Polling the PANDAS+Lyme group

[MichaelTampa]

At this point, I've been diagnosed both with PANDAS and lyme. The lyme diagnostic tests are not great, but, with symptoms, lead the lyme doctors to say I have lyme. No real PANDAS diagnostic tests, but closest thing I guess, the Cunningham CamK result, which says PANDAS for me. By all parental accounts, I did not have any sudden onset of symptoms like PANDAS is often described with. I have never noticed wild swings of symptoms from strep exposure. It makes me question the PANDAS diagnosis some, given lyme is there to potentially explain the symptoms.

 

I'm just curious, for others with PANDAS and lyme, was the PANDAS sudden onset, are there wild swings of symptoms from exposure to strep or mycoplasma. Just kind of pondering the possibilities, wondering what everyone else diagnosed with both has experienced.

 

Michael