Good Doctors in NC

[Rowens1214]

Cant find the link to the doctors page. can someone help

[T_Mom]

Cant find the link to the doctors page. can someone help

 

 

Here it is:

 

http://www.latitudes.org/forums/index.php?showtopic=5023

 

Take care--

[Rowens1214]

thanks

[Lori Ann]

Where do you live in NC? I am in the Charlotte area and may be able to tell you what I have experienced with the doctors here so far.

[Rowens1214]

we are in Wilmington, beach town

[Lori Ann]

Charlotte, is way too far from you. My best advice if you do not see a doctor on this forum is to call neurology or immunology centers in your area and ask if they are familiar with the disorder. Once you are pretty sure about the diagnosis, you might want to get in touch with one of the PANDAS doctors. We found that many of the local doctors did not really know enough about the disease to help us and we ended up making an appointment with Dr. L anyway. I wish you the best of luck!

[thomasmom]

we are in Wilmington, beach town

 

Nice to know there is someone else on the NC east coast. I live in New Bern and I have another friend here whose child has Pitands. Our children are both patients of Dr. K we have found some very compassionate local PEDS who are willing to learn all they can to help us. Both of our children are so much better than they were last year but it has been a long haul.

 

Let me know if I can help you furthur !

[MMC]

We are in the Raleigh area. I wish I could recommend a PANDAS doctor in this area, but don't know of any presently. Both of our pediatric doctors here do not dismiss PANDAS, but they just don't treat it. The doctor we saw at Raleigh Neurology did not believe in PANDAS. Hopefully some of the doctors there will come around. Unfortunately, I don't know of any PANDAS doctors at Duke or UNC...I wish there was someone, and there may be, but I just don't know of any. We have seen Dr L in Bethesda, MD but this is a 4.5 hr drive and is expensive. We see a neurologist and PANDAS believing immunologist in Concord, just North of Charlotte. It's a 2.5 hr drive to their offices, but my wife's mother is in Charlotte, so we have family there. I believe the neurologist's wait time for new PANDAS patients is a year.

 

Best wishes to you on your doctor search. If you can just find a peds doctor who is willing to prescribe abx (and try different ones) and a steroid burst, this is a start.

[mom md]

Have some suggestions in Charlotte.

Dr. Maeve O'Connor immunology (likes to work with a neurologist)

Dr. Tess Nelson-long wait but worth it

Dr. Jean Corbier- opening a "neurology wellness center" with three pediatric neurologist in the next several months. Plans to focus on autism and PANDAS!!!! Right he is booked out till Feb in his office but he is trying to get this up and running fast.

[dcmom]

Ok- I just need to vent a little here. I only ran into this with one doctor- the others we went to were really compassionate.

 

If a doctor really understands PANDAS, and cares, they would not make you wait 9 months to a year for an appt.

 

Even the darn criteria that we all get so mad about states an overnight, dramatic onset of ocd (and tics, etc). WHO would ask a parent to wait a year for proper diagnosis/treatment- give me a break. We all know which docs see the most pandas patients- and they don't ask you to wait a year for an appt.

 

Heck, if the dentist can fit you in for an emergency toothache-

 

If these docs want to "focus" on, or care about, pandas kids- they have to do better. MANY specialists can fit you in for an emergency quickly- don't tell me that neurologists cant.

 

Some docs really don't get it.

[Megs_Mom]

Ok- I just need to vent a little here. I only ran into this with one doctor- the others we went to were really compassionate.

 

If a doctor really understands PANDAS, and cares, they would not make you wait 9 months to a year for an appt.

 

Even the darn criteria that we all get so mad about states an overnight, dramatic onset of ocd (and tics, etc). WHO would ask a parent to wait a year for proper diagnosis/treatment- give me a break. We all know which docs see the most pandas patients- and they don't ask you to wait a year for an appt.

 

Heck, if the dentist can fit you in for an emergency toothache-

 

If these docs want to "focus" on, or care about, pandas kids- they have to do better. MANY specialists can fit you in for an emergency quickly- don't tell me that neurologists cant.

 

Some docs really don't get it.

Welcome to my world . By the time we got help, it was over. Then when we needed help again, we couldn't get in. Repeat again.

 

That's why I am so obsessive about having a team of docs at the ready!