Encephalopathy

[tapiash]

I received the medical records from my sons Pandas doctor and this is what he has been diagnosed with Encephalopathy, autoimmune other specified, ocd, psychosis paranoid. He is treating him for PANDAS. I am assuming this is for insurance purposes. There is nothing in his file about PANDAS. This is probably a good thing if we are wanting IVIG, right? Confused?????? Anyone else have a PANDAS child diagnosed with Encephalopathy?

[Kayanne]

Encephalopathy is a general term meaning brain inflammation

[tapiash]

Encephalopathy is a general term meaning brain inflammation

 

Ok. Thanks. I wonder how he figured out that one/? He did not perform a EEg . Maybe this is common with Pandas patients.

[Phasmid]

yes, that is a good thing!

[P_Mom]

Yes, it is common with PANDAS patients because that is what PANDAS is.....swelling of the brain.

 

It is good he didn't put PANDAS on file........better for IVIG down the road if you need it!

[tapiash]

Yes, it is common with PANDAS patients because that is what PANDAS is.....swelling of the brain.

 

It is good he didn't put PANDAS on file........better for IVIG down the road if you need it!

 

I am so glad I have a knowledgeable doctor. Things have been so crazy in my life. The last thing we need is a doctor who cant help us. I think things are finally starting to get better for my family. I pray it continues.

[kimballot]

Did the diagnosis say encephalopathy or encephalitis? Encephalopathy is a bit more general and means disorder or dysfunction of the brain - enchephalitis refers more specifically to swelling.

 

Also, your doc cannot use PANDAS as a diagnosis, because there is not yet a diagnostic code for PANDAS. That is why we need to get the cunningham test FDA approved - to move us toward a legit diagnosis of PANDAS.

[tapiash]

Did the diagnosis say encephalopathy or encephalitis? Encephalopathy is a bit more general and means disorder or dysfunction of the brain - enchephalitis refers more specifically to swelling.

 

Also, your doc cannot use PANDAS as a diagnosis, because there is not yet a diagnostic code for PANDAS. That is why we need to get the cunningham test FDA approved - to move us toward a legit diagnosis of PANDAS.

 

Encephalopathy but he didn't say anything about it during our visit.

[kimballot]

I think he is just using an official sounding word for unspecified brain dysfunction. It is not a specific diagnosis. Since there is no diagnosis for PANDAS, doctors use different diagnoses like anxiety due to an underlying medical condition or encephalopathy, or autoimmune disorder - depending on the test results they have.

[tapiash]

I think he is just using an official sounding word for unspecified brain dysfunction. It is not a specific diagnosis. Since there is no diagnosis for PANDAS, doctors use different diagnoses like anxiety due to an underlying medical condition or encephalopathy, or autoimmune disorder - depending on the test results they have.

Oh I see. makes sense.