Prednisone burst - is there a storm before the calm?

[Santi]

My son just finished the steroid burst and we are on the 9th day. He too has questionable TS. The 5 days on the pred was tough with the 5th being the worst. He had raging OCD the 5th night and lots of tics. Dr. K said not to worry about the behaviors during the 5 days. Focus on the behaviors from day 6-21. Starting from day 6 we have noticed significant calming (almost like he is in a trance). He has had 1-2 tantrums each day but shorter and much less intense. He is different. As for the tics, they are much better! He too tics as frequently as your child some days. The mornings start with no tics and by the afternoon he has some-but much less. My son also tested positive for Mycoplasma P so he does currently have an infection. Hang it there. I wish your child the best! Andrea

 

Still hoping (OK..praying!!) for a dramatic turnaround. It's now day 6 (her 1st day off prednisone) and dd was an emotional wreck again this morning. She started the day with a complete melt down about what to wear. She was literally screaming at me and hysterical. Then 20 minutes later she hugging & kissing me talling me how much she loves me.

 

She's at school now, so perhaps things will start to turnaround by this evening.

 

This happened to us to on the morning of day 6. Still showing signs of OCD (wetting clothes) but the day at school went well and by the evening lots of calming. Calm for about 2-3 days after and then some winding up again. Everyday has been different. Andrea