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New eBook: Your Child Has Changed; Should You Consider PANDAS?


Have you seen the ACN Latitudes PANDAS eBookOur helpful book is a 37-page primer in a friendly question & answer format.  This eBook contains useful information to understand the symptoms of PANDAS, how it is diagnosed (including lab tests), the different types of treatments, approaches for prevention, and how to find the help and support that you need. Learn more

 


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Doctors by State


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#1 suzan

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Posted 01 January 2010 - 09:45 AM

This consolidated list by State is a list of doctors that was taken from the original great thread (see link) about doctors that parents have had experiences with. Refer to the original post for more detailed comments from parents who have children with PANDAS.

http://www.latitudes...;hl=doctor list

I don't update this list any longer but I know the link above still gets additions posted to it.

Arizona

Dr. Dinesh Talwar, Pediatric Neurologist
University Medical Center in Tucson, Arizona.

http://www.wellness....rology-assoc-md

Robert Hellmers, MD Arizona Allergy Associates (Deb. Lowe contact) – Only treats PANDAS patients (antibiotics, steroids, ivig)
Phoenix AZ 480-344-4460

Dr. Christopher Spiekerman
West Valley Office
4137 N. 108th Avenue
Phoenix, AZ 85037
(623)877-7337
http://www.dvpeds.co...ekerman_DO.aspx
VERY proactive with PANDAS and willing to discuss with other docs, He recently gave permission (actually requested) to send parents who need PANDAS help his way.


California

Nancy Mullan MD - Two parents that have PANDAS children from this and the TS forum, have been helped very successfully by this Dr.

2829 W. Burbank Blvd, Suite 202
Burbank, CA 91505
Telephone: (818) 954-9267
Fax: (818) 954-0620
http://www.nancymull....com/index.html

Dr. Brock Bernsten - Pediatrician, willing to listen and support whatever recommendations immunologist made including open IVIG order if required. Willing to do additional research but not very familiar with PANDAS
3838 California St.
San Francisco, CA
Phone: (415) 666-1860S

Frederick A. Lloyd, M.D. - Has several PANDAs patients, knows Margo Thienemann, listens well, responsive, will provide antibiotics in conjunction with other Dr. recommendation, open to IVIG prescription if recommended by another Dr.
Palo Alto Center
795 El Camino Real
Palo Alto, California 94301
Phone: (650) 853-2992

Margo Thienemann MD - Specializes in Forensic Psychiatry, Geriatric Psychiatry, Internal Medicine, Adolescent Psychiatry & Pediatric Psychiatry, Psychiatry.... OCD & Has well over 20 PANDAS Patients
900 Welch Road
Suite 207
Palo Alto CA 94304
Phone mail: 650 324 3241

Dr. Frederick Lloyd, Pediatrician - helped with diagnosis, prescribed antibiotics, did a prednisone trial, and IVIG at Lucile Packard.
Palo Alto Medical Foundation, Palo Alto

Thomas Lin, M.D.
UCLA Board Certified Pediatrician
Gave us a diagnosis when no one else could. Very friendly, easy to talk to, and seemed to know PANDAS quite well. His son is autistic and has OCD symptoms. Believes in infections other than strep causing issues too. No treatment protocol to post yet.
4634 Barranca Pkwy
Irvine, CA 92604
office: 949-681-0777
fax: 949-681-0788
www.irvinekidsmd.com
e-mail: autismmd@cox.net

Colorado

Dr. Issac Melamed, Immunologist with IVIG infusion center – very proactive and thorough
Centennial, Colorado
720-488-0331


Thomas Smith M.D. - Dr. Smith is not knowledgeable about pandas but will give IVIG if child has been diagnosed with PANDAS first is advised by another doctor on proper IVIG protocol.
Center for Cancer and Blood Disorders
The Children's Hospital, Littleton Clinic
7720 South Broadway, Suite 110
Littleton, CO, 80122
Phone 720-777-9840, Fax 720-777-9855
smith.thomas@tchden.org

Connecticut

Dr. Nancy O'Hara in Connecticut. An excellent DAN. The treatments include gluten/casein free diet, numerous supplements and neurofeedback.
http://drohara.com/i...er-Fall2007.pdf

Denis Bouboulis (an excellent immunologist) in Darien, CT one hour from NYC...
This recommendation is from this thread: http://www.latitudes...art=#entry41096
17 Old Kings Hwy South
Darien, CT 06820
Phone: (203) 655-9904
Fax: (203) 655-8948

Florida

Dr. T Murphy now in Tampa Florida. She is very good… Ped psychiatrist and sees many PANDAS and TS cases and was on the Swedo studies and does research in these areas. Great interview with Dr. Storch who is working with Dr. Murphy. He mentions her and PANDAS in the interview and how to get a hold of them. University of South FLorida
800 sixth Street South, Box 7523
St. Petersburg, FL 33701

