C Kinase Results High or Low

[tapiash]

I received my sons C Kinase today. It was 161. This is within normal range , correct?

[peglem]

I received my sons C Kinase today. It was 161. This is within normal range , correct?

No, that's solidly w/in PANDAS range-high.

[tapiash]

I received my sons C Kinase today. It was 161. This is within normal range , correct?

No, that's solidly w/in PANDAS range-high.

Now what? You mean I am not crazy? Thank you Lord

[peglem]

I received my sons C Kinase today. It was 161. This is within normal range , correct?

No, that's solidly w/in PANDAS range-high.

Now what? You mean I am not crazy? Thank you Lord

Did the lab send you copies of Dr. Cunningham's research papers? On page 3 of one of those, there is a graph that shows the ranges of CamKII regarding PANDAS, Sydenham's and controls. If I remember right, 161 is rather high, 200 is the bottom of the sydenham's range.

[Megs_Mom]

I received my sons C Kinase today. It was 161. This is within normal range , correct?

No, that's solidly w/in PANDAS range-high.

Now what? You mean I am not crazy? Thank you Lord

 

You made me smile tonight - I SO remember that exact feeling when we got our results - and yours are much higher. Welcome to the club - sorry you are here, but so glad that you are finding answers that can lead to the right treatment.

[tapiash]

I received my sons C Kinase today. It was 161. This is within normal range , correct?

No, that's solidly w/in PANDAS range-high.

Now what? You mean I am not crazy? Thank you Lord

 

You made me smile tonight - I SO remember that exact feeling when we got our results - and yours are much higher. Welcome to the club - sorry you are here, but so glad that you are finding answers that can lead to the right treatment.

It is such a bitter sweet Blessing. I am smiling too. For 7 months I have had many sleepless nights, arguments with my husband and family. Tonight I printed the email and showed it off.

[EAMom]

I received my sons C Kinase today. It was 161. This is within normal range , correct?

No, that's solidly w/in PANDAS range-high.

Now what? You mean I am not crazy? Thank you Lord

 

lol...well, you still could be crazy. ..... but your son's values do fall in the high/mid PANDAS range. Here is the paper http://www.pandasnetwork.org/CunninghamJNICaMKinase.pdf . Look at figure 3a and 3b

on page 3.

 

"Normal" for your son would be closer to 100.

Edited April 22, 2010 by EAMom