Another Example of Infection Causing Mental Issues

[GraceUnderPressure]

Vickie,

 

If my ds18 is a PANDAS kid, then he does not get regular strep sx's either. Was your child able to be diagnosed using Dr. Cunningham's tests?

 

~Grace

[thereishope]

Saying this makes me feel old...my son was diagnosed before the Cunningham test was really talked about so he has not had a need to get it done. Granted that was only 2 years ago, but still.

 

My son is pretty textbook PANDAS so he wasn't a hard one to diagnose. He was sudden onset on his 5th bday and even though he does not get symptoms of strep (none of my kids do), I had read about PANDAS prior to my son's 5 year check up and told the dr he had a sore throat even though he didn't. She did a strep test. The rapid came back neg, the culture was + and he has improved with antibiotics and time. All together, we have had 3 strep triggered exacerbations. With the subsequent two, I knew to take him for a strep test by recognizing his hallmark meltdown he will have once PANDAS begins to surface.

Edited August 31, 2010 by Vickie

[GraceUnderPressure]

Thank goodness you knew what it was beforehand! I just keep praying that the day will come that the pedi's will immediately test for strep without us moms having to know or be creative to get it done!

 

My ds was about 4 when we were at a prayer group meeting we had for moms & tots. It wasn't new, we had been to it many times, though there may have been a few new kids there. He kept leaving his play to come over to where the moms were praying & hug me & tell me that he loved me. It was cute the first couple of times & my friends just smiled, but after a half dozen times, I started wondering what was going on. Add 14 yrs & I am finally understanding that that was very likely the onset of this wretched business...