Phone 727-767-8230
fax- 727-767-7786
email: tmurphy@health.usf.edu

Dr. Bradstreet, Dr. Rossignol and Scott Smith, PA. DAN practitioner, has two boys that have PANDAS! Tests ASO and antiDNase titers but does not believe they have to be high, treats with antibiotics, steroids as treatment and as a diagnostic tool for the usefulness for IVIG. Doctors in this practice are extremely accessible. First appt in person but most/all appts can be done over the phone. The nurses are extremely helpful and efficient. They usually return all emails within 24-48 hours
http://www.icdrc.org/

Dr. David Berger – Dan! Doc. Knows Swedo’s work, believes in PANDAS, not sure what his stance is on antibiotics but it’s worth the call if you are in his area.
3341 W Bearss Avenue
Tampa, FL 33618
(813) 960-3415 - Phone
(813) 960-3465 - Fax
http://www.wholisticpeds.com/


Jason Spielman, Psy.D. - OPEN to pandas and will give antibiotics but not IVIG or any other.
Licensed Psychologist
Director of Program Services

NeuroBehavioral Institute
2233 North Commerce Parkway
Suite 3
Weston, Florida 33326
954-217-1757 - office
954-385-3807 - fax

Georgia

Dr. Richard Wager, Pediatrician
6000 Lake Forrest Dr NW, Suite 110
Atlanta, GA 30328

Illinois

Dr. Kovacevic in Chicago was very helpful.
GRANT SQUARE MEDICAL CENTER
333 Chestnut, Suite #103
HINSDALE, IL 60521
Phone Numbers
Telephone: 630.986 1010
Fax: 630.986 1015
www.webpediatrics.com (phone consults are possible)


Iowa
No guarantees but these doctors follow the DAN! protocol. Worth calling- autism doctors are usually familiar with PANDAS.

Carolyn Walker
Prevention & Healing of Iowa
6901 Hickman Rd.
Urbandale, IA 50322
ph: 515-727-4141
fax: 515-727-4848

Jon S. Ahrendsen, M.D.
Wright Medical Center
215 13th Ave., SW
Clarion, IA 50525
ph: 515-532-2836
fax: 515-532-2523

Dr. Sasha Khosravi psychiatrist in Des Moines connected our son's "array of dots" and suspected PANDAS.

Kentucky

Chief of peds neurology Dr. Vivay Puri in Louisville KY - saw her and told us about PANDAS and invited us back the next day to be seen by Dr. Mink, a Tourette's specialist from NYC, who is NOT a pandas believer (see entire post in original thread)


Maine

Dr. Catherine Lockwood in Richmond, Maine. Though she knows little about PANDAS, was willing to and try the saving Sammy dose of Augmentin XR.

Dr. Dan Geller at Mass General 617-724-6300 (augmentin only?)

Maryland

Dr. Beth Latimer, neurologist in Maryland has been very helpful, compassionate, knowledgeable.
6420 Rockledge Dr # 2500
Bethesda, MD 20817-7837
Phone: (301) 530-9200

Dr. Azim Baig of South River Peds south of Annapolis. (give proph abx with aso titers)

Massachusetts

Dr. Dan Geller at Mass General 617-724-6300 (augmentin only?)

Dr. Robert Fuhlbrigge in Boston, MA Assistant Professor of Pediatrics(pediatric rheumatologist at Children's Hospital Boston)
Dr. Raif Geha in Boston (pediatric immunologist at Children's Hospital Boston; specializes in immunodeficiency)
Childrens Hospital Boston
Rheumatology /Fegan 6
300 Longwood Ave.
Boston ,Ma 02115
0ffice # 617 355-5727
page 617 355-6369
email robert
robert.fuhlbrigge@childrens.harvard.edu

Elizabeth TePas, MD (pediatric immunologist)
Mass General Hospital for Children/Newton-Wellesley Hospital.v

Nebraska

Dr. Stacy Houston, Doctors of Children, Lincoln, Nebraska

Dr. Koybashi, Immunologist, Omaha, Nebraska

Dr. James Nelson, Neurologist, - very helpful, diagnosed her clinically, willing to work with antibiotics and IVIG as necessary. Used to be in NC but recently moved to NE.

New Jersey

Dr. Rosario Triffileti, pediatric neurologist, Ramsey, NJ
http://pandas.yuku.com

Dr. Jyonouchi
90 Bergen Street
Newark, NJ
973 972 5779 she is an allergist/immunologist

Works out of UNJMD (University of Medicine and Dentistry of New Jersey) (Macecsko doc)

New York

Dr. Kenneth Bock in Rhinebeck, NY (specializes in integrative medicine and also a DAN! doctor)

Dr. Nira Goldstein at Downstate Medical Center in Brooklyn, NY is an ENT She has seen several PANDAS patients in her practice. She generally refers them to Max April at Weill Cornell Hospital in New York City. Dr. April appears on TV periodically in the area as an expert. Dr. Trifilletti also mention Dr. April as a good doctor in this area.

