Jump to content
ACN Latitudes Forums
Suzan

Doctors by State

Recommended Posts

This consolidated list by State is a list of doctors that was taken from the original great thread (see link) about doctors that parents have had experiences with. Refer to the original post for more detailed comments from parents who have children with PANDAS.

 

http://www.latitudes.org/forums/index.php?...;hl=doctor+list

 

I don't update this list any longer but I know the link above still gets additions posted to it.

 

Arizona

 

Dr. Dinesh Talwar, Pediatric Neurologist

University Medical Center in Tucson, Arizona.

 

http://www.wellness.com/dir/2012717/neurol...rology-assoc-md

 

Robert Hellmers, MD Arizona Allergy Associates (Deb. Lowe contact) – Only treats PANDAS patients (antibiotics, steroids, ivig)

Phoenix AZ 480-344-4460

 

Dr. Christopher Spiekerman

West Valley Office

4137 N. 108th Avenue

Phoenix, AZ 85037

(623)877-7337

http://www.dvpeds.com/Practice/Christopher...ekerman_DO.aspx

VERY proactive with PANDAS and willing to discuss with other docs, He recently gave permission (actually requested) to send parents who need PANDAS help his way.

 

 

California

 

Nancy Mullan MD - Two parents that have PANDAS children from this and the TS forum, have been helped very successfully by this Dr.

 

2829 W. Burbank Blvd, Suite 202

Burbank, CA 91505

Telephone: (818) 954-9267

Fax: (818) 954-0620

http://www.nancymullanmd.com/index.html

 

Dr. Brock Bernsten - Pediatrician, willing to listen and support whatever recommendations immunologist made including open IVIG order if required. Willing to do additional research but not very familiar with PANDAS

3838 California St.

San Francisco, CA

Phone: (415) 666-1860S

 

Frederick A. Lloyd, M.D. - Has several PANDAs patients, knows Margo Thienemann, listens well, responsive, will provide antibiotics in conjunction with other Dr. recommendation, open to IVIG prescription if recommended by another Dr.

Palo Alto Center

795 El Camino Real

Palo Alto, California 94301

Phone: (650) 853-2992

 

Margo Thienemann MD - Specializes in Forensic Psychiatry, Geriatric Psychiatry, Internal Medicine, Adolescent Psychiatry & Pediatric Psychiatry, Psychiatry.... OCD & Has well over 20 PANDAS Patients

900 Welch Road

Suite 207

Palo Alto CA 94304

Phone mail: 650 324 3241

 

Dr. Frederick Lloyd, Pediatrician - helped with diagnosis, prescribed antibiotics, did a prednisone trial, and IVIG at Lucile Packard.

Palo Alto Medical Foundation, Palo Alto

 

Thomas Lin, M.D.

UCLA Board Certified Pediatrician

Gave us a diagnosis when no one else could. Very friendly, easy to talk to, and seemed to know PANDAS quite well. His son is autistic and has OCD symptoms. Believes in infections other than strep causing issues too. No treatment protocol to post yet.

4634 Barranca Pkwy

Irvine, CA 92604

office: 949-681-0777

fax: 949-681-0788

www.irvinekidsmd.com

e-mail: autismmd@cox.net

 

Colorado

 

Dr. Issac Melamed, Immunologist with IVIG infusion center – very proactive and thorough

Centennial, Colorado

720-488-0331

 

 

Thomas Smith M.D. - Dr. Smith is not knowledgeable about pandas but will give IVIG if child has been diagnosed with PANDAS first is advised by another doctor on proper IVIG protocol.

Center for Cancer and Blood Disorders

The Children's Hospital, Littleton Clinic

7720 South Broadway, Suite 110

Littleton, CO, 80122

Phone 720-777-9840, Fax 720-777-9855

smith.thomas@tchden.org

 

Connecticut

 

Dr. Nancy O'Hara in Connecticut. An excellent DAN. The treatments include gluten/casein free diet, numerous supplements and neurofeedback.

http://drohara.com/information/documents/N...er-Fall2007.pdf

 

Denis Bouboulis (an excellent immunologist) in Darien, CT one hour from NYC...

