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technodad

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Everything posted by technodad

  1. Gahanna, OH would be about two hours from me. Do you know anyone who went to see him? If so how did it go? I am kind of looking for some personnel referrals. If two or three people can tell me that the best doctor in the Midwest is in Chicago and they saw him/her and that they helped their child reduce their symptoms significantly I will drive there. Likewise if a couple people say they have seen a doctor in Columbus Ohio and they helped their child I would go there. Can anybody give a recommendation on a doctor?
  2. Chemar, I have been reading a lot on this forum and would be curious as to what you think of my son's situation. You seem to be very knowledgeable about TS. I thought my sons jerking tics may have been getting better for a couple days, but the first day of school made them explode for him. He was jerking just about everything tonight. I mentioned a lot of things above that could be possible triggers, but nothing really that I could pinpoint happened exactly two weeks ago when they really started getting bad with the jerking. I do feel he is going through a growth spurt as he has been eating a lot more than usual and extra tired. He does seem to be worse when excited like playing a game as opposed to just watching TV by himself I have posted on the Pandas board for info on doctors in my area. Should I pursue that? I also got some info on TMJ doctors in my area (he has a noticeable underbite). Should I pursue that? What do you think I should pursue first? If I start giving him magnesium how long until you may see results in less tics?
  3. Hi, I was wondering if someone can recommend a Pandas doctor to diagnos and treat in Ohio area if my son has Pandas. I live between Toledo and Dayton. Anywhere in Ohio would work. Maybe Southern Mich, Indiana or Easton Illinois would work. If anybody has been treated successfully by a doctor in these areas and could reccommend one that would be great. Chicago is about 4.5 hours, Columbus Ohio is about 2 hours. Obviously closer is preferred, but would drive farther if doctor's expertise is that much greater.
  4. I posted this on TS forums and someone advised I may want to post over hear as well. My son just turned 6 and this last week had an explosion of tics. Throat clearing, grunting, head jerking, stomach jerking, looks almost like he has the hiccups that won't stop. I don't know where to start. He has always had made some noises while eating off and on for a few years, but never was to concerned with it as my older daughter did it a little to, but she grew out of it. He and she also display some minor OCD like after showing not wanting to be touched by someone who has yet to take their shower for the night because they are clean and person who has not takin it yet is not. They get that from seeing me and my wife act the same way sometimes about being clean. I watch them pretty close as I was diagnosed with tourettes about 35 years ago when I was 3, fairly mild case. Some tics would get worse some days. Not to bothersome now, but still bothered by the OCD (another reason I am freaking out about my son). I have been reading these forums for a couple days and now think what if it is Pandas? He just got his tonsils removed 9 months ago. When he was two he got tubes put in his ears for ear infections. That helped with the ear infections, then he started getting sore throats to the point where every two weeks he would be getting 104 fevers and be up all night. I think he tested positive may have tested positive for strep at least once, don't remember so much just know his throat was infected a lot and had bad fevers. However, I never noticed any difference in tics when he got the sore throats or when he was taking antibiotics. So last fall we got his tonsils out. Doc said they were infected when removed. He said with a lot of kids the tonsils never really clear all the way up and kind of stay infected all the time even though they don't show symptoms. Well he recovered well from the tonsilectomy (had adnoids removed also) and last winter was much better. I think he only has gotten 1 or two sore throats since compared to about every 2-3 weeks before removal. I did not notice any changes in tics or behavior until last couple weeks (9 months after). Only tics he had shown until this last week were noises when eating or maybe watching TV. They seemed to only get worse couple days before Christmas, Easter, vacation. Which seemed normal to me as I get worse when I am excited about something. Now 9 months later the noises are 10 times worse and the jerking/hiccuping is terrible, he is urinating frequently, and a lot more hyper. It did not happen over night. Seemed like the noises got worse first only when eating, then some more when not eating over the course of the last 2 weeks. Now the last 2-3 days is when the jerking started and the noises ramped up significantly. This last week it is like he changed into a different kid. Since I was diagnosed with TS, I figured he inherited from me, however maybe I have Pandas also? When I was a kid I had tonsils removed because of chronic sore throats and I continued to get a lot of sore throats into my 20s. Now I generally only get flu once and some sinus infections a couple times per year. Now rarely get a sore throat. Things that made/make it worse for me as mentioned was being excited like Christmas morning, going to ballgames that I am excited about, video games (for this reason I avoid them), driving, and eating. I don't know what to pursue first. Should I look into Pandas? As I mentioned above I never noticed him getting worse when he had strep or better when he took antibiotics. Also he got high fevers when he had his sore throats, on the Pandas website it says most people who get pandas did not get high fevers or bad symptoms other that the tics. Should I just wait and maybe see if he is just excited about his first year of Kindergarten starting this week? I have been trying to look for potential triggers over the last month or so. He has been swimming more (about half in salt pool and have in traditional pool). We got two cats in June which he plays with a lot. Fertilized grass in June. We were sprayed for ants in July. How long after being exposed to a trigger until symptoms flare?