Fred Bomback MD in Hartsdale, NY Treaded with Cefdinir and a vitamin combo of Cholene/Isolene

North Carolina

James, Lee, MD Piedmont Neuropsychiatry - 1 hr 30 min from Charlotte, NC, does not bill insurance but is an important resources in the area http://www.piedmontn...psychiatry.com/

Dr. Mauve O'Conner - Carolina Asthma & Allergy - Charlotte NC (also office in Concord) - she is very interested and curious. Willing to review all medical records and work with other doctors in a team approach (works with Dr. Corbier)

Dr Branner - Pediatric GI specialist - great guy, PANDAS believer, really did good work to figure out stomach issues. Did not dismiss immediately as anxiety. Found Peptic Ulcers - Charlotte NC - Presby Pediatric GI.

Dr. DeeDee Russell - not a PANDAS person, but excellent with ERP therapy for kids and helping with anxiety. Cornelius NC

Dr. Pat Gammons - all the doctors at Duke, in PCAAD. Again, not really PANDAS believer - but not skeptic either. Just wants to help on the therapy side, and did amazingly well working on the OCD.

Northeast Pediatric Neurology in Concord... both neurologists treat PANDAS (Dr. Corbier and ??) Very busy office, takes a long time to get an appt and the appointments tend to run late. Dr. Corbier really knows what he is doing and he gets that light bulb look and has ideas of what to look for. Not big on treatment and with low titers he dismissed the idea at first.

Chris Jenny PA - Dan! Doctor in Charlotte, PANDAS knowledge, is aware of Dr. Cunningham's tests and research. Will treat with antibiotics but not agressively. Helpful as backup for issues related to diet, supplements, yeast, behavior.....

Eliana Perrin, MD Professor of Pediatricis Chapell Hill (did some of the origional work with Swedo) - NOT SEEING PATIENTS AT THIS TIME.

Ohio

Dr. Nevada Reed at Kids Link in Akron OH treats PANDAS She does not accept insurance. http://www.kidslinko...ily/index.shtml

Glenn J. Trippe, M.D., F.A.A.P.
"very interested in learning and treating this.. ....used longterm antibiotic without me even mentioning it.. He is the one who introduced me to PANDAS and told me what it was.. and who is treating my DD at this time."
New Beginnings Pediatrics
Norwalk, Ohio
http://nbpeds.com/glenn-trippe

Pennsylvania

Second hand info about the following doctor, he does do IVIG. He is in Philadelphia.

Agustin Legido
St. Christopher's Pediatric Associates
Chief, Section of Child Neurology
Professor of Pediatrics and Neurology
Dept of Pediatrics
Erie Avenue at Front Street
3rd Floor ACP, Suite 3314
Philadelphia, PA 19134
Tel: 215-427-5470

Also in Reading: Only 1 day a month

Reading Hospital Medical Center
Deptartment 132
PO Box 16052
Reading, PA 19612-6052
610-988-9447

Dr. Josephine Elia at Children’s Hospital
Will discuss the course of the illness; conservative with antibiotics or pex/ivig
.

Tamar Chansky, Ph.D. is the Founder and Director of the Children’s Center for OCD and Anxiety
Philadelphia, PA – website: www.worrywisekids.org
Liberal with antibiotics and open to discussing.

Tennessee
Dr. Daniel B. Kalb
615-791-9784
csfmed.net

Texas

Fort Worth, TX
Dr. Mark Mazade, Pediatric Infectious Disease Specialist with Cook Children's Medical Center
800 7th Ave Fort Worth, TX 76104-2704 - (682) 885-1485
Seems gentle and kind, very pleased with him.

Arlington, TX
Dr. Wilfred Raine, Pediatrician in the Cook Children's group.
848 W. Mitchell St. Arlington, TX 76013 - (817)-795-8498
Dr. Raine is friendly, compassionate, supportive and was the only (of many) pediatricians in Arlington who took me seriously.

Virginia

Dr. Susan Perlmutter in Northern Virginia is knowledgeable, very helpful in diagnosis, limited medical intervention available.

Dr. Julie Lewis, The Ross Center for Anxiety, psychologist - Very helpful in devising strategies and helpful with the school as well.

Pediatrician, Dr. Julie Fortner - Someone who will LISTEN! Staff (receptionist and nurse) extremely sympathetic, warm and friendly.
http://www.richmondp...f...t=1&Child=1

Pediatric Infectious Disease Specialist, Dr. William C. Koch
http://www.vcuchildr...g/?id=716&sid=4

Washington

Dr. Tracie O'Neill, Pediatric Associates in Issaquah, Washington - She is fantastic!