This recommendation is from this thread: http://www.latitudes.org/forums/index.php?...art=#entry41096

17 Old Kings Hwy South

Darien, CT 06820

Phone: (203) 655-9904

Fax: (203) 655-8948

 

Florida

 

Dr. T Murphy now in Tampa Florida. She is very good… Ped psychiatrist and sees many PANDAS and TS cases and was on the Swedo studies and does research in these areas. Great interview with Dr. Storch who is working with Dr. Murphy. He mentions her and PANDAS in the interview and how to get a hold of them. University of South FLorida

800 sixth Street South, Box 7523

St. Petersburg, FL 33701

 

Phone 727-767-8230

fax- 727-767-7786

email: tmurphy@health.usf.edu

 

Dr. Bradstreet, Dr. Rossignol and Scott Smith, PA. DAN practitioner, has two boys that have PANDAS! Tests ASO and antiDNase titers but does not believe they have to be high, treats with antibiotics, steroids as treatment and as a diagnostic tool for the usefulness for IVIG. Doctors in this practice are extremely accessible. First appt in person but most/all appts can be done over the phone. The nurses are extremely helpful and efficient. They usually return all emails within 24-48 hours

http://www.icdrc.org/

 

Dr. David Berger – Dan! Doc. Knows Swedo’s work, believes in PANDAS, not sure what his stance is on antibiotics but it’s worth the call if you are in his area.

3341 W Bearss Avenue

Tampa, FL 33618

(813) 960-3415 - Phone

(813) 960-3465 - Fax

http://www.wholisticpeds.com/

 

 

Jason Spielman, Psy.D. - OPEN to pandas and will give antibiotics but not IVIG or any other.

Licensed Psychologist

Director of Program Services

 

NeuroBehavioral Institute

2233 North Commerce Parkway

Suite 3

Weston, Florida 33326

954-217-1757 - office

954-385-3807 - fax

 

Georgia

 

Dr. Richard Wager, Pediatrician

6000 Lake Forrest Dr NW, Suite 110

Atlanta, GA 30328

 

Illinois

 

Dr. Kovacevic in Chicago was very helpful.

GRANT SQUARE MEDICAL CENTER

333 Chestnut, Suite #103

HINSDALE, IL 60521

Phone Numbers

Telephone: 630.986 1010

Fax: 630.986 1015

www.webpediatrics.com (phone consults are possible)

 

 

Iowa

No guarantees but these doctors follow the DAN! protocol. Worth calling- autism doctors are usually familiar with PANDAS.

 

Carolyn Walker

Prevention & Healing of Iowa

6901 Hickman Rd.

Urbandale, IA 50322

ph: 515-727-4141

fax: 515-727-4848

 

Jon S. Ahrendsen, M.D.

Wright Medical Center

215 13th Ave., SW

Clarion, IA 50525

ph: 515-532-2836

fax: 515-532-2523

 

Dr. Sasha Khosravi psychiatrist in Des Moines connected our son's "array of dots" and suspected PANDAS.

 

Kentucky

 

Chief of peds neurology Dr. Vivay Puri in Louisville KY - saw her and told us about PANDAS and invited us back the next day to be seen by Dr. Mink, a Tourette's specialist from NYC, who is NOT a pandas believer (see entire post in original thread)

 

 

Maine

 

Dr. Catherine Lockwood in Richmond, Maine. Though she knows little about PANDAS, was willing to and try the saving Sammy dose of Augmentin XR.

 

Dr. Dan Geller at Mass General 617-724-6300 (augmentin only?)

 

Maryland

 

Dr. Beth Latimer, neurologist in Maryland has been very helpful, compassionate, knowledgeable.

6420 Rockledge Dr # 2500

Bethesda, MD 20817-7837

Phone: (301) 530-9200

 

Dr. Azim Baig of South River Peds south of Annapolis. (give proph abx with aso titers)

 

Massachusetts

 

Dr. Dan Geller at Mass General 617-724-6300 (augmentin only?)

 

Dr. Robert Fuhlbrigge in Boston, MA Assistant Professor of Pediatrics(pediatric rheumatologist at Children's Hospital Boston)

Dr. Raif Geha in Boston (pediatric immunologist at Children's Hospital Boston; specializes in immunodeficiency)

Childrens Hospital Boston

Rheumatology /Fegan 6

300 Longwood Ave.

Boston ,Ma 02115

0ffice # 617 355-5727

page 617 355-6369

email robert

robert.fuhlbrigge@childrens.harvard.edu

 

Elizabeth TePas, MD (pediatric immunologist)

Mass General Hospital for Children/Newton-Wellesley Hospital.v

 

Nebraska

 

Dr. Stacy Houston, Doctors of Children, Lincoln, Nebraska

 

Dr. Koybashi, Immunologist, Omaha, Nebraska

 

Dr. James Nelson, Neurologist, - very helpful, diagnosed her clinically, willing to work with antibiotics and IVIG as necessary. Used to be in NC but recently moved to NE.

