Mystery Diagnosis

[justinekno]

We don't get it either. Bummer. Their site does say they offer free podcasts but it looks like that is after the season is over. Does anyone know if that's the case? I would love to see it before next year!

 

I thought my channel I was searching on said discovery health.. now I think it said discovery hd.. oh well.. thinking we just don't get it with our cablevision...

[MomWithOCDSon]

We'll be recording it and then offering it to DS to watch when he's ready.

 

For those of you with ComCast or a related cable company, the call letters I see on our digital cable schedule for Discover Health HD are "D-HC." "Mystery Diagnosis" is on right after "Dr. G.: Medical Examiner" tonight.

[saidie10]

Is anyone having their kid(s) watch the episode? I was thinking about it to give my boys a better understanding of the disorder, why they take antibiotics, and, to let them know they are not alone or weird, and, to let them see that THEY WILL BE OKAY!! (which they are, now)

My younger son was severe....I think he would really relate to it, but, my older son probably won't so much. However, I am afraid it may backfire and scare them....making them paranoid??!!!

 

Any thoughts??

 

I will tivo it and wait until I watch it first. My boys are young and although I KNOW we are going to get a PANDAS diagnosis soon, I don't want to freak them out. I had tried a while back to have my oldest watch Front of the Class with me (the story about the teacher with Tourrettes) after the Neurologist told me that was probably where were headed and I wanted him to know that tics were ok and other people had them and not long into watching it he FREAKED! So it was not a good idea after all. Again they are only 7 and 5. I think older kids who can grasp their situation better would benefit from it, especially giving them the hope that there may be a light at the end of their dark tunnel.

[tantrums]

Watching it now. WOW! So many more similarities to my son than mentioned in the book. It would scare the heck out of him. He can't watch it. It's making me cry too. I realize we were soooo lucky! If he hadn't gotten ABX within a couple of weeks like he did...

 

I have to say too - it is making a HUGE (positive ) impact on my husband as well. Thank goodness something finally has!

[MomWithOCDSon]

My DS is watching it with me after all. I think he is most interested in the "today's" Sammy, since it seems he's fully recovered.

 

He caught something that's bothering me too with the show, though. How many times is this narrator going to call PANDAS "an extremely rare condition"?!?!

[tantrums]

My DS is watching it with me after all. I think he is most interested in the "today's" Sammy, since it seems he's fully recovered.

 

He caught something that's bothering me too with the show, though. How many times is this narrator going to call PANDAS "an extremely rare condition"?!?!

 

I KNOW I am soooo annoyed with hearing it called rare! I would bet money there are thousands upon thousands of kids out there undiagnosed due to ignorance! That needs to stop! I continue to count myself among the blessed for being lucky enough to happen to know not one but TWO people whose lives were already touched by this so my son did not have to suffer undiagnosed for long!

 

I watch this show frequently anyway. I'd bet I'd have caught this by watching this if I'd not sooner. But it's frustrating. DOCTORS should know this!

[P_Mom]

Boy am I glad I didn't have my kids watch it.......

[Phasmid]

I wasn't planning on having my son watch this. However, he came home from a friends house just as I had started watching it. He sat down, and I switched it, but he said, "Go back, I want to see that." So we all watched. He was pretty quiet through the whole segment, but at one point said, "That's sad." Then he commented on how unlucky the boy was to have both Tourette's and PANDAS, not realizing that they were the same issue in this boy. It was good for him to see, as he often comments that he is "so unlucky" to have so many health problems. He didn't relate to any of Sammy's behaviors, because they were very different from his own, so he told me to stop telling him he has ocd because he obviously doesn't. He is confident in his own recovery, which is great, so he commented at one point during the point about Sammy's tics, "I don't have that anymore." Overall, I think he is very unaware of his own "issues." The thing that makes it really difficult is he cannot see his ODD. He thinks that it is everyone else around him that is having or causing a problem.

[JAG10]

I wasn't planning on having my son watch this. However, he came home from a friends house just as I had started watching it. He sat down, and I switched it, but he said, "Go back, I want to see that." So we all watched. He was pretty quiet through the whole segment, but at one point said, "That's sad." Then he commented on how unlucky the boy was to have both Tourette's and PANDAS, not realizing that they were the same issue in this boy. It was good for him to see, as he often comments that he is "so unlucky" to have so many health problems. He didn't relate to any of Sammy's behaviors, because they were very different from his own, so he told me to stop telling him he has ocd because he obviously doesn't. He is confident in his own recovery, which is great, so he commented at one point during the point about Sammy's tics, "I don't have that anymore." Overall, I think he is very unaware of his own "issues." The thing that makes it really difficult is he cannot see his ODD. He thinks that it is everyone else around him that is having or causing a problem.

 

I don't know if you can glean anything from this.... I don't use the term OCD with my dd10. We've talked about how some people have difficulty getting stuck and that can show itself in many different ways. This covers depression in getting stuck feeling sad and not being able to come out of it; anxiety-getting stuck worrying about something and not being able to let it go; holding grudges-getting mad and not being able to let it go; having negative or scary thoughts and not being able to get them out of your mind; continuing bad habits like smoking, drinking, over/under-eating, ect. as well as some more overt signs of OCD. Getting stuck can happen in visible and invisible ways, but basically the gear-shift in our brains isn't switching when it is supposed to and we become stuck doing or thinking something that gets in the way of our happiness.

 

This explanation really helped her understand ADD also in that she couldn't properly shift her attention from one thing to another when she needed to and was frequently out of sync with her classmates.

 

The "stuck" factor is what links many, many of these symptoms together in a general way kids can understand.

[Phasmid]

Well said, thank you.