1wk post IVIG raging/anxiety/frustration is AWFUL

[saidie10]

Oh thanks!! Don't want to make it worse!! Yikes!! What do you think coke slurpees will do? I'm really worried he isn't going to drink enough. I wanted to make it as appealing as possible. He pulled that yesterday at the ivig, they gave him fluids to help. I had a doc tell me once get them to drink no matter what...of course, we weren't talking about pandas...just general old sickness. PM/email what you think...I don't want to hijack the topic!!

 

Good luck Saidie!! We can hold on tight together the next few weeks!!!

 

Sarah

 

Never a hijacked topic! ALL good advice!!!! I am upping fluid intake...my son loves lemon-lime Gatorade so doing that, picking up Omega 3 supplements today...any advice on dose for 7yr old weighting 45lbs? I will ask at Health Food Store too. Also going to pick up Culterelle? I need to write it down but it is the probiotic mentioned the yogurt post...going to look at the one that starts with an F too! Epsom Salts too for some soothing and relaxing baths. DS is wanting to stay in his bed a lot and watch TV. I am FINE with that. He says he feels safe there and his mind can rest...that is what heeds right now anyway!

[trggirl]

Keep in mind that Omega's can cause tics to be worse in some kids. I always feel I have to post that for kids with tics because my daughter had such a strong reaction to it.

Edited August 28, 2010 by Trg girl

[PhillyPA]

Interesting point. My son is not bothered at all with dyes. However, Omegas are like poison to him. Horrible reaction.

 

Personally, I add nothing new and do nothing different after an ivig. I just trust that the body will do what it needs to do to heal. I do this because I do not know what he will or will not react to. For me, I believe it is safer to let the new anti-bodies do their work without any interference from me.

Edited August 28, 2010 by PhillyPA

[saidie10]

Interesting point. My son is not bothered at all with dyes. However, Omegas are like poison to him. Horrible reaction.

 

Personally, I add nothing new and do nothing different after an ivig. I just trust that the body will do what it needs to do to heal. I do this because I do not know what he will or will not react to. For me, I believe it is safer to let the new anti-bodies do their work without any interference from me.

 

Excellent point...maybe I will hold off on some things to see how things progress...we are only going into week 2