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Posted

My son has been up middle of night past few nights wringing wet! He has to change his shirt, dry his hair! This scares me because night sweats have nearly always preceded a baaaad time! Wierd thing is he is still on 250 mg. azithromycin (I tapered off the remaining tabs. of 500 mg.), and he is on 30 mg. of prednisone (tapering from 40). I have not been good about giving the nystatin (because its that horrid suspension instead of the powder that I always got before). His belly is quite distended, but he is putting on fat all over and retaining fluid from the pred.

 

Know anything factual, or from your experience about night sweating? I did find in one of my medical reference texts that it can be associated with chronic infection.

Posted

Ohh boy...did my son SWEAT at night when in his episode....bad...like you said!! It cleared when his episode cleared and has never returned. Don't know what it has to do with PANDAS...but, it was clearly related.

Posted

Plasmid.....for MY son it was related.......it may not be for yours. Could be the meds? How hot is it at night where you are?? I had my son sleep shirtless when this was happening...it helped a bit.

Posted

Hi - just an idea but.. our dd and ds just got their adrenals tested and both came back with quite a few issues. I was doing some research and issues with adrenals can cause night waking and sweating. I don't know if our issues (low cortisol and 17 oh progesterone for dd and lowish cortisol with mucked up rhythm and very high DHEA with low 17 oh progesterone for ds) predated PANDAS or if they are as a result.. I am wondering if basal ganglia problems can influence the hypothalamus and hence mess with the hypothalamus-pituitary-adrenal axis.

 

Confusingly, some of the problems that are seen for our dd in exacerbation also fit with low cortisol levels.. here's a descriptive link

 

http://www.ehow.co.uk/about_5183275_sympto...sol-level_.html

 

 

"Individuals who have low cortisol can experience a number of symptoms that can vary from person to person. These can include diarrhea, shakiness, inability to handle stress, having angry outbursts, being emotionally hypersensitive, having difficulty overcoming minor illnesses, body aches, sensitive skin, scalp ache, feeling jittery, clumsiness, confusion, lightheadedness, dark circles beneath the eyes, frequent urination, trouble falling asleep or waking up in the middle of the night and flu-like symptoms."

 

 

not saying it is this.. more likely a fever running up to an infection but thought I'd just throw it in the mix........

Posted

Oh -- and if you can;t get the nystatin in.. our phamrmacist recommends amphotericin B.. he can compound it with FOS to make it taste ok too. He says it stays in the gut, is tolerated well and has no resistancies unlike diflucan..

Posted (edited)

Prednisone gave my daughter the soaking wet night sweats. Hmmm, it seems like something else did too, but I can't remember what.

 

edited to add: Oh, yeah, I remember now, the low dose IVIG caused that, too.

Edited by peglem
Posted

My DS has really bad night sweats like that. Most nights, I end up completely changing him and the pillowcase before I go to bed. Honestly though, in our case, I think it's likely Chiari related. I have the same problem (and have Chiari) and DS did this before pandas as well.

Posted
My son has been up middle of night past few nights wringing wet! He has to change his shirt, dry his hair! This scares me because night sweats have nearly always preceded a baaaad time! Wierd thing is he is still on 250 mg. azithromycin (I tapered off the remaining tabs. of 500 mg.), and he is on 30 mg. of prednisone (tapering from 40). I have not been good about giving the nystatin (because its that horrid suspension instead of the powder that I always got before). His belly is quite distended, but he is putting on fat all over and retaining fluid from the pred.

 

Know anything factual, or from your experience about night sweating? I did find in one of my medical reference texts that it can be associated with chronic infection.

My ds has definitely had night sweats- We are still pretty new at PANDAS but I would put money on it that it coincided with what I now know to be past exacerbations, I know we had it with the one that brought us to the PANDAS diagnosis.....there were times he would be completely soaked- we would change his clothes- maybe have him sleep shirtless and blankets and put him back to sleep -also coincided with night wakings every time.

Brandy

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