Unless CamK Says Different...

[saidie10]

Dr. confirms that although we will wait to see what Cunningham says my oldest son has PANDAS. Finally after almost two years...many doctors and sleepless scary nights we finally know what is going on with our precious boy and we can hopefully help him. I am happy and sad all at the same time. Dr said with his immune deficiency and the elevated titers from his excaserbation to his brothers strep in april that this is what we are dealing with. He says he wants to do IVIG. NOW I am scared again.

[bgbarnes]

Dr. confirms that although we will wait to see what Cunningham says my oldest son has PANDAS. Finally after almost two years...many doctors and sleepless scary nights we finally know what is going on with our precious boy and we can hopefully help him. I am happy and sad all at the same time. Dr said with his immune deficiency and the elevated titers from his excaserbation to his brothers strep in april that this is what we are dealing with. He says he wants to do IVIG. NOW I am scared again.

I got your VM- I will call you when kids are in bed....Dr R does not do high dose IVIG- one of the reasons Ia m talking to Dr K next weeek- hoping to get high does protocol and change Dr R's philosophy.

 

Brandy

[sptcmom]

I hope you do Dr. K's protocol. It seems to give the best results. GOODLUCK!