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Posted

So, we went for our dr appt in plano today....he of course said he can't diagnose just PANDAS, but we already knew that...so, he did find an IgG deficiency in her bloodwork from the last two times its been drawn. so, now i am waiting to hear from them to see if the insurance will cover the IVIG, which he says they really can't not approve it because of the actual diagnosis he gave her. All in all I was really pleased with this visit! We are on the road to maybe recovery...ya'll pray they call me with the approval!!

Posted

Praying! What kind of a world is it, when we are happy to hear our children have immune deficiency, so they can get treatment?

Posted
Praying! What kind of a world is it, when we are happy to hear our children have immune deficiency, so they can get treatment?

 

I know right? It's sad that we have to be excited for that crap because the medical community dont believe in our kids....really ticks me off

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