Dr Cynthia Keller and Dr Sharon Hemplar at Redmond Pediatrics in Redmond Nr Seattle, Washington is treating PANDAS Patients with Antiobiotics, Steroids IVIG and PEX

Dr. Kim Kacoroski, ND is treating homeopathically in Kirkland, WA

Dr. Judyth Reichenberg- Ullman and Robert Ullman in Edmonds, WA have cured cases homeopathically

Dr Niran Al-Agba at Silverdale Pediatrics – Learning about PANDAS and willing to treat with long term antibiotics and treating quickly w/o waiting for positive strep test
Silverdale, WA
360-692-8588

Psychiatrist, Robert Reichler, at the Pacific Institute for Mental Health in Edmonds, WA. We had a consult with him and he was very helpful. He has seen a number of PANDAS cases and believes that PANDAS is real.

United Kingdom
London

Gavin Giovannoni, MBBCh, PhD^
Queen Mary University London, Neuroimmunology Unit, Neuroscience Centre, Institute of Cell and Molecular Science, Barts and The London School of Medicine and Dentistry, London, United Kingdom
e-mail: g.giovannoni@qmul.ac.uk <mailto:g.giovannoni@qmul.ac.uk>

Isobel.Heyman@iop.kcl.ac.uk Dr. Isobel Heyman

Edited by Suzan, 17 November 2011 - 07:27 PM.

Me - diagnosed with hashimoto thyroiditis in 1996, lyme and parsonage turner syndrome in 2010, mthfr mutation in 2013

dd10 and dd11 - diagnosed with sensory processing disorder in 2006, gluten intolerance in 2007, pandas in 2008, lyme in 2010, mthfr mutation in 2013

 



#2 michele

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Posted 24 January 2010 - 08:05 PM

Dr. Nevada Reed at Kids Link in Akron OH treats PANDAS She does not accept insurance.

#3 peglem

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Posted 24 January 2010 - 11:38 PM

edited per request

-Peggy, mom to 19yo PANDAS daughter w/ onset probably in infancy. Manifests w/ severe autism symptoms and currently nonverbal.


#4 memom

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Posted 25 January 2010 - 06:20 AM

Susan,

Dan Gelleher is in Mass., not Maine.

Thanks,

Ellie

#5 kcdc3

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Posted 25 January 2010 - 08:34 AM

Dr. Perrin - the one who did work with Swedo -she is not seeing patients right now. I contacted her not too long ago and she said to get the word out that she was not able to see private practice patients at this time. She is listed under the North Carolina section.

#6 vickie

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Posted 15 April 2010 - 07:20 PM

Dr Chris Robinson is an MD & DC and practices as a Chiropractor in Dallas. In the past 2 1/2 weeks since I heard the word PANDAS I have taken my ds to her 3 times and she has started doing research on PANDAS and how to help my ds. She is very involved in helping the body heal itself, she also does cranial sacral work. If anyone is interested in alternative methods- she is a great resource and PANDAS friendly!!

I got permission to post her information-

http://www.robinsonchiropractic.net/
12800 Preston Road, Suite 200
Dallas, TX 75230
214-750-9992

Brandy



#7 michele

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Posted 12 February 2012 - 03:22 AM

Dr. Jan Kriwinsky Beechwood, Ohio.
http://www.pediatricplace.net/

#8 riffleshell

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Posted 30 December 2013 - 01:44 PM

These are two people that I've found to be helpful in Austin, TX:

 

Brooks Booker, Austin Regional Clinic, pediatrician 

ARC Anderson Mill, 10401 Anderson Mill Rd., Suite 110B
Austin, TX 78750
(512) 250-5571

Dr Booker is very nice and I recommend him as an all-around pediatrician. He has treated PANDAS/PANS before. He can run the titers in-house. 

 

Dilip J Karnik, Pediatric Neurologist

(512) 628-1850

Far West & Mopac area 

Dr. Karnik is a highly respected neurologist and it can take up to nine months to get an appointment with him. See if your pediatrician can expedite things for a PANDAS/PANS situation. 


DS 10's onset coincided with strep in October 2013, was diagnosed within a week. Much of the time he is fully recovered but has occasional relapses. Current supplements include: Vayarin, fish oil, Vitamin C, probiotics, 1000 IU Vitamin D3, curcumin.
 


#9 cobbiemommy

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Posted 30 December 2013 - 08:16 PM

Dr. Koybashi in Omaha, NE is actually Dr. Roger Kobayashi.  He works with Dr. Rodney Lusk, an ENT at Boys Town Hospital.  They are very interested in PANDAs research.  I highly recommend them.






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