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Posted

Hi,

 

I have posted recently that my son's tics have continued to worsen on an increased dose of 500mg Augmentin twice daily (he is only 37lbs, so that is a high dose). On Sunday we switched him to Azithromycin 500mg daily. The tics immediately stopped worsening and there has been some improvement. My doctor says that antibiotic resistance is common. How have others determined whether to switch antibiotics or try steroids? I can say that I did not expect Azithromycin to help because it failed to make a difference in the fall during our last worsening, that is how we started taking Augmentin. Even though an antibiotic failed to work in the past for a child may not mean it will not work in a current episode because maybe the strep strain that caused the current exposure is different this time? I am just wondering because we seem to need to switch antibiotics every 6 months because they stop working? Regardless it is obvious we need to do more, so with my breath held we are going forward with IVIG tomorrow and Saturday. I just wanted to pose this question as I am not sure it has been fully explored as to determine when a switch in antibiotics makes sense vs a steroid burst. Any thoughts?

Posted

I just wanted to say good luck with IVIG and I look forward to hearing positive updates as your son recovers.

 

Where are you having the IVIG done? You are local to Northern CA, correct?

 

-Wendy

 

Hi,

 

I have posted recently that my son's tics have continued to worsen on an increased dose of 500mg Augmentin twice daily (he is only 37lbs, so that is a high dose). On Sunday we switched him to Azithromycin 500mg daily. The tics immediately stopped worsening and there has been some improvement. My doctor says that antibiotic resistance is common. How have others determined whether to switch antibiotics or try steroids? I can say that I did not expect Azithromycin to help because it failed to make a difference in the fall during our last worsening, that is how we started taking Augmentin. Even though an antibiotic failed to work in the past for a child may not mean it will not work in a current episode because maybe the strep strain that caused the current exposure is different this time? I am just wondering because we seem to need to switch antibiotics every 6 months because they stop working? Regardless it is obvious we need to do more, so with my breath held we are going forward with IVIG tomorrow and Saturday. I just wanted to pose this question as I am not sure it has been fully explored as to determine when a switch in antibiotics makes sense vs a steroid burst. Any thoughts?

Posted

Thanks for the support. We are in Northern CA but we still keep our CT doctor. She is amazing and has directed his care to lead us to IVIG. Its just ironic that Dr B was in my backyard before we moved! It may be just my bias but east coast medicine is better than CA!

Posted (edited)

We definitely need a Dr. B in CA!!! I'm hopeful as word grows we will get more Dr.'s treating here.

 

Dr. K is wonderful but I am always fearful he'll retire prior to my younger kids needing treatment. Dr. B is my backup.

 

Wishing you all the best tomorrow.... we have no regrets moving forward with IVIG.

Edited by SF Mom

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