  5. I posted this earlier today but for some reason has not shown up yet. So if other appears please delete the other one. My son just turned 6 and this last week had an explosion of tics. Throat clearing, grunting, head jerking, stomach jerking, looks almost like he has the hiccups that won't stop. I don't know where to start. He has always had made some noises while eating off and on for a few years, but never was to concerned with it as my older daughter did it a little to, but she grew out of it. He and she also display some minor OCD like after showing not wanting to be touched by someone who has yet to take their shower for the night because they are clean and person who has not takin it yet is not. They get that from seeing me and my wife act the same way sometimes about being clean. I watch them pretty close as I was diagnosed with tourettes about 35 years ago when I was 3, fairly mild case. Some tics would get worse some days. Not to bothersome now, but still bothered by the OCD (another reason I am freaking out about my son). I have been reading these forums for a couple days and now think what if it is Pandas? He just got his tonsils removed 9 months ago. When he was two he got tubes put in his ears for ear infections. That helped with the ear infections, then he started getting sore throats to the point where every two weeks he would be getting 104 fevers and be up all night. I think he tested positive may have tested positive for strep at least once, don't remember so much just know his throat was infected a lot and had bad fevers. However, I never noticed any difference in tics when he got the sore throats or when he was taking antibiotics. So last fall we got his tonsils out. Doc said they were infected when removed. He said with a lot of kids the tonsils never really clear all the way up and kind of stay infected all the time even though they don't show symptoms. Well he recovered well from the tonsilectomy (had adnoids removed also) and last winter was much better. I think he only has gotten 1 or two sore throats since compared to about every 2-3 weeks before removal. I did not notice any changes in tics or behavior until last couple weeks (9 months after). Only tics he had shown until this last week were noises when eating or maybe watching TV. They seemed to only get worse couple days before Christmas, Easter, vacation. Which seemed normal to me as I get worse when I am excited about something. Now 9 months later the noises are 10 times worse and the jerking/hiccuping is terrible, he is urinating frequently, and a lot more hyper. It did not happen over night. Seemed like the noises got worse first only when eating, then some more when not eating over the course of the last 2 weeks. Now the last 2-3 days is when the jerking started and the noises ramped up significantly. This last week it is like he changed into a different kid. Since I was diagnosed with TS, I figured he inherited from me, however maybe I have Pandas also? When I was a kid I had tonsils removed because of chronic sore throats and I continued to get a lot of sore throats into my 20s. Now I generally only get flu once and some sinus infections a couple times per year. Now rarely get a sore throat. Things that made/make it worse for me as mentioned was being excited like Christmas morning, going to ballgames that I am excited about, video games (for this reason I avoid them), driving, and eating. I don't know what to pursue first. Should I look into Pandas? Should I just wait and maybe see if he is just excited about his first year of Kindergarten starting this week? I have been trying to look for potential triggers over the last month or so. He has been swimming more (about half in salt pool and have in traditional pool). We got two cats in June which he plays with a lot. Fertilized grass in June. We were sprayed for ants in July. How long after being exposed to a trigger until symptoms flare?
  6. A salt water pool is not chlorine free. It still uses chlorine to sanitize the pool. Only difference is the salt generator makes the chlorine as opposed to someone manually putting the chlorine in by the gallon or using the tablets. A salt generator creates chlorine by giving the salt water a small electric charge inside the salt cell. Chlorine levels in salt pools are supposed to be maintained at 1-3 ppm just like traditional chlorine pools. If your son or daughter tolerates salt pools better it may be because there is less other junk put in pool that are contained in the tablets for traditional pools.
  7. What kind of Magnesium? Can you buy it at Walmart? And how much is okay to give to a 6 year old?
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