He is over the Parkinson and Movement disorders( ts). We live in Auburn, ALa, (abt 2 hrs away). My son is 17. was dx at age 5. We have seen MANY doctors. psy. you name it. My favorite neurologist is in Texas at Baylor. We were flying out to see him a couple of times a year for him to treat our son since his TS is so bad. He is a world renown neuro. But it got way too expensive as we were needing to go more than 2x a year. Anyway. If you have any questions I feel your pain for you and your child. I hope he is doing better! Kim

Hi , my name is Kim. I saw you post about others living in Atlanta tht have children with TS. I do not live in Atlanta but we see a doctor that lives there. His name is Dr. Jorge Juncos and he is at Emory. He is over the Parkinson and Movement disorders( ts). We live in Auburn, ALa, (abt 2 hrs away). My son is 17. was dx at age 5. We have seen MANY doctors. psy. you name it. My favorite neurologist is in Texas at Baylor. We were flying out to see him a couple of times a year for him to treat our son since his TS is so bad. He is a world renown neuro. But it got way too expensive as we were needing to go more than 2x a year. Anyway. If you have any questions I feel your pain for you and your child. I hope he is doing better! Kim

My son is 17 and uses meds. They have been a lifesaver for him. I did try all the diets , supplements, vitamins, heavy metal testing, metal detoxing, IVIG, you name. And thousands of dollars later here we are again doing the meds. I really think QUALITy of life is also very important. Our kids need some relief. But I needed to know I tried everything "safe" that I could for my son. But I spent LOTS of money on all these other things. I'm not saying dont try it. SOme have had results. But I am just telling you from our experience. ANd my son was diagnosed at the age of 6. I know its a very hard decision. Good Luck. Kim

no Feingold is not worth it.

Funny you should call the"uges" because thats what my son always calls them. He does blow big time after school . As he has gotten older he has gotten a little better at holding them in but he does let them out when he gets home. Along with the storms, tantrums, whatever you would like to call it. It is very hard for them to hold it in all day and when they get home it is their safe place. My son will also have his tics or "urges" at the power of suggestion. When people would sometimes say or mention things it would give him the "urge" to do or say it. Ex. When he was in 5th grade his teacher asked the students to pray for a friend of hers that was in a car wreck and had her eye smashed /hurt very badly. Well my son comes home having the urge to poke on his eye after hearing that story. The urge is like they say having such a strong urge or feeling to do something and the more attention we bring or talk about it the more we will make them think about it. Good luck, kim

My son ( I think probably has Pandas) however his neurologist does not really believe in this. He is a great neuro at Baylor University in Texas. However I am not so sure. He did have the strep before strong and abrupt tics started. But tics have never gone away completely. But one of my concerns is that he gets sick alot. I think his immune system is very low. He catches everything that goes around school. And he has had the swine flu too. What should I do. Just pump him full of vitamins>>> What kind? Just the regular ones? He is almost 16 yrs. weighs 150lbs/ Thanks, kim

Does insurance cover the testing needed for possible pandas?