 

New Jersey

 

Dr. Rosario Triffileti, pediatric neurologist, Ramsey, NJ

http://pandas.yuku.com

 

Dr. Jyonouchi

90 Bergen Street

Newark, NJ

973 972 5779 she is an allergist/immunologist

 

Works out of UNJMD (University of Medicine and Dentistry of New Jersey) (Macecsko doc)

 

New York

 

Dr. Kenneth Bock in Rhinebeck, NY (specializes in integrative medicine and also a DAN! doctor)

 

Dr. Nira Goldstein at Downstate Medical Center in Brooklyn, NY is an ENT She has seen several PANDAS patients in her practice. She generally refers them to Max April at Weill Cornell Hospital in New York City. Dr. April appears on TV periodically in the area as an expert. Dr. Trifilletti also mention Dr. April as a good doctor in this area.

 

Fred Bomback MD in Hartsdale, NY Treaded with Cefdinir and a vitamin combo of Cholene/Isolene

 

North Carolina

 

James, Lee, MD Piedmont Neuropsychiatry - 1 hr 30 min from Charlotte, NC, does not bill insurance but is an important resources in the area http://www.piedmontneuropsychiatry.com/

 

Dr. Mauve O'Conner - Carolina Asthma & Allergy - Charlotte NC (also office in Concord) - she is very interested and curious. Willing to review all medical records and work with other doctors in a team approach (works with Dr. Corbier)

 

Dr Branner - Pediatric GI specialist - great guy, PANDAS believer, really did good work to figure out stomach issues. Did not dismiss immediately as anxiety. Found Peptic Ulcers - Charlotte NC - Presby Pediatric GI.

 

Dr. DeeDee Russell - not a PANDAS person, but excellent with ERP therapy for kids and helping with anxiety. Cornelius NC

 

Dr. Pat Gammons - all the doctors at Duke, in PCAAD. Again, not really PANDAS believer - but not skeptic either. Just wants to help on the therapy side, and did amazingly well working on the OCD.

 

Northeast Pediatric Neurology in Concord... both neurologists treat PANDAS (Dr. Corbier and ??) Very busy office, takes a long time to get an appt and the appointments tend to run late. Dr. Corbier really knows what he is doing and he gets that light bulb look and has ideas of what to look for. Not big on treatment and with low titers he dismissed the idea at first.

 

Chris Jenny PA - Dan! Doctor in Charlotte, PANDAS knowledge, is aware of Dr. Cunningham's tests and research. Will treat with antibiotics but not agressively. Helpful as backup for issues related to diet, supplements, yeast, behavior.....

 

Eliana Perrin, MD Professor of Pediatricis Chapell Hill (did some of the origional work with Swedo) - NOT SEEING PATIENTS AT THIS TIME.

 

Ohio

 

Dr. Nevada Reed at Kids Link in Akron OH treats PANDAS She does not accept insurance. http://www.kidslinkohio.com/family/index.shtml

 

Glenn J. Trippe, M.D., F.A.A.P.

"very interested in learning and treating this.. ....used longterm antibiotic without me even mentioning it.. He is the one who introduced me to PANDAS and told me what it was.. and who is treating my DD at this time."

New Beginnings Pediatrics

Norwalk, Ohio

http://nbpeds.com/glenn-trippe

 

Pennsylvania

 

Second hand info about the following doctor, he does do IVIG. He is in Philadelphia.

 

Agustin Legido

St. Christopher's Pediatric Associates

Chief, Section of Child Neurology

Professor of Pediatrics and Neurology

Dept of Pediatrics

Erie Avenue at Front Street

3rd Floor ACP, Suite 3314

Philadelphia, PA 19134

Tel: 215-427-5470

 

Also in Reading: Only 1 day a month

 

Reading Hospital Medical Center

Deptartment 132

PO Box 16052

Reading, PA 19612-6052

610-988-9447

 

Dr. Josephine Elia at Children’s Hospital

Will discuss the course of the illness; conservative with antibiotics or pex/ivig

.

 

Tamar Chansky, Ph.D. is the Founder and Director of the Children’s Center for OCD and Anxiety

Philadelphia, PA – website: www.worrywisekids.org

Liberal with antibiotics and open to discussing.

