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Posted

Hello! I have sent a synopsis of our son to Dr. Bouboulis. Anyone else ever have a phone consult with him and what can we expect from it?

 

Thank you!

Posted

I spoke with Dr. B's nurse this afternoon and she said he read the synopsis and would be willing to help. He would like additional bloodwork done before we visit. I have approached the Neurologist here in Austin about running the tests we need to so we have more information to look at. We will see if she goes for it! Thanks for the advice and I am hopeful we are going in the right direction.

 

I agree that she can't go wrong, but will he be able to do much over the phone?
Posted

I called DR B today too.I spoke with the nurse ,gave her my info and my number.She said she would speak with him and get back to me.I thought maybe tonight but I guess not,I did call him about a month ago and he didnt return my call.Hes probably busy.SShould I call again?Does it take a while or should I just go there?Im in NJ so its not to far .

 

Melanie

Posted
I called DR B today too.I spoke with the nurse ,gave her my info and my number.She said she would speak with him and get back to me.I thought maybe tonight but I guess not,I did call him about a month ago and he didnt return my call.Hes probably busy.SShould I call again?Does it take a while or should I just go there?Im in NJ so its not to far .

 

Melanie

Melanie, if I were you, with all the stuff you guys have been through, I'd make an appointment and go see him. I sooooo wish we lived close enough to an expert to get regular treatment.

Posted

Hi Melanie -

 

I think Dr. B prefers office visits to phone consults. I would just call the receptionist and make an appointment to go and see him. Check to see if he takes your insurance, and then plan accordingly if you have to pay out of pocket. He does give you 110% of his attention while you are there and you leave with a plan and with a follow up appointment, so you do not feel that you are alone when you leave there.

 

Melanie

Posted

Hi Melanie! I sent my son's synopsis early last week to his nurse and I called to make sure she had it. She said it would take a while for him to get back to me but to call her and remind her to make sure she could put my paper in front of him at some point. I called this morning to add a few things to it and she did and said she would try and pull him aside soon to show it to him. Anyway, she called me back about 3 hours later and said he had reviewed it and would be willing to have a phone consult but hoped I could get more labs done before then.

 

If you are not that far, schedule an appointment and go see him! Otherwise, call Stella his nurse again and fax her the information and follow up with her frequently. I am in Texas so the phone is what we will have to start with. Good luck!

 

I called DR B today too.I spoke with the nurse ,gave her my info and my number.She said she would speak with him and get back to me.I thought maybe tonight but I guess not,I did call him about a month ago and he didnt return my call.Hes probably busy.SShould I call again?Does it take a while or should I just go there?Im in NJ so its not to far .

 

Melanie

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