momtocole1 Posted May 6, 2010 Author Report Posted May 6, 2010 I can't remember exact dose but us was Dr k"s, I think it is posted on his website. Brand was Gamunex I wanted to let everyone know that I found an amazing company that did my son's second IVIG. They are called Coram Healthcare. They have 75 locations across the US. They are infusion centers. Here is the link: http://www.coramhc.com/Map/Default.aspx phone number: 800-423-1411 Just to give you an idea on cost: When I went to Denver to the Center for Cancer and Blood Disorders to get my son's first IVIG, it was $42,000 on paper (what they billed Blue Shield of Calif.) I had a $3,600 deductible which was already met so they paid $31,000 of that submitted bill and the doctor took that as payment in full. Now, for my son's second IVIG (he is 130 pounds, 12 years old). The cost was $8,000 at Coram. I was fortuante to have a pediatrician that understands PANDAS (his son has it) and was willing to write up the orders and referred me to Coram Infusion services. My ped. used Dr. Kovacevic's protocol. I can't believe it was 80% less! Just wanted to share this with all of you... This could mean the difference between someone getting IVIG or not getting it, in this economy especially... I hope this helps these poor suffering kids and families... Wonderful!! Now the qestions... What dosage 2 gr per? What is the type of IVIG? Name?/ Thanks Melanie
faith Posted May 6, 2010 Report Posted May 6, 2010 (edited) momtocole, judy, hi, how is everything with your boy? is he doing much better I hope? you did post last that things were a little bumpy, did you wind up doing another IVIG? Faith Edited May 6, 2010 by faith
Kristy S Posted February 9, 2011 Report Posted February 9, 2011 I just wanted to say thanks for this post, I just found it searching for cheaper IVIG and they are LOCAL for me! Happy Day! I just sent them a request for information!
kferricks Posted February 10, 2011 Report Posted February 10, 2011 There is one by me! yippie! Now I just need to find out if they take my insurance. But, how do you ask the docs about getting it done else where instead of them doing it?
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