Maybe I wont tell dr J about Dr B

[melanie]

I know this sounds sneeky but If I dont tell Dr J that Im seeing Dr b and get the 1.5 from Dr B and just cancell 2-3 Ivs with Dr J and see how it goes.Is this getting rediculous or what?Whats wrong with me?

 

We just got back from Baltimore inner harbor from a short vacation.He did pretty good no major outbursts except for in the aquarium hes deathly afraid of snakes and they had some and he didnt know where they were and was freaked out the whole time.

 

melanie

[tpotter]

Let me ask you...are you afraid that Dr. J. will not want to treat him anymore? I think maybe it would be better to tell her that you have decided you want to give it a trial. You respect her opinion, but you also want to see if there's "something" to what the other docs are saying. Then tell her that you'll keep her informed. Maybe this is the opportunity to help educate her.

[melanie]

Exaactly! I have asked her about the increased dosage,she said no.I want to write a well informed letter citeing data ,but everything I pull up is from 1999 .I need 2010 info ,data.I think were just going to do the 1.5 and not tell her.I dont know what else to do.

 

Melane

[jayjay]

First of all, there is nothing wrong with you, you just want to help your son. I think you should do what your heart tells you to do, but let both Dr.s in on it. I know Dr. B would be willing to speak with Dr. J. if you choose to do the IVIG with him. He has spoken to my son's ped., psych, and ENT. Maybe if they speak to each other they can work out a plan that is best for your son. Then you don't have to be sneeky. Being sneeky will only add to the anxiety and confusion.