My Son TJ is Cured - No signs or symptoms for 4 years

[Pandas_chicago]

To all that read this post, I have been on this site for 5 years and have spoken personally to at least 200 parents.

 

My son is considered "cured" and I feel blessed by god and don't know why I am so fortunate to be one of the one's who is in recovery. I have no ulterior motive but to give back and help "behind the scenes" - when I was going through PANDAS I didn't think I was going to be able to survive it - and having come through and living such a "normal" life I feel like it is part of me and I need to help others.

 

I have tried to be an advocate for parents who are in the disease now - who are listening to every word people are writing on this site - who would go to anyone or see anyone to help their child - to understand and be educated

 

I knew people would be upset with me - but I knew I was helping others....don't be afraid to ask questions ...If helping is ones goal - they will answer.

 

Sincerly

 

Edited by Sheila Rogers

[peglem]

I don't know anything about the situation you are referring to, but I think this forum will suffer a great loss if you leave.

I want to thank you for all the time and expertise you've shared to help our children, instead of just walking away when you no longer needed advice.

I hope this is not your last post, but if it is, I understand and wish you all the best.

[Sheila]

Pandas_Chicago, we have a policy that when administrators feel a need to delete or edit posts, those actions are not to be rehashed on the forum. The guidelines on this are posted.

 

You are welcome to send a PM to me on the topic, which you did, and to which I replied and explained as best and truthfully as I could.

 

For this reason, I deleted part of your post here. I understand if you wish to leave the forum, and I know I join with many others in wishing you well and being grateful for the help you have given, even after your own child was. thankfully, cured.

 

Sheila