 

Tennessee

Dr. Daniel B. Kalb

615-791-9784

csfmed.net

 

Texas

 

Fort Worth, TX

Dr. Mark Mazade, Pediatric Infectious Disease Specialist with Cook Children's Medical Center

800 7th Ave Fort Worth, TX 76104-2704 - (682) 885-1485

Seems gentle and kind, very pleased with him.

 

Arlington, TX

Dr. Wilfred Raine, Pediatrician in the Cook Children's group.

848 W. Mitchell St. Arlington, TX 76013 - (817)-795-8498

Dr. Raine is friendly, compassionate, supportive and was the only (of many) pediatricians in Arlington who took me seriously.

 

Virginia

 

Dr. Susan Perlmutter in Northern Virginia is knowledgeable, very helpful in diagnosis, limited medical intervention available.

 

Dr. Julie Lewis, The Ross Center for Anxiety, psychologist - Very helpful in devising strategies and helpful with the school as well.

 

Pediatrician, Dr. Julie Fortner - Someone who will LISTEN! Staff (receptionist and nurse) extremely sympathetic, warm and friendly.

http://www.richmondpediatriccenter.com/def...t=1&Child=1

 

Pediatric Infectious Disease Specialist, Dr. William C. Koch

http://www.vcuchildrens.org/?id=716&sid=4

 

Washington

 

Dr. Tracie O'Neill, Pediatric Associates in Issaquah, Washington - She is fantastic!

 

Dr Cynthia Keller and Dr Sharon Hemplar at Redmond Pediatrics in Redmond Nr Seattle, Washington is treating PANDAS Patients with Antiobiotics, Steroids IVIG and PEX

 

Dr. Kim Kacoroski, ND is treating homeopathically in Kirkland, WA

 

Dr. Judyth Reichenberg- Ullman and Robert Ullman in Edmonds, WA have cured cases homeopathically

 

Dr Niran Al-Agba at Silverdale Pediatrics – Learning about PANDAS and willing to treat with long term antibiotics and treating quickly w/o waiting for positive strep test

Silverdale, WA

360-692-8588

 

Psychiatrist, Robert Reichler, at the Pacific Institute for Mental Health in Edmonds, WA. We had a consult with him and he was very helpful. He has seen a number of PANDAS cases and believes that PANDAS is real.

 

United Kingdom

London

 

Gavin Giovannoni, MBBCh, PhD^

Queen Mary University London, Neuroimmunology Unit, Neuroscience Centre, Institute of Cell and Molecular Science, Barts and The London School of Medicine and Dentistry, London, United Kingdom

e-mail: g.giovannoni@qmul.ac.uk <mailto:g.giovannoni@qmul.ac.uk>

 

Isobel.Heyman@iop.kcl.ac.uk Dr. Isobel Heyman

Edited by Suzan

Share this post


Link to post
Share on other sites

Dr. Perrin - the one who did work with Swedo -she is not seeing patients right now. I contacted her not too long ago and she said to get the word out that she was not able to see private practice patients at this time. She is listed under the North Carolina section.

Share this post


Link to post
Share on other sites
Dr Chris Robinson is an MD & DC and practices as a Chiropractor in Dallas. In the past 2 1/2 weeks since I heard the word PANDAS I have taken my ds to her 3 times and she has started doing research on PANDAS and how to help my ds. She is very involved in helping the body heal itself, she also does cranial sacral work. If anyone is interested in alternative methods- she is a great resource and PANDAS friendly!!

 

I got permission to post her information-

 

http://www.robinsonchiropractic.net/

12800 Preston Road, Suite 200

Dallas, TX 75230

214-750-9992

 

Brandy

Share this post


Link to post
Share on other sites

These are two people that I've found to be helpful in Austin, TX:

 

Brooks Booker, Austin Regional Clinic, pediatrician

ARC Anderson Mill, 10401 Anderson Mill Rd., Suite 110B
Austin, TX 78750
(512) 250-5571

Dr Booker is very nice and I recommend him as an all-around pediatrician. He has treated PANDAS/PANS before. He can run the titers in-house.

 

Dilip J Karnik, Pediatric Neurologist

(512) 628-1850

Far West & Mopac area

Dr. Karnik is a highly respected neurologist and it can take up to nine months to get an appointment with him. See if your pediatrician can expedite things for a PANDAS/PANS situation.

