I thought this was interesting

[peglem]

http://www.independent.co.uk/news/science/...ind-971483.html

[ajcire]

That is interesting... I'm so not into the science of it all so maybe I read it wrong... It's connecting high levels of camk with certain kinds of memory loss? Interesting to me is that my pandas son with high camk has an incredible memory and always has.. Thinking I am reading this wrong though?

[peglem]

I was thinking more that it possibly explains ocd- a thought or action initiated but unable to make the next neural connection to follow through- so can't complete the loop? So, keeps searching for the connection repeatedly?

[MomWithOCDSon]

This is very interesting.

 

It might sort of add some "color" to both the OCD and the attention deficit behaviors some of us see in our PANDAS kids. For instance, my DS takes quite possibly the LLLOOOONNNGGGEEESSSTTT shower on the planet! When I finally pinned him down to try to get to the core of why it takes him so long ("Is it because you like the feeling of the water raining down on you?" "Is it because you're never quite sure you're clean enough?"), his answer was pretty elementary and in keeping with this article and your take on it, Peglum:

 

He said he actually "forgets" if he actually washed this part or that part, so just to be safe, he washes it all over again! I laughed because it sounds kind of ridiculous, but it certainly fits the pattern: CamK effectively "erasing" the memories that your brain is in the process of retrieving, which is basically all that's going on in trying to complete a multi-stepped but simple task like showering or bathing.

 

Might explain, too, why some of our kids lose track and stray off "mentally" in the course of everyday chores. I always thought it was because DS was trying to ward off some compulsion, but maybe sometimes it's that, and sometimes it's that his immediate memory retrieval is compromised. So he forgot for the moment that, after he brushes his teeth, he needs to put on his pajamas . . . . .

 

A whole new answer for "absentmindedness"!

[PKM]

That's very interesting......when my son was first diagnosed with Sydenham's we noticed some memory problems and they lasted for a couple of months. He had always had an excellent memory before and the memory problems seem to have disappeared now. For example sometimes we would be driving somewhere (like to a doctor's appointment or to visit my parents or something) and he would suddenly forget where we were going - even though he knew where we were going 2 minutes before. He just "forgot". This was very strange and very out of character for him. He also always forgot where he put things (also out of character for him).

 

Perhaps the high CamKII that was causing the problem???

 

PKM

 

 

http://www.independent.co.uk/news/science/...ind-971483.html

[ajcire]

Peg that does makes sense although I don't see that so much with my son. His camk was 141 though.. I know that's only in the mid range... wonder if the really high camk kids have more of the extreme noticeable ocd?

 

 

That's very interesting......when my son was first diagnosed with Sydenham's we noticed some memory problems and they lasted for a couple of months. He had always had an excellent memory before and the memory problems seem to have disappeared now. For example sometimes we would be driving somewhere (like to a doctor's appointment or to visit my parents or something) and he would suddenly forget where we were going - even though he knew where we were going 2 minutes before. He just "forgot". This was very strange and very out of character for him. He also always forgot where he put things (also out of character for him).

 

Perhaps the high CamKII that was causing the problem???

 

PKM

 

 

http://www.independent.co.uk/news/science/...ind-971483.html

[peglem]

My daughter's CamK is very high and she's chock full of OCD, but we've been dealing with this so long, I'm not even sure how much memory she has laid down. Some things she remembers well, but she has never been able to sequence anything...

 

Peg that does makes sense although I don't see that so much with my son. His camk was 141 though.. I know that's only in the mid range... wonder if the really high camk kids have more of the extreme noticeable ocd?

 

 

That's very interesting......when my son was first diagnosed with Sydenham's we noticed some memory problems and they lasted for a couple of months. He had always had an excellent memory before and the memory problems seem to have disappeared now. For example sometimes we would be driving somewhere (like to a doctor's appointment or to visit my parents or something) and he would suddenly forget where we were going - even though he knew where we were going 2 minutes before. He just "forgot". This was very strange and very out of character for him. He also always forgot where he put things (also out of character for him).

 

Perhaps the high CamKII that was causing the problem???

 

PKM

 

 

http://www.independent.co.uk/news/science/...ind-971483.html

[trggirl]

Peglem, you find the best studies and articles concerning CamK II. Thank you!