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Our son has CVID and Lyme et al. He has been treated since the age of 6 and is now 13 years old. All notable PANS/Lyme symptoms were in remission. He has been getting IVIG for almost 3 years. He still had some fatigue and we were unsure if it was from active EBV (probably exposure from IVIG) or lingering Lyme. All his subclasses normalized with only his subclass 3s being only slightly positive. He was recently denied IVIG coverage due to guidelines changing at age 13. He was off IVIG for 10 weeks and as a result went deficient in his 1s, 3s and almost deficient in total serum. His immune function dropped in half. Thankfully, he got approved for another year. His LLMD believes it might be a lifetime condition for him but minimally will need another 3 years of IVIG. We are bummed his immune system could not sustain without IVIG but still hold out hope there is total recovery. I just wanted to add recovery is a very slow process. However, our son has lived a very normal life and free on PANS symptoms for a very long time. Most recently, he broke out in a Bartonella rash on his back and hips after many years of treatment and no obvious symptoms. Game changers for our son was discovering the chronic infections and viruses.... he had many. Treating aggressively for those infections and viruses. Low dose IVIG for CVID and IV Ozone. Hope our story helps.