T_Mom Posted May 5, 2010 Report Posted May 5, 2010 (edited) Oh my, reading these posts makes me feel like I am reading my own life time and again!!! Our youngest d (10) has been on Augmentin 1000mg XR 2xs a day, 1000 mg vit C, probiotics, omega 3's (FLAXseed), multi vit, vit D 1000 now for about 5 months+....She is significantly better then she was in the fall certainly (ie, not opening the van door at 60 mph anymore--and no washing hands until they bleed.) However, there have been periods of difficulty (2-3 days at a time typically) of up-tics with serious raging and sensory sensitivity (sock seams, etc.) Typically, someone in her class at school has been ill, strep or otherwise (our school alerts us to strep cases.) These times are so hard to see when your child has alternative periods of good--nice--friendly personality. Heart breaking-- What else has worked for us? -- just the same as mentioned by everyone thus far! ...times of vigorous exercise, a more relaxed manner and expectations for day-to-day, adequate SLEEP (I think this is really important), healthy eating, adding trytophan loaded foods, and the extra vitamin C... These seem to help-- periodically I have given Advil (1 in the morning, 1 in the afternoon) but I don't feel comfortable giving this too often--at the most 2 or 3 days in a row is what we have tried. Edited May 5, 2010 by T.Mom
thereishope Posted May 6, 2010 Report Posted May 6, 2010 I'm sorry but I didn't read all the responses. Are you giving Omega 3's?
monarchcat Posted May 6, 2010 Author Report Posted May 6, 2010 Thanks for all the input, guys! I really appreciate it. I do give omega 3s (Coromega - fish oil) but have been lax about it. I need to get better about making sure it's part of the daily regimen. Ibuprofen definitely helps, but I don't want to overdo that. I am intrigued by spironolactone and am going to mention it and bring whatever documentation I can find when I see the ped next in a couple weeks.
EAMom Posted May 6, 2010 Report Posted May 6, 2010 Thanks for all the input, guys! I really appreciate it. I do give omega 3s (Coromega - fish oil) but have been lax about it. I need to get better about making sure it's part of the daily regimen. Ibuprofen definitely helps, but I don't want to overdo that. I am intrigued by spironolactone and am going to mention it and bring whatever documentation I can find when I see the ped next in a couple weeks. Our doc feels it is safe to give advil once a day long term. That is what we've been doing. More often would be fine short term.
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