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now



  • Announcements

    • Administrator



      Forum Community Guidelines

      Our forums provide support for people dealing with neurological and related issues. Everyone joining this community should find it a safe haven where they are treated with respect, civility, and understanding.

      Your agreement as a user: You agree that you will not use this forum to post or send messages that are knowingly false, inaccurate, abusive, vulgar, obscene, profane, or sexually oriented. Text should not be defamatory, harsh, accusatory, intimidating, slanderous, an invasive of a person's privacy, or violate any law. Doing so may lead to you being banned (and your service provider may be informed). The IP address of all posts is recorded to aid in enforcing these conditions. You agree that the webmaster, administrator, and moderators of this forum have the right to remove, edit, move, or close any topic at any time should they see fit. You agree not to post any copyrighted material unless the copyright is owned by you or by this forum/website. Advertisements, solicitations for services or business, most research requests, as well as any type of research on the content of these forums by third-parties, are prohibited. Unauthorized use or reproduction of posts on these forums is not allowed. Any user who feels that a posted message is objectionable is encouraged to contact an administrator.

      Announcements, media requests, and research requests

      These need administrative approval. Please send to an administrator before posting.

      Inappropriate content

      Members are here for support and education. Check the list below for types of posts that are not allowed: Advertisements Flames or messages meant to intimidate, criticize, or harass others Threatening or obscene messages Messages discussing a private message (PM) from others Copyrighted materials that you do not own the rights to, except educational or research articles Messages containing or condoning illegal acts; also messages of suicidal intent Direct discussion of politics (please avoid) Specific or strong religious views Requests for donations for other organizations unless approved by administrator Solicitation of members for research, media projects or other projects, without prior administrative approval About links for other websites:

      You may have links in your profile as long as they do not violate our guidelines (above). Links within a post to online resources and articles are generally OK. Do not post links to other forum communities with the aim of soliciting other members to that community, thereby taking them away from this community.

      When a guideline is violated

      If you violate a guideline, you will be contacted by PM or email. We will try to resolve things amicably. We don’t like to ban members and rarely do, but this is an option.

      Updated March 19, 2010
    • Administrator



      Disclaimer

      The ACN Online Discussion Boards are intended to provide helpful information and allow sharing of ideas. Postings should not be considered as medical advice. All users should consult with their healthcare professional for questions or medical decisions.

      Users must accept full responsibility for using the information on this site and agree that ACN, Latitudes.org, advisory staff or others associated with the site are not responsible or liable for any claim, loss, or damage resulting from its use. Please remember that we do not actively monitor all posted messages and cannot be responsible for the content within. We can also not guarantee that access to the site will be error-free or virus-free.

      Reproducing any document in whole or in part is prohibited unless prior written consent is obtained. Web pages may be shared when passed on with the URL.

      Information posted on the Forum is done so voluntarily and will be accessible to the public. The material posted may be used by ACN (without the identity of the user) for publications or educational purposes. No compensation will be provided for the use of this material.

      Note: ACN is providing this service with the expectation that users will abide by the guidelines provided. We reserve the right to monitor postings and remove or refuse inappropriate and questionable material, as well as remove dated postings at our discretion, for any reason.

      Privacy Policy

      When you register with the Forum, you need only give your email address, which is available only to the Adminstrators and will not be shared on the Forum site or with others in any format. Forum users will see only the user name you choose to provide.

      Our web server collects and saves default information logged by World Wide Web server software. Our logs contain the date and time, originating IP address and domain name (the unique address assigned to your internet service provider's computer that connects to the internet), object requested, and completion status of the request. We use these logs to help improve our service by evaluating the "traffic" to our site in terms of number of unique visitors, level of demand, most popular page requests, and types of errors.

      You have the option of enabling to save your username and password data when you are accessing interactive parts of our websites, to allow your web browser to "remember" who you are and assist you by "logging on" without you having to type your username and password repeatedly. This is known as a cookie and it can be enabled or disabled in your control panel. Cookies are small files stored on your computer's hard drive that are used to track personal information.

      Except for authorized legal investigations, we will not share any information we receive with any outside parties.

      Updated March 19, 2010
  • Help us learn if blood type has a correlation with PANDAS/PANS   78 members have voted

    1. 1. If you are the biological mother of a child diagnosed with PANDAS or PANS (or you believe the child has PANDAS or PANS), please select your blood type below:


      • O +
      • O -
      • A +
      • A -
      • B +
      • B -
      • AB +
      • AB -
      • I Don't Know

    Please sign in or register to vote in this poll. View topic
×