Worried_Dad Posted August 25, 2010 Report Posted August 25, 2010 I think some of us will just end up searching and spending time on more than one forum. Although the PANDAS/PITAND forum is our family's "home base" here, I've also browsed and posted on the Tourette's and OCD forums at various stages when we were exploring different options for our son. I think quite a few folks on the PANDAS forum "cross-post" when it's appropriate. Thank goodness for the "Search All Forums" option!!! Just to add my two cents, I agree with this statement. My son has recently been diagnosed with Lyme & PANDAS and the PANDAS Forum has really been the one place I have been able to find conversations about children with Lyme. Other Lyme boards seem to be more about adults with Lyme. I also want to add that I am somewhat confused about splitting up the forum. While I understand that the recent talk of Lyme is probably a bit much for parents whose kids do not have Lyme, I thought my son's diagnosis of Lyme and PANDAS would put us under the PITANDS heading. Am I wrong in thinking this is where we belong? I am also wondering if this forum would be for all who have lyme or just for children who have lyme. There are so many lyme forums out there right now for adults who have chronic lyme and it is often difficult to find appropriate treatment plans/options for children who are dealing with lyme. Just some thoughts...... Elizabeth
harpazo_hope Posted August 25, 2010 Report Posted August 25, 2010 I just hope that the Lyme board doesn't center around brain fog and anxiety as the only neurological symptoms of lyme, like all the other lyme boards and groups I've read.
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