yospinner

I also recently discontinued Zithromax for Mycoplasma with my dd10 because I thought it was upsetting her gut (even with with probiotics). Although I thought it worked wonders in the first few days irritabiity and her tics crept back in. I have since heard others say that Zithromax didn't work for their children (didn't help or they also couldn't tolerate) and that Biaxin or another name clarithromycin worked better. I certainly don't have any answers yet but maybe trying another abx might be worth a try. PLease keep me posted.

I now see that the info I posted was for Chlamydophila pneumonia not mycoplasma.

Thanks for sharing. Please keep us posted. I might buy the article as well.

I suggest you see a new dr. There is no harm in labs.

Patrix - Mycoplasma is going around and high fever is often a symptom. I am not an expert but Augmentin might not be abx of choice. if mycroplasma. Not sure what abx your son is using.

Update - After positive mycroplasma blood test my daughter started Zithromax. By day two she was dancing around saying she never felt better. I was hopeful of results but yes....too good to be true. By day three irritabiity set in and the days that follow her anxiety and tics increased. I do feel like I see more glimpses of her relaxed happy self. I had a phone consult with Dr. T in NJ. He doubled her dose. We will see.

Was there a test that showed she was deficient in folic acid or symptoms that prompted you to give folic acid? Can too much folate be harmful if say you just try it?

I posted below asking about Mycroplasma and there were some helpful replies. http://www.latitudes.org/forums/index.php?showtopic=17067

This topic is very interesting. My Ped. didn't know what to make of the positive Mycroplasma in blood work. He gave me antibiotics at my request. I certainly don't understand exactly what is happening in our children and I am surprised the doctors don't understand what implications a positive test has. I have learned so much from following posts here I feel the need to continue with follow up in case it helps others. I am new to this and my daughter is complex. The simple version...My daughters behavior and tics were slowing declining over the past weeks. Blood work reported positive mycroplasma although my daughter does not have any typical sick symptoms. Monday - dd10 anxiety so high she didn't go to school. Said her brain would explode because of loud classroom and being forced to concentrate. Started Zithromax that afternoon. IT took at least 30 min to get her to take it because of fear of throwing up due to bad taste. Tues morning - there was a little anxiety about going to school but she went. Picked her up and she was happy as a clown. She said it was the first time since kindergarten that she didn't have a headache at school(maybe an exaggeration). Although, I could tell that she had been licking her lips obsessively as there was a ring around her mouth. Tues. afternoon second dose and she took it with out a second thought. By evening she was dancing around yelling, "Mom we did it - Voldemort(Harry Potter evil character) is gone." Voldemort is the name she gives to her anxiety and bad thoughts. Tics still present. I do think allergies are also playing a part in lip licking and tics. When I give her Zyrtec 24 hr.it seems to help but only for about 5 hours. I feel it is too early to determine how she is but can one-two doses really turn a child around. I am afraid to even post this. I have 10 day dose so I will post at the end. Then where do I go from here? I hope Dr. T has answers.

Thanks Ladies!!!! The doctor gave me 10 days of Zithromax and basically told me he doesn't know what to do. I maybe should have insisted on Biaxin but I will see how she does on Zithromax. She hates the taste and it is a battle. Oh...anxiety. I do have a call scheduled with Dr. T. I asked her Ped. if he would maybe do a conference call with him but instead he passed me off to a psychiatrist who he says specializes in difficult cases. Hmmmm, yet another doctor. Beth

Currently, my daughters symptoms are only increased facial tics and behavior decline. She has all the classic symptoms listed for PANS. Sept. 30 she got sick several days with a fever - strep was neg. Tics started soon after along with severe anxiety and fixations. Now months later I finally got someone to do blood work for Mycroplasma as I heard this could also be a factor. This is not her first episode but the first with tics and the first since I made the connection with her being sick. I have recently found a doctor who is open to this diagnosis but he has no experience with treatment. I got an appt. Tuesday and will ask for antibiotics. After hearing your remarks I think I should reach out-of-state. I am in Minnesota. I am scheduling a phone consult with Dr T unless someone has a better suggestion. From what I have read Azithromyacin or as posted here Biaxin XL would be good place to start. My dd10 is 59lbs. Jill what dosage did your girls use if you don't mind me asking? My dd also has gut problems and is on probiotics. Is there anything else I can do to ease the consequences of antibiotics? Thanks again. Hoping the best for your children. - It is frustrating navigating the health system.

Jill, thank you! I am so gratefull for all the knowledge on this board!

Can anyone share your wisdom on Mycroplasma? Here are some of my daughters blood test results. M Pneumonae AB, IGM, BY IFA Positive. M Pneumoniae AB IGG, S - 4.2 range is <.91. MPneumoniae AB, IGM, S 2.12 - range <.91. IGG subclass IGG3 - 115 range 11.5-105.3. Does this mean she has an active infection or just that she has had an infection in the past? Do these numbers mean anything important in regards to PAN treatment? If so what have some of you done? Several weeks before I get in to see her doctor. Thanks for any wisdom.

Anyone know of a doctor who will diagnose and treat PANDAS in Minneapolis? Help very much appreciated.