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Posted

Allie's doc wanted to get some labs before we start dicking around with abx again...she's not been so good lately. Originally, I was going to run quick and get the labs done and drop her off at school, but we didn't get much sleep last night, so I decided to let Allie sleep in this morning, do the draw, then forget about school. Considering how she's been lately, I went a bit heavy on the sedation, and prepared the draw site w/ lidocane cream.

 

The lab waiting room was really crowded- we had to wait for seats. Allie was pretty good waiting...rocking back and forth, did some wild windmill dancing, laid across my lap like a 3 yo...pretty bizarre stuff if you're not used to her. Though a few of the other patients stared, most seemed rather enthralled with her antics- nobody was rude or huffy about it!

 

It takes a very special phlebotomist to draw Allie's blood. And that very special person was working the desk instead of doing draws today. But, when Allie's turn came up, she did the draw for us anyway. And I don't know if it was all the practice w/ iggy V, or the 2 IVs, but today Allie decided she would sit in the chair for the draw. Usually, I straddle her on an exam table while the person I brought to help hold down her legs and then 3 lab workers handle the rest of her, with great difficulty. I did hold her from behind the chair and her sister helped, and 1 other lab person. Except for a bit of struggle with fear, things went great- as soon as the actual stick was done, she totally relaxed.

 

We took her to Walgreen's after...had a few "moments" there, but it turned out okay. She's been great most of the day- clingy, but otherwise good, except a few short episodes of exorcist behavior...

Compared to the last 2 weeks, this day has been uplifting!

Oh, and the reason why the woman who does her blood draws is so good with her is because she has a son with a whole bunch of psych dx's, that the psychs can't quite figure out. This is the person who did the Cunningham draw for us last year, and she's been interested in talking about it, but this is the 1st time Allie would wait while we talked briefly. I told her to check out her sons immune system- it turns out she was having lupus flares while she was preggers with him. Anyway, gave her the name of Allie's doc. So, I hope her son gets some help in figuring out what's causing the psych symptoms!

Posted

It sounds like good improvement to me... I savor the good moments- they keep me strong and remind me that she will be herself again! I am glad you had a great day.... minus the headbanging.... I look forward to the day we can all tell each other 'I am gad you have a good day/week/year.... without needing to put in the minus or except for phrases.

Posted

I can't imagine an average parent calling that a good day...and yet - you do. Funny how we can so appreciate what others might take for granted. Don't forget to remind yourself that you are an amazing mom.

Posted

I was actually grateful to read your tagline and know someone was having a good day (even relatively)...there have been so many challenging posts the last few days...

Posted

She's been getting worse all weekend. Nonstop crap all day today. I'm exhausted! Guess I shoulda kept my mouth shut, ...bragging about a good day! What was I thinking?

Posted
She's been getting worse all weekend. Nonstop crap all day today. I'm exhausted! Guess I shoulda kept my mouth shut, ...bragging about a good day! What was I thinking?

 

I'm sorry...I know how those good little moments just make you feel so hopeful.

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