Godsgifts

We are fairly new to this and so I hope this question doesn't seem ignorant. We still have lots of questions and it seems that there are so many that I forget to ask them all during our doctor's appointments. Okay so DS12 has had pandas symtoms for about two years now but we just got diagnosed (b/c initially it was thought that he just had OCD).He started antibiotic treatment a few months ago which he did great on initially, but has since had returning symptoms now that they've changed his abx to Zithro. He has just started the first stages of going through puberty.I have read that after puberty it is much less likely for a kid to get PANDAS. But I've also read or heard somewhere that symptoms tend to taper a bit after the age of 22-24 yrs for guys, due to the maturing of the brain. Is this true? I worry about my son's future all the time and I'm hopeful that one day PANDAS will be a distant memory.I wonder if this is cureable, will it ever go away with treatment or did he suffer too long before dx and treatment that it damaged him permanately? Beth Maloney's son has given us a gleam of hope that one day my son can live a normal life without medication. So again my question is what happens after puberty? Once he reaches his mid 20's will his brain and immune system be strong enough to live without antibiotics?

We are in the same boat. DS12 had two rounds of Augmentin which did wonders for him. Symptoms 95% gone! He's now been on Azithromycin for 2 weeks and gradually over the last two weeks his symptoms have started to creep back. Every day it seems they're getting worse and the Azithromycin seems as if it's not very effective and is also causing him stomach issues. He's also got a T & A in a week and I'm scared to take him off the antibiotic because I've read where other PANDAS parents have said that it was crucial that the tonsils be "sterilized" with antibiotics before, during, and after the prodecure. I've emailed his doctor letting him know whats been going on so hopefully he'll change his abx or let us know what to do.

I want to start by saying I've got three children DD7 (no PANDAS) DS9 (no PANDAS) and DS12 (who has PANDAS). My DS12 is scheduled for a T&A June 5th. He's on Azithromycin right now and recently finished a 10 day dose of Augmentin. Friday my younger daughter came home with strep throat.She's now being treated. It is going around all the schools in our district and now in my home! Also other kids that ride my children's bus have come down with strep as well as two other relatives.I'm worrying myself to death thinking that DS12 might get strep and have a flare up before we can get him in for the T&A. Should I try to get all my immediate family members on preventative antibiotics? I've been like a crazy person trying to wash and sterilize everything in my house but I'm worried to death that they'll pick it up at school. They have only one and half weeks left of school and DS12 has missed so much due to the PANDAS I'm trying to get him through the last week and a half without missing.Will the Azithromycin prevent him from getting strep? Any knowledge or advice is greatly appreciated.

Ds12 was on Zithro a few months ago for an upper respiratory infection. I'm thinking he only took it for 5-6 days though. BUT it did not help his PANDAS exacerbation at all. When I talked to the doctor (who dx PANDAS) about it, he told me that many times Zithro will not penetrate deep enough into the tonsils to kill all of the strep. He explained that the tonsils had deep pockets and trenches where the strep can hide and that ds12 needed something stronger that will eradicate the strep not just stop the bacterial growth. I'm new to all of this as well, so correct me if I'm wrong but that is how I understood him.

We've just been dx around 2 weeks ago. It's all pretty new to us. Our ds12 has had symptoms that started about 2 years ago, but more OCD rituals than tics. The tics only started a few months ago and with full force. He was put on a 10 day dose of Augmentin about 7 days ago and although he's doing better he still has tics and says that he also still has the bad thoughts. We are going back to see his doctor this week but were kind of getting discouraged and wondering if this is really PANDAS since the ax haven't helped as much as we were expecting. Is this normal with PANDAS? And could my continual colds and allergies be hindering his recovery? BTW he also has allergies and it's Springtime which is never good for allergies.Anyone have any advice, or experience with this?

I'm not sure about why your son started doing the throat clearing but I can tell you that I had asthma and allergies as a child and was very allergic to cats. Just being around a cat would make my eyes red and itchy and I would be so sick sneezing, with a runny nose, sometimes even having a full blown asthma attack. It was very disappointing because I loved our cats.You can take your child to an allergist and they can test him out for different types of allergies that he may or may not have.

My 12 yr old son was recently diagnosed with PANDAS. The Dr. Says that hes seen much success from tonsillectomy. He just started a 10 day dose of ax. Hes been suffering off and on with this for over a year now and just now getting dx and ax. He just started showing the first signs of puberty. I'm wondering if he will be permanately damaged by this or if there's hope for my son to recover and live a normal life. Also my husband and I stay sick with allergies and chronic sinus infections so I'm worried that we are going to infect him or prevent his recovery. I bought him some oil of oregano b/c I read that it fights off bacteria and viruses. Has anyone had success with Oil of Oregano? We are scheduled to see an ENT May 1st but I'm suffering from a cold right now and it seems that his symptoms have gotten w orse since my cold. Any input would be greatly appreciated.