Stop calling it autism

[kim]

I thought this site had some really good info that others might want to take a look at. Video, test results etc.

Sickening to think that this child may have missed out on the healing process if the parents would not have persisted

 

http://www.stopcallingitautism.com/

[justinekno]

Wow, that is really interesting. Thanks for sending.

 

I thought this site had some really good info that others might want to take a look at. Video, test results etc.

Sickening to think that this child may have missed out on the healing process if the parents would not have persisted

[peglem]

Nice.

[Joan Pandas Mom]

Thank you for that, interesting and helpful.

 

Wow, that is really interesting. Thanks for sending.

 

I thought this site had some really good info that others might want to take a look at. Video, test results etc.

Sickening to think that this child may have missed out on the healing process if the parents would not have persisted

[MomWithOCDSon]

Wow! "Auto-immune" and "inflammation" continue to rear their ugly heads!

 

Why don't the doctors all get together and deal with this?!?!

[peglem]

If it hadn't been for the vitilago, I wonder if immune would have been investigated at all? Because it was a visual abnormality, not associated with autism.

The medical community really dropped the ball on autism. I just don't understand why they didn't see the neurology of it. Even though it was described by the psychiatric community 1st. Just the fact that the pupils are so large points to brain inflammation. I asked every doctor we saw about my daughter's pupils, and that was a LOT of doctors! It was always shrugged off. Sigh... moving foward...

[saidie10]

Just proves to me that I AM MY SON'S GREATEST ADVOCATE, DOCTOR, ETC. I will not feel funny asking...NO TELLING the doctors what I expect them to do for my son. If they won't listen, I will find one that will!

 

Thank you for sharing this families amazing journey!

 

I thought this site had some really good info that others might want to take a look at. Video, test results etc.

Sickening to think that this child may have missed out on the healing process if the parents would not have persisted

 

http://www.stopcallingitautism.com/

[kim]

It was shared from another group that comes to my email. I was just passing it on, but you're all welcome!

 

I wish there was a way to thank the family that did the amazing job of documenting and sharing everything that they did.

[marilina]

in reference to videos

two times my daughter did the same movement of the first video. I had to take her otherwise she falls down. and the second video shows the exact movement that she make with her head, and I thought it was a choreic movement. when occurred the first episode of PANDAS, 9 years old (undiagnosed) this type of "shaking the head" she made it very often and daily

[smartyjones]

interesting! especially about the vitilago. does anyone have info about the opposite - excess pigmentation spots like age spots? i've recently noticed a couple on my son's neck near his ear and one just inside his hairline. i keep checking them. . . then i think they're fading. . . then i think they're not.

 

i myself seem to have an increase in age spots that my dr just kind of shrugged off but i think it must mean something.

[bgbarnes]

interesting! especially about the vitilago. does anyone have info about the opposite - excess pigmentation spots like age spots? i've recently noticed a couple on my son's neck near his ear and one just inside his hairline. i keep checking them. . . then i think they're fading. . . then i think they're not.

 

i myself seem to have an increase in age spots that my dr just kind of shrugged off but i think it must mean something.

My ds has a spot on the small of his back- i just assumed it was vitilago b/c his grandfather ( my dad) has it I know it is an autoimmune issue but I still never connected the dots---between that and realizing what sensory issues are I feel like an idiot right now!!! I did not even point it out when we went to the immunologist 2 weeks ago b/c I did not even think about it- I will definitely point it out when we go back.

thanks for posting!

Brandy

[kim]

When I had the psoriasis associated rash (skin infection most likely strep) first I had hyperpigmentation followed by hypopigmentation. This is routinely discussed on a psoriasis website in regards to guttate psoriasis. I sure am a believer in auto antibodies causing disruption here.

 

I just referred to tyrosine hydroxylase in another thread, and have been interested in the possibility of N acetyl glucosamine being helpful in the treatment of some types of auto immune disease. This was something that I found very interesting

 

bolding mine

http://www.pgbeautygroomingscience.com/index.php?id=267

 

Topical Formulation Containing N-Acetyl Glucosamine and Niacinamide Reduces the Appearance of Hyperpigmented Spots on Human Facial Skin

 

Glucosamine has been shown to reduce production of melanin in melanocyte cell culture [1]. The reported mechanism is inhibition of maturation of tyrosinase, specifically inhibiting the glycosylation of pro-tyrosinase to active tyrosinase. Clinical pigmentation effects of topical glucosamine have not been reported. We have investigated the effectiveness of a stable derivative of glucosamine, N-acetyl glucosamine (NAG), alone and in combination with a previously demonstrated effective material, niacinamide (N) [2], for clinically reducing the appearance of facial hyperpigmented spots

 

 

L-Phenylalanine is involved in production skin pigment melanin.

 

L-phenylalanine> L tyrosine> L dopa> dopamine

Edited April 26, 